LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Bionic 880 thread - promise I won't delete it (Page 26)

 - UBBFriend: Email this page to someone!   This topic comprises 26 pages: 1  2  3  ...  23  24  25  26   
Author Topic: Bionic 880 thread - promise I won't delete it
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

Icon 1 posted      Profile for lymewreck36     Send New Private Message       Edit/Delete Post   Reply With Quote 
What about using rife AND bionic 880, as safe intervals? Anyone thought of this or tried this?

Mary

Posts: 1034 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
UnexpectedIlls
LymeNet Contributor
Member # 15144

Icon 1 posted      Profile for UnexpectedIlls     Send New Private Message       Edit/Delete Post   Reply With Quote 
well ok Joey.. you told me [Wink]

I actually agree with you... just wish my frigin body and BRAIN would hop on board [Frown]

I basically do ALL of the things you mentined yet I am still no better ...

--------------------
"You'll be surprised to know how far you can go from the point you thought it was the end"

Posts: 946 | From Massachusetts | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512

Icon 1 posted      Profile for Truthfinder     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the links to the new blogs, n.northern.... though I don't know who 'troutfarm' and 'surfbabe' are.... maybe I missed something.

Unexpected, I'm confused. Your blog says that you are much improved from where you were a few months ago, that your LLMD even commented on it. Yet you say here you are no better..... maybe you could clarify for me.

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

Posts: 2966 | From Colorado | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
UnexpectedIlls
LymeNet Contributor
Member # 15144

Icon 1 posted      Profile for UnexpectedIlls     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yeah... that was the PA who was very pregnant with triplets and would have prescribed dog POO to me ..... I was seeing improvemnts.. they were subtle... but for me a miracle.. they were very short lasting.. I am back to seriously ill, copletely bedridden and unable to walk on my own...

I again can no longer cook for myself, get up to get myself a drink.. etc... This is how I have been since the ONSET of my ilness... I had a few months of improvements.. but were lost.. so I am back to where I started and was for the majority of the 2 years I have been sick...

I have been to the ER 3x's since april.. I am very ill....

My blog was started because I was trying to use positive intention to heal... stupid me.. so I was trying to out out to the universe that i was BETTER and HEALED.. even though that was FAR from the truth...

I hope that makes sense and clairifes for you... at my last llmd appt. on July 1st.. I was so ill, I could not hold my head up, speak, or walk.. had to use a wheel chair.. my LLMD was very concerned.

--------------------
"You'll be surprised to know how far you can go from the point you thought it was the end"

Posts: 946 | From Massachusetts | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
m0joey
LymeNet Contributor
Member # 13494

Icon 1 posted      Profile for m0joey     Send New Private Message       Edit/Delete Post   Reply With Quote 
lymewreck--

I know some people that have done this. I just don't know if it's necessary for me. Psychologically it pretty much means you're declaring warfare on bugs, and if you agree with the gist of my post above, that is a risky mentality to have. Reiterate: return them to non-pathogenic form. That may be all that we need to do. Plus by investing so much time, "herxing" energy, and finances into killing bugs, it's easy to lose focus of the other things we need to do like resolve emotional disturbances and detoxify. That's pretty much all I've got left to do now, but it's still a full-time job.

Posts: 713 | From Los Angeles | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
m0joey
LymeNet Contributor
Member # 13494

Icon 1 posted      Profile for m0joey     Send New Private Message       Edit/Delete Post   Reply With Quote 
Also Mary--

Considering the state you're in now, I can see why you're anxious to jump on board multiple things, thinking they'll have a cumulative effect. When other patients that I respected were adding rife to Bionic, I was also tempted to do the same. But then I realized...the ones that seem to handle the cumulative effects well are way way better off than I am. They seemed to using the rife more for cleanup of remaining risk factors, but were more or less doing pretty well.

Every little therapy that we add to our arsenal adds to the overall toxicity level in our bodies in a cumulative way. However, our detoxification organs don't amplify in their capabilities to match. Most of us in very sick states just think of the action not the reaction (natural human tendency to destroy by destroying, not render harmless by being in harmony), which is usually a toxic backup at the excretory level--which will then lead to recirculation and herxing that doesn't seem to wear off for long periods of time.

