Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
soccermama...
Both volume/flow (measured in Liters Per Minute) and purity (percentage of 02 in the air that is flowing) are important. In particular, when using a concentrator with a chamber, there is a relationship between the two that must be in balance.
Too low of flow (LPM) setting = not enough air Too high of flow (LPM) setting causes machine to work harder against backpressure of chamber = lower oxygen purity
The PSI (Pounds Per Square Inch) that the concentrator is equipped with determines how capable it is of working against the backpressure of the chamber, and maintaining both LPM and purity.
Monti had a concentrator that wasn't flowing properly, and it also didn't have a built in monitor alarm to warn him if the oxygen purity dropped below 80%.
Even if he made expensive repairs, his point was that it still wouldn't perform as well in terms of LPM, and without a monitor/alarm, there was no way to know if there were issues with the purity.
So...it wasn't so much a problem with receiving 7LPM vs. 8LPM per se...it was the overall functioning of the machine that was of concern.
Posts: 2075 | From Earth | Registered: Jul 2013
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Soccermama... I replaced my used OG-15 with a new Airsep New Life Intensity which gives me greater LPM, O2 purity, and that built in alarm for O2 purity. I would not have replaced my OG-15 but it clearly began to have issues.
Posts: 120 | From Maine | Registered: May 2015
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posted
When I purchased my used Respiro it did not come with a plug for the hole where the oxygen hose feeds through. Anyone know if Oxyhealth might sell that part? My husband has rigged something up but I'd like to dive with supp oxygen one day and without the next. It's sort of a hassle to change out, I'm thinking a plug might be easier.
Otherwise, Dive 117, 60 minutes, just pressure. Feeling good. Have made many subtle but significant improvements that feel real. New moons are usually my Achilles heel, this one has been a piece of cake!
Posts: 42 | From beautiful Texas Hill Country | Registered: Jun 2015
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posted
Thank you, Phoiph. I suspected I overwhelmed you . All is good here, plugging along.
Posts: 42 | From beautiful Texas Hill Country | Registered: Jun 2015
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posted
Is anyone doing bee venom therapy? Dare I even consider doing mHBOT (pressure only, no supplemental oxygen) and BVT? I'm asking before I even start to research BVT, I'd only be able to do it two weeks out of a month (if I did it).
Btw, I started diving in Dec. The last two weeks I've enjoyed better quality of life than I have in years. I did have a lousy day but my lousy day wasn't as lousy as many of my previous days that I considered good days. I'm very inspired and optimistic. The mHBOT hasn't fixed what I wanted it to fix the most which is my mobility. But it's obviously busy working on some other things that I wasn't aware of.
One concern is my last blood work showed some high inflammatory markers and a high liver enzyme. These numbers shocked me. Absolutely no history of problem in these areas?
Posts: 42 | From beautiful Texas Hill Country | Registered: Jun 2015
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posted
Just completed dive 70 last week. Overall am excited about my progress, although the first three months have been up and down. I have had two extended herx periods where I've had a lot of fatigue and sore/stiff spine, and then later chest pain, but overall have had much less brain fog and better energy. Went to my doctor today about the chest pain and she thought it was likely a herx so I'm excited to get back in the chamber after a week long break; it's funny how you start to crave being in there everyday and hate to miss.
Posts: 64 | From Washington | Registered: Aug 2015
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posted
O2 finger measurement proves efficacy for me. I have had bronchitis up until a week ago and during that time my O2 measurements were sometimes as low as 91-92, finally had to have an inhaler for a couple days. After I got over it or pretty much so, readings have been 95-96 with anything over 95 normal. So I took the fingertip measurement in the chamber tonight. Sure enough it jumped to 98-99 with most of the time at 99. I have not had these high of reading outside the chamber. To me, this verifies the increased blood saturation with MBOT.
Posts: 100 | From Kalamamazoo,Michigan | Registered: Feb 2015
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
toyswalk...
That is amazing progress in 4 months!
I would say "hold the BVT" for now...you're making good progress now with mHBOT...why not see where that takes you without taking the chance of doing something that could interfere?
Posts: 2075 | From Earth | Registered: Jul 2013
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posted
Phoiph, I hear you. I was hoping maybe with experience would give it a bad review so it would be easier to get the idea out of my mind. Things are good. A person at a lyme luncheon the other day is doing BVT, three months and she is walking, of course hearing that caught my ear.