Cliche but true: it's a marathon, not a sprint. Wait and see just how much you can do with the Bionic. Trust me, the only concern with the Bionic but seasoned (which is a relative term) users is that it's TOO powerful, not the opposite.

Posts: 713 | From Los Angeles | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
UnexpectedIlls
LymeNet Contributor
Member # 15144

Icon 1 posted      Profile for UnexpectedIlls     Send New Private Message       Edit/Delete Post   Reply With Quote 
"return them to NON-pathogenic form"

Mojoey---- How DO you do this my friend??? [Smile]

--------------------
"You'll be surprised to know how far you can go from the point you thought it was the end"

Posts: 946 | From Massachusetts | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

Icon 1 posted      Profile for lymewreck36     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hey UnexpectedIlls, I'm so sorry to read your post. Did you say you did the bionic 880?

My heart breaks to hear of your condition. It's just awful this horrible disease.

m0joey......you speak many wisdoms! And I'm slowly catching on. Bionic is incredibly powerful. Would never have believed that one month ago when my husband and I joked about snake oil!!!!

OMG!!!!

Mary

Posts: 1034 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

Icon 1 posted      Profile for lymewreck36     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bamboo Forest....I can't wrap my brain around this.....if I am "clearing" or "deactivating" this bug....how can it be "activated" again. Does it go into a cyst with bionic and then open up again with stress? Has anyone viewed blood smears following bionic treatment?

Has anyone tried antibiotics after feeling great with bionic to see if he or she had a "herx?"

In other words, have any of these things been done to DEFINE what "clearing" or "deactivating" means?

I'm just curious.

I don't care so much about HOW this makes me feel better, as long as it does.....BUT

I wonder where all these terms are coming from.

Mary

Posts: 1034 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
n.northernlights
LymeNet Contributor
Member # 17934

Icon 1 posted      Profile for n.northernlights     Send New Private Message       Edit/Delete Post   Reply With Quote 
I read that some doctors investigating the bionic reported that the CD-57 count goes up.
And Joey watched the white blood cells devouring spiroketes in the microscope during treatment.

Sounds like the bionic restores the immune system, thus keeping the bugs in check. (like it is in people who feel well and do not have lyme symptoms) Any killing is done by the immune system like it usually does, or should do.....

Posts: 366 | From Europe | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
m0joey
LymeNet Contributor
Member # 13494

Icon 1 posted      Profile for m0joey     Send New Private Message       Edit/Delete Post   Reply With Quote 
Many things can reactivate bugs: stress, nutritional deficiencies, other hormonal balances, emotional or physical trauma, cellular hypoxia, or even a severe infection. But most infections themselves are severe enough to cause a relapse.

Most of the other factors I listed turn the body into fight or flight state, which increases adrenaline, takes away blood from the gut (where both immune and brain functions are heavily tied), and into the extremities. Rife also showed adrenaline to change bugs from benign/latent forms into pathogenic forms. Bruce Lipton also talks about adrenaline as a result of chronic stress in our society that is the first step to chronic illness.

Cellular hypoxia is a little more complicated, but may become resolved upon detoxification of metals and toxins. I am using ozone to help with this, but the Bionic (based on energetic testing) still seems to be the preferred way of shuttling them out. The ozone seems to release toxins by oxygenating cells and restoring cellular function.

n.northernlights: worth mentioning that although my white blood cells were working on the spirochetes, they were also shown to disintegrate very rapidly, which the doctor said was a sign of anaerobic metabolism (cellular hypoxia). This was further evidence that I needed to drastically change my metabolic makeup by restoring natural function before I could hope to rely on one machine to do all the killing.

I wanted to add: it seems that the therapy will work faster if you don't deal with any chronic fatigue.

Posts: 713 | From Los Angeles | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

Icon 1 posted      Profile for lymewreck36     Send New Private Message       Edit/Delete Post   Reply With Quote 
"I wanted to add: it seems that the therapy will work faster if you don't deal with any chronic fatigue."

Above from m0joey.

So, does this mean I should stop making myself take care of my household duties and go to bed?

mary

Posts: 1034 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
bamboo forest
Member
Member # 21066

Icon 1 posted      Profile for bamboo forest     Send New Private Message       Edit/Delete Post   Reply With Quote 
YES!!!! Tell your kids and husband they need to cover for you now so you can get better and it will be well worth their while in a few weeks. You need to be happy relaxed and not over worked and go spend half a day at you favorite mineral pool detoxing and de-stressing and relaxing. That is my recovery secret and Rx.