But, yes, my progress is good. I went from being pretty much home bound to getting out 6 of the last 8 days. Four of those days I went completely on my own, today I drove into town (I don't remember the last time I ventured that far on my own). I even got a compliment from a complete stranger on my healthy, glowing skin (thank you HBOT, I've NEVER gotten a compliment on my SKIN!)
Posts: 42 | From beautiful Texas Hill Country | Registered: Jun 2015
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posted
When my wife did deep dives and their was any question of congestion they had her take a Claritan in advance.
In addition some people have had some success with Ear Planes the silicone inserts they sell at must drugstores for air travel. Pholph would know more though.
Posts: 100 | From Kalamamazoo,Michigan | Registered: Feb 2015
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Hi everyone...
Not sure how many of you follow Lymeboy's "Pericardial Effusion" thread, but we're trying to gather support there for him in his effort to obtain mHBOT treatment:
Many of you are on Facebook (I am not), and other social media sites...so if everyone could please spread his twitter page, it would be greatly appreciated.
This is one of the latest updates from his thread:
"...Thanks to everyone's generosity, he has finally received his chamber, and we are going to get things set up and started via phone in the next few days.
As I have mentioned, his concern now is that although he has enough raised funds to cover 3 months, there is still the major issue of ongoing financial support that will be necessary to provide uninterrupted treatment after the 3 month budget runs out. This needs to be planned for now...
I am not allowed to provide a direct link to a "GoFundMe" account here on LymeNet, as that is considered "solicitation".
Instead, I will share with you John's twitter page, on which you can find related information and links:
I am hoping that if this method of acquiring funding for mHBOT works for him, it may also work for others who can't afford their treatment...
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I guess one does not dive during a thunderstorm with risk of losing power.
That would cause rapid depressurizing, right? Not good?
Bad storms here this evening. Pooh.
I won't even think about losing power w/o a storm. (where do I come up with these lulu questions?)
IF that should happen - loss of power - what would one do?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
This has happened to me several times. Mostly, it is not good for the concentrator.
The concentrator will likely sound an alarm (as it does when it loses power or the 02 purity drops).
The chamber will start to deflate, since the compressor is no longer pumping air in, but it will not be immediate deflation.
You will then just deflate as usual (although it will happen more quickly) and end your dive.
Be sure to turn the compressor and concentrator switches off after you get out of the chamber.
Posts: 2075 | From Earth | Registered: Jul 2013
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posted
susank, my husband was in the chamber when the power went out and the chamber still took about 4-5 minutes to depressurize; although scary, his ears were ok.
Posts: 64 | From Washington | Registered: Aug 2015
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
quote:Originally posted by Phoiph: Hi everyone...
Not sure how many of you follow Lymeboy's "Pericardial Effusion" thread, but we're trying to gather support there for him in his effort to obtain mHBOT treatment:
Many of you are on Facebook (I am not), and other social media sites...so if everyone could please spread his twitter page, it would be greatly appreciated.
This is one of the latest updates from his thread:
"...Thanks to everyone's generosity, he has finally received his chamber, and we are going to get things set up and started via phone in the next few days.
As I have mentioned, his concern now is that although he has enough raised funds to cover 3 months, there is still the major issue of ongoing financial support that will be necessary to provide uninterrupted treatment after the 3 month budget runs out. This needs to be planned for now...
I am not allowed to provide a direct link to a "GoFundMe" account here on LymeNet, as that is considered "solicitation".
Instead, I will share with you John's twitter page, on which you can find related information and links:
posted
Hi Everyone! I am new to this group and wanted to introduce myself. I live in Arizona and my son who is 21, has been sick for 8 years. We only received a diagnosis of lyme in August. Lots of history, too much to post, but he just began diving two weeks ago and I believe is herxing already. He says his body hurts all over, nerve endings feel sore. Had some chest pressure too and mild coughing. Have any of you experienced these symptoms as well?
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
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posted
I am on Facebook a lot and started a Healing Lyme with mHBOT group. I am looking for stories of healing lyme through the use of this therapy, so if anyone has a story to share, please join the group and share your healing journey. Thank you! https://www.facebook.com/groups/LymeHealingWithHBOT/?ref=bookmarks
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Have done four dives in my chamber. 1st max 1 PSI 2nd max .8 3rd max 1 4th max 1.5
Before dives 3 and 4 I breathed in a steamed mix of essential oils. (Peppermint and Eucalyptus).
I had read to also "steam" one's ears - so I did that, too. I held my uncooperative right ear over a mug of steamy essential oils. I think it helped. Don't understand how it could, tho.
I also chewed gum furiously during dives 3 and 4 - as well pulled on my earlobes - anything I could think of.
I was so happy to get to 1.5 PSI - which I know is not much - but I consider it a milestone for me. Strange, tho, how I felt a bit more panicky ear-wise at around 1 PSI - moreso than 1.5 PSI.
1.5 seemed less bothersome????
Also - I inhaled a bit of the O2 directly from the tubing. Still not using a mask.
Dive 3 was 30 minutes and 4 was 45.
Hoping to gradually increase the PSI and time spent under pressure.
Baby steps........
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Good job, SusanK! I find for my ears that after about 2 the pressure feels less intense. I plug my nose and blow one more time, but sometimes I don't have to. So it doesn't surprise me that 1.5 felt less bothersome.
Posts: 1851 | From Maine | Registered: Jun 2004
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me
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Member # 45475
posted
yay, SusanK! Happy for ya!!!
Posts: 1431 | From USA | Registered: Mar 2015
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susank
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Member # 22150
posted
I feel pretty dreadful today.
Not sure if from dive #4. (a bit higher PSI and longer time in the chamber).
I never know what causes my truly awful days.
Next dive will aim for 1.5 PSI again and stay there only ten minutes. No O2 tube at my nose. (maybe no essential oils either).
Did I read somewhere about hydration/dehydration in regards to mHBOT?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Welcome, Karen! Keep us posted!
SusanK...yes...as kgg said, the most intense time to clear the ears is usually below 2.0 PSI. It gets easier for most people from 2.0 to 4.2 PSI.
Good idea to go more slowly while you're working up to the full protocol. Also, for now, I would just let the 02 flow in (not breath it directly).
And yes...stay hydrated. O2 can be drying, and the water helps to flush toxins from your system.
Posts: 2075 | From Earth | Registered: Jul 2013
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posted
I'd like to ask if members could share their herxing symptoms. My son has been diving now for 3 weeks. He says he feels drained and depleted of energy. He also complains that his whole body aches, as if the nerve endings are bruised. Often times, he experiences a dull pain in his intestines. And, during the first two weeks, after his dives he would tell me he felt a pressure or heaviness in his chest which was accompanied by coughing. Have any of you experienced similar symptoms?
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
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posted
I'd like to ask if members could share their herxing symptoms. My son has been diving now for 3 weeks. He says he feels drained and depleted of energy. He also complains that his whole body aches, as if the nerve endings are bruised. Often times, he experiences a dull pain in his intestines. And, during the first two weeks, after his dives he would tell me he felt a pressure or heaviness in his chest which was accompanied by coughing. Have any of you experienced similar symptoms?
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
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posted
Hi Karenthebeetlady, sorry your son is herxing.
I recently had a lot of chest pain which would be sharp at times and achy at other times-right side near sternum. It left after 4 weeks and I still don't know if it was a herx or GERD (since I'm now on supplements for that.) I didn't have coughing, only pain.
I'm 80 dives in so relatively new, but have periods of more intense herxing, followed by periods where I just feel a little fatigued and foggy. I had been out of my chamber for a week, to see if that would help with the chest pain, so think the increased herxing is from that, and now have a lot of joint/bone pain, stiffness, breathlessness, fatigue, and anxiety/mood shifts. Lots of water and activated charcoal helps; hoping it's only a rough week or two and not another month of hard herxing.
Posts: 64 | From Washington | Registered: Aug 2015
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I had to send my chamber in for repairs and was without it for 2.5 weeks. I'm now on day 5 of 1 hour dives with 02 and I'm experiencing significant fatigue. It's not my typical Lyme fatigue but more of a sleepy fatigue. I'm 99% certain it is from diving again and thus is a type of herx.
Also I do deal with dull to moderate stomach pain off and on.
If these are new symptoms since he has starting diving I would take that as a good sign . Might not be what a young fella wants to hear though.
Posts: 120 | From Maine | Registered: May 2015
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posted
I have a couple of questions also. I started full hour dives with supplemental oxygen on 3/14. Did 13 dives and experienced a few problems with chamber that we fixed. Restarted on 4/4 and did 11 dives when I got sick with a bronchial infection.
Finally, restarted today. The question I have is do you lose progress if you have to miss a period of time from diving? My next question is I feel some symptoms coming back that had "resolved" like stomach pain, nausea, and anxiety. Plus an increase in restorative sleep. Could I be herxing already? I've only completed 25 dives.