While you are floating around the pool visualize a new healthy life for yourself. Even hire a cleaning person/assistant for a few days a week while you do the protocol and get your healthy life back. It will be worth it.

Posts: 42 | From the woods | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
m0joey
LymeNet Contributor
Member # 13494

Icon 1 posted      Profile for m0joey     Send New Private Message       Edit/Delete Post   Reply With Quote 
I don't mean if you make yourself fatigued. (although you're always better off if you conserve your energy for healing purposes). I mean if you have chronic fatigue syndrome symptoms. Exercise intolerance, orthostatic intolerance, consistent shortness of breath, postexertional malaise.
Posts: 713 | From Los Angeles | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
mati
LymeNet Contributor
Member # 15233

Icon 1 posted      Profile for mati     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi!

Long time no posting. I am the one who went to see DrW but ran into trouble with accomodation and had to leave after only 2 treatments as the situation I was in was stressing me too much.

Well one year later and I have not had any other treatments. In fact I moved to Germany and coping with that has taken all of my energy.

I think I am a lot worse now as the pain and weakness in my right wrist has spread to the right, and my adrenal glands are further shot.

My wrist problem has made me look for help again - I lost all motivation to get well after the episode in Pforzheim. I was just going to wait to die. But now I am robbed of the only usable hand I have.

The thing that is concerning me about going on hydrocortisone is that I have heard that it is contra-indicated in Lymes. Is this so?

Mati

Posts: 148 | From europe | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
n.northernlights
LymeNet Contributor
Member # 17934

Icon 1 posted      Profile for n.northernlights     Send New Private Message       Edit/Delete Post   Reply With Quote 
dear Mati, I have been on thyroid forums for years, and if you have addison, or weak adrenals, you really need supplementation.
That is something totally different from the typical high-dose steroid treatments used to knock down symptoms of rheumatism or life-threatening allergies or whatever.

Physiological supplementation or replacement with hydrocortisone does no harm. The typical dose is from 15-45 mg hydrocortisone.

I had some symptoms of low cortisol, ans used a little bit of supplementation, but the need disappeared after I went gluten-free, and started LDN. I sometimes use a tad of hydrocortisone cream on the arm or the like when I need some supllementation (usually only after getting glutened)

There are even books about physiological supplementation with hydrocortisone, like Safe Uses of Cortisone (available from the publisher). Good arenal function (or the right dose of supplementation) is neccessary for the immune system to work.

Are you gluten-free yet?
If you want to try, you can get over-the counter hydrocortisone cream. You can do the math of how much there is in 1 gr of cream from the description on the tube. It has to be taken every four hours so you have to work out the amount for the day.

By the way, Dr. Woitzel was looking for you all over the place back then. Maybe you should just contact him.

Posts: 366 | From Europe | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
mati
LymeNet Contributor
Member # 15233

Icon 1 posted      Profile for mati     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi

I had already told Dr W about the problems I was having and that the person who had brought me down to see him had gone back to where he came from to fix his van so I was left alone and too sick to shop and stuck in a hotel so I could not cook. I e-mailed Dr W to tell him what had happened and that I was having to leave. If he had checked his e-mail he would have known.

I will send off the test for adrenals that I sent for from a uk lab. I came to Germany due to my extreme muliple chemical sensitivity as they accept it as a condition. In the UK they do not and having no family to advocate I was concerned about this - ie being foprced to have emergency treatment. Now I have to leave Germany as the insurance law changed and I cannot get health insurance.

I have been GF before going to see the doc. Since then lost all motivation to do anything. I would like to try the creme but probably will not get it in Germany otc. I will see if I can order it online from the uk. Thanks for that advice.

Posts: 148 | From europe | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
mati
LymeNet Contributor
Member # 15233

Icon 1 posted      Profile for mati     Send New Private Message       Edit/Delete Post   Reply With Quote 
repeated post removed
Posts: 148 | From europe | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512

Icon 1 posted      Profile for Truthfinder     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi, mati - I'm glad you `checked in'. I've wondered what happened to you! You had an awful ordeal and I was in hopes that you could get Bionic treatment at some later time...... Very sorry you are still doing poorly.

Unexpected, thanks much for the clarification. I'm sorry your improvements were not more permanent and that you have such severe issues.

I get the impression that you blame every practitioner or treatment that didn't get you well. I think you've used the term `ripped off' in other posts.

I hope at some point you'll understand that this isn't a fair assessment. (I'm sure your bank account thinks so, though.) But in the Lyme game, if something doesn't work, it's often because it hasn't addressed one or more serious underlying problems that are specific to YOUR personal case of Lyme & Co. That's not necessarily anybody's fault.

I think Joey has hit it on the mark. It's about `pathogenicity' of any organism as it applies to each individual person, not simply its presence in the person's system.

`pathogenic' definition: capable of causing disease

`non-pathogenic': incapable of causing disease

Biophotons and homeopathics are very similar in nature, which is probably why they can work well together - a synergistic effect. I'm not sure how photons work but homeopathics work on the PERSON, thus altering errors in the milieu (body terrain) that allowed the microbes to thrive as `pathogenic' organisms in the first place.

And as Joey explained so well, work on correcting those errors in the system will basically `pull the rug out' from under microorganisms that have the potential to become `pathogenic'.

Well, I'll quit here.......

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

Posts: 2966 | From Colorado | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

Icon 1 posted      Profile for lymewreck36     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Mati:

I have not conversed with you before, but I have to say that one can never give up, especially after one bad experience.

I have been misdiagnosed....accused of making up symptoms, discounted, given pills that damage me, neglected, told my problems are becuase of my weight (Had a torn miniscus disk and the doctor would not even examine me. He ASSUMED my weight gave me sore knees), told to bring my husband to m y appointments from now on.....

The list goes on and on...

But only I can decide if I quit or not. No one else. That is in my control.

Think about it.

Mary

Posts: 1034 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
n.northernlights
LymeNet Contributor
Member # 17934

Icon 1 posted      Profile for n.northernlights     Send New Private Message       Edit/Delete Post   Reply With Quote 
mati, yes, I remenber you mentioning your allergies and extreme sensitivities. I understand (or try to) that circumstances were and are difficult.

There is some info on weak adrenals on some thyroid forums and websites, I think on the stop the thyroid madness website too. They also know about tests and that they only show up positive when you are almost dead....you might be lucky and the test is positive. That might entitle you to treatment in the UK (maybe-maybe not). The forums should know more. I thought hydrocortisone cream was otc most places. I had only one test showing low cortisol. The best test is the saliva test as it tests for free cortisol.

And, maybe trying the AI drops first will help with your allergies and extreme sensitivities. There is an AI thread here. Just thinking. And when you are back in the UK you can order naltrexone for LDN online if you want to. Helps with lots of things and immune system and even depressions if you have any.

nora

Posts: 366 | From Europe | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
bamboo forest
Member
Member # 21066

Icon 1 posted      Profile for bamboo forest     Send New Private Message       Edit/Delete Post   Reply With Quote 
Mati there is some healthcare person treating patients with the Bionic 880 in the UK. I don't know where but someone here I am sure well if you would ever like to try the treatment again.
Posts: 42 | From the woods | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
mati
LymeNet Contributor
Member # 15233

Icon 1 posted      Profile for mati     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tracy

'I get the impression that you blame every practitioner or treatment that didn't get you well. I think you've used the term `ripped off' in other posts.'

Well thanks for that vote of confidence. It just so happens that the private practitioners I saw, left me with the impression that they were mostly interested in getting my money than actually taking time to try to understand my health problems. I guess I was just unlucky as I am sure that here are many good guys out there. No I do not expect anyone to be able to work a miracle, but I did expect a doctor to know what he was dealing with, in his own speciality or to tell me it was beyond his skills if he did not understand the relationship betwen different illnesses. My last consultation was even worse than I imagined, when I hear that there should have been preparitory work done first and the money I spent wasted regardless of the outcome that did ensure. Heaven forbid that one should be critical of doctors it seems. If they make a mistake or cause their patients extra stress, I would expect a good guy to make ammends to them, especially with the fees they claim. But it seems that the patient is always wrong and the gods untouchable. It makes me wonder when the outcome from seeing a medic depends on how much absolute faith we put in them. I would rather keep my money than pay for the placeabo effect.