Posts: 538 | From kentucky | Registered: Nov 2011
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I think the general belief is when you first get going (the first 6 to 12 months) it's important to be a consistent as you can. Missing days can take away some of the progress. At times it can't be helped but personally I NEVER miss a dive unless I have no other choice.
Posts: 120 | From Maine | Registered: May 2015
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Karenthebeetlady, is it possible to back off on the length of time that he is diving? Is he using O2? When I originally used my chamber, I felt awful. It was long ago enough that I can't tell you specifics. This time I started low and have been going slow. Starting with 15-30 minutes and no O2. It has been much more successful this time around. Less intense negative symptoms.
I am concerned about the chest pressure with coughing symptom. Does he have asthma? Hopefully, Phoiph will come along and address that issue.
I have had the dull pressure in the intestines feeling. It does not last long. Might be pressure from gas/flatus?
If I start feeling too awful from herxing, I take a day off. It gives my body a break.
Posts: 1851 | From Maine | Registered: Jun 2004
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posted
Susank, It is not clear from your post whether your dry eyes and dry mouth are specifically related to diving. If they are symtpoms you had prior to the dives, this is rooted in iodine deficiency. Supplemental iodine will correct this for you.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
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posted
Jolley, Monti and kgg, Thank you all for weighing in on my question. We did take two days off and started back up with the dives. He is in for one hour and up to 3.0psi. The heavy, pressure like feeling in his chest is now minimal, as is the coughing. Fatigue and the feeling of being drained of energy is still present. Interesting someone mentioned mood swings, I am definitely seeing that, as it's often directed at me...lol. I have been reading some of the pages in this very long thread and see that flu-like symptoms are herxing and I would say that's pretty close to what he is experiencing, so I think this is a normal reaction.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
quote:Originally posted by susank: How can the O2 be dehydrating? Not from the pressure, right - but the O2 from the concentrator?
(FWIW I have dry eyes/mouth so know about low humidity, wind, not putting my face to a fan, etc.)
Why do some folks have trouble with the O2 from the concentrator - and do better with pressure only? (separate question from dehydration).
Also.......could someone explain why getting to 2 PSI is more difficult (for some) than getting from 2 to 4.2?
Thanks.
Susank...
--Higher oxygen = lower humidity (this is from the concentrator, not due to the pressure). Once you start using the mask, you can use goggles (optional) to avoid the 02 that leaks from the mask from blowing into your eyes. I use inexpensive safety goggles from Home Depot that have a strap, and no vents in the sides. These also fit over reading glasses.
--Some people are very sensitive and take longer to adjust to the 02, but find they improve with just pressure, as it raises the 02 to a lesser degree. It is not known if they will do even better with 02 added, given the time to adjust.
--The pressure change per foot is the greatest at shallow depths...so as you "dive deeper", theoretically it will become slightly easier on your ears.
I just read about this product, "Clear Ease" recommended by a scuba diving instructor which uses "natural enzymes" to help the ears to clear. I don't know anyone that has used it, so can't speak for it:
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
quote:Originally posted by soccermama: I have a couple of questions also. I started full hour dives with supplemental oxygen on 3/14. Did 13 dives and experienced a few problems with chamber that we fixed. Restarted on 4/4 and did 11 dives when I got sick with a bronchial infection.
Finally, restarted today. The question I have is do you lose progress if you have to miss a period of time from diving? My next question is I feel some symptoms coming back that had "resolved" like stomach pain, nausea, and anxiety. Plus an increase in restorative sleep. Could I be herxing already? I've only completed 25 dives.
Soccermama...
I agree with Monti...consistency is key, especially early in treatment.
mHBOT is cumulative, and it takes a number of consistent treatments for the effects to begin to "stick". It is like exercise in that way...it takes awhile to become conditioned.
I didn't take any days off for the first year, and when finally did, it was only a 5 day vacation, then right back to diving. I dove daily for 2-1/2 years (with a few short vacations), at which time my body told me that I could reduce the frequency, and still hold my gains. This has turned out to be true (in fact, I was without my chamber for over 6 weeks straight recently due to travel for family issues). Had I been inconsistent in the first year, I don't believe I would have become completely well.
And yes, you could definitely be "reacting" at 25 dives. (I don't use the word "herxing" much, since I feel this reaction can better be thought of as your "immune system coming online" and starting to do its job...:)
Posts: 2075 | From Earth | Registered: Jul 2013
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posted
"And yes