Mary thanks, I have been sick for along time - most of my life (Lyme for 10 years undiagnosed)being hypothyroid from childhood. I have worked for many years to improve my health and have been on every conceivable diet and taken barrel loads of supplements. I don't actually know if it is possible to do much I am so damaged but I am going to try to treat my thyroid and adrenals now. I already had them tested over a year ago and they were right down.

Thanks nora and bf but |I am no longer in the UK, I am in Germany and having to move probably to Greece in the coming year. I can have more 800 treatment in Berlin, but after reading that some get worse I am not sure whether to do it. If others have gotten worse then it is pretty risky for me due to the number of health problems I have.

But thank so much you guys for replying and making me feel less isolated.

Posts: 148 | From europe | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512

Icon 1 posted      Profile for Truthfinder     Send New Private Message       Edit/Delete Post   Reply With Quote 
Uh, very sorry, Mati. I was addressing UnexpectedIlls, not you. I think all of us have had our run-ins with practitioners like you described, though - no question. I didn't mean to imply that it rarely happens.

But I've also seen a number of practitioners of all kinds who just couldn't get the kind of results with me that they hoped or expected. Some helped a little, and some helped for awhile, and I was able to stay working a lot longer than if I hadn't had some of these people helping me.

I guess I hate to see anyone feel cheated at every turn. This is a difficult disease; if it were easily treated, we wouldn't be on this forum.

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

Posts: 2966 | From Colorado | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
mati
LymeNet Contributor
Member # 15233

Icon 1 posted      Profile for mati     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh so sorry Tracy
Posts: 148 | From europe | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512

Icon 1 posted      Profile for Truthfinder     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hey, no problem, Mati. It helped to understand some of your history.

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

Posts: 2966 | From Colorado | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395

Icon 1 posted      Profile for lymewreck36     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wanted to add just a little to the discussion of the state of medical care in the U.S. versus in Europe.

I haven't lived here that long, but I have learned a few things.

I went to this lyme clinic is Germany,...many llmds from the States have come over to this clinic to train and learn....the clinic is in Ausberg (sp?) Germany.

I learned these things while I was there.

They cannot prescribe IM shots because there were problems with people giving themselves their own shots, so that is not allowed any more.

They cannot put an I.V. line in me. There is no such thing as an I.V. company coming to your house once a week while you do your own push therapy in between.

You have to go to a doctor's office for the infusion, daily......

You cannot buy artemisinin in Switzerland because it is banned as a dangerous substance that hurt people.

10 aschidolpholus pills from the apothecary will cost you $18.00.

If you are taking 3 antibiotics for lyme and one or two antimalarials, doctors will freak out in your face. They think anyone taking that much medication is sure to die from the drugs.

Being able to buy herbs in the U.S. is a luxury. I am aware that that is being threatened now by the FDA. Don't know if we'll be able to stop that threat, but it would be a shame to loose that luxury.

Positive of living in Europe:
Doctors don't just give you a 10 minute time slot. You are a person, not a slot, and you have their attention until you are done.

You sit across from the doctor at his desk, and discuss your history, blood work, whatever, until you cover what you want to.

O.K. There are other differences, but I just wanted to say that medicine in the U.S., like medicine in other places, has its bonuses.

When my husband and I left the German lyme clinic and got in the car, I had to wonder why patients are not allowed to give themselves I.M. shots. Just don't get that.

Mary

Posts: 1034 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
n.northernlights
LymeNet Contributor
Member # 17934

Icon 1 posted      Profile for n.northernlights     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know about the I.M.shots deep into the muscles in the buttock, the ones with B-12 and the long needles, nurses have to do that because of danger to the sciatic nerve if done at the wrong place. The srtange thing is that one only needs I.M. b-12 in case of pernicious anemia with nerve involvement so it works a bit faster. i learnt on forums that people might as well give themselves b-12 shots subcutaneously, they say it is done that way in the U.S. Yes, I.M is done by nurses and patients can do s.c.
Last I heard you can buy one kind of b-12 otc in the pharmacy.
Here in Scandinavia you can get various imported or european probiotics in health food shops. Some sell some brands below the counter.

But it is tightening up regarding doses of vitamins allowed etc. 10�g vitamin D (=400units) is the max amount allowed per tablet or serving and it is forbidden to suggest you take more than one. Vitamin bears were outlawed because they had 7,5�g D and it said to give the child one or two....

Posts: 366 | From Europe | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
lymeparfait
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Interesting abut the b-12?
IP: Logged | Report this post to a Moderator
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512

Icon 1 posted      Profile for Truthfinder     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow, supplements and vitamins are really restricted - and expensive - in parts of Europe.....

Does anyone have an update or more information as to what happened with Dr. K. and the FDA? (Please feel free to send a PM if you don't feel the info should be public.)

Here's a quote on this thread from back in April:

quote:
Dr K.... of Seattle was recently visited by the FDA/drug company enforcers. They object to his selling a device that he imports from Europe. It apparently uses light and frequencies. The feds want his list of customers and want him to buy back all the units and ship them back to Europe. He says that he is meeting with them tomorrow.

Thursday, April 16, 2009



--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

Posts: 2966 | From Colorado | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
n.northernlights
LymeNet Contributor
Member # 17934

Icon 1 posted      Profile for n.northernlights     Send New Private Message       Edit/Delete Post   Reply With Quote 
up
Posts: 366 | From Europe | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
linky123
Frequent Contributor (1K+ posts)
Member # 19974

Icon 1 posted      Profile for linky123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Our family, myself, my husband, and our two teenagers are going to Germany in two months.

Can anyone give advice as to what we need to do beforehand regarding detox, cleanses etc.?

I have already done a parasite cleanse and plan to do a liver cleanse soon. Will this help the tx to be more effective?

What about heavy metal detox? We just received test results today and we are all high for lead and my son for nickel also.

Would zeolite, or detoxamin be advisable for the next couple of months to try to clear some of the metals before tx?

None of us have amalgam (SP) fillings, but my husband and I have a few root canals. Why is that a problem in the tx, and is it imperative to have them removed?

Lots of questions, I know, but we would like to be ready and have the best chance of success possible.

Thanks.

Linky

Posts: 2607 | From Hooterville | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
GiGi
Frequent Contributor (5K+ posts)
Member # 259

Icon 1 posted      Profile for GiGi         Edit/Delete Post   Reply With Quote 
Truthfinder, this is a private matter and does not belong in a public forum. Hope you understand.
Posts: 9834 | From Washington State | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512

Icon 1 posted      Profile for Truthfinder     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sounds like you are doing some pretty smart things, Linky. I hope someone with experience can answer your questions.

Gigi - then I would really appreciate a PM from someone.

I'm sure Dr. K. doesn't want any negative publicity about his practice or the devices themselves; however, information about what happened to him is important to any other practitioner who may be thinking of `importing devices'. I know one practitioner who is interested, and several people on this board know others who are paying attention.

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

Posts: 2966 | From Colorado | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Linky, I really don't know the answers to your questions, sorry. Maybe it would be a good idea to have a holistic dentist check out your root canals to see if they're a problem, some can still be infected.

Don't know if you need to chelate prior to going or not. I used Detoxamin for lead and it worked well. I took it for six months with ALA and NAC, along with zeolite for mop-up.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
GraceT
LymeNet Contributor
Member # 16558

Icon 1 posted      Profile for GraceT     Send New Private Message       Edit/Delete Post   Reply With Quote 
My Borrelia is GONE! Confirmed by two doctors test methods.

The HHV class of virals seem to have dissapated.

I can funtion again, my energy is nearly all back, I'm seeing a few muscles return, brain fog finally lifted - I can think clearly again.

My head still buzzes / ears both ring... music and sounds are still a problem as are emf/emr's.

Currently, I am working on Mycoplasma. This has been stubborn and rough.

Still dealing with Candida = two years now. I take probiotics 2X/dy + eat plain goat yogurt.

I use the Bionic + nosodes for both.

Is there something I am missing?

Thank You Kindly, Grace
.
.

Next I plan to tackle Chlamydia, TB and Nanobacterium. What were my ancesters doing?

Posts: 212 | From Arizona | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197

Icon 1 posted      Profile for lymie_in_md     Send New Private Message       Edit/Delete Post   Reply With Quote 
Great news Grace!!! I suspect adding a lot of fermented foods which are also probiotic would help. I found triphala is just a good herbal to have around. If you can take the powder directly in the mouth it can help control oral bacteria. Its bitter and a good number of folks have to take pills. Just get some and do some energetic testing to determine times and dosages.

Something I've found which I think is extremely helpful is an exercise created by Donna Eden. It takes no more then 5 minutes a day. It can help normalize the immune response. It is great for lymies that have gotten rid of most of the pathogens but for some reason the immune system is still far too ramped up. In other words, it wants to continue fight even though there is nothing to fight.

This might be great for you Six as well. It might help to get you off the thyroid meds. I don't take thyroid meds anymore, and haven't for some time, they never tested well (and it was never the problem for me).

To find the video, go to youtube and search for "donna eden five minute". I'm sure you'll find it with that search.

--------------------
Bob

Posts: 2150 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
n.northernlights
LymeNet Contributor
Member # 17934

Icon 1 posted      Profile for n.northernlights     Send New Private Message       Edit/Delete Post   Reply With Quote 
Up

By the way, Borreliose Centum Blankenburg, an affiliate of Borreliose Centrum Augsburg, has just oppened in Germany. http://www.b-c-bl.de/

They list biophoton treatment too. Augsburg has done trials for some time and they obviously found it useful.

Posts: 366 | From Europe | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
lightparfait
Frequent Contributor (1K+ posts)
Member # 22022

Icon 1 posted      Profile for lightparfait     Send New Private Message       Edit/Delete Post   Reply With Quote 
So happy for you Grace!!!

LP

Posts: 1009 | From NJ | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147

Icon 1 posted      Profile for ukcarry     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bob, I've just watched Donna Eden demonstrate the exercises and I'm going to do them! I started just now.

Have you noticed any specific improvements?

One thing I like is how undemanding physically the routine is, as a lot of 'exercise' types are impossible for me.

Thanks for the tip,


Carry

Posts: 1647 | From UK | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the suggestion Bob. I started training last week to become a Pilates instructor, so I'm maxed out with working out! Pilates (including reformer work) is great for aligning the body so that the energy flows properly. It's all about improving the structure and strengthening the muscle from deep within. I wish I had discovered it earlier in my treatment, but am happy that I am well enough to handle the 10 hours per week I'm doing for the next four months for training!!

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147

Icon 1 posted      Profile for ukcarry     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm so glad you are enjoying Pilates, Sixgoofy, as I found it v. good when I was well enough to do it: I have a beginners' cd, with a 'noddy' version of each exercise alongside the main one for people who are ill or want to go more slowly.

It is a goal of mine to be able to start it again, but in the meantime, I am determined to do some stretches each day, even if they only last a minute or so.

Pilates is fantastic for the posture, which gets so bad with Lyme in my experience and, in toning the core muscles, it helps you to move better and more freely.

Good luck with it, Sixg!


Carry

Posts: 1647 | From UK | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hope you can get back to it, soon, Carry! You might try a reformer class. You can do it to your ability and much of the work is very gentle and done lying down.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Steph & Ayden Pup
Member
Member # 30966

Icon 1 posted      Profile for Steph & Ayden Pup     Send New Private Message       Edit/Delete Post   Reply With Quote 
I only discovered the invention of such a photon machine today! Imagine my delight to find such an extensive discussion about it [Smile] I'm in Seattle and, pending the reports from those going to Germany, would be interested in sharing a machine purchase with others in the area. VERY exciting and I'm already a HUGE fan of Prof.Dr. Popp.

Does anyone have experience using "the zapper" (frequencies?

Posts: 28 | From Seattle, WA | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Brussels
Frequent Contributor (5K+ posts)
Member # 13480

Icon 1 posted      Profile for Brussels     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just bumping this thread for the ones trying the Bionic or PE1.
Posts: 6200 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
linky123
Frequent Contributor (1K+ posts)
Member # 19974

Icon 1 posted      Profile for linky123     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thought I would bump this up for those who are interested.

--------------------
'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28

Posts: 2607 | From Hooterville | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
  This topic comprises 26 pages: 1  2  3  ...  23  24  25  26   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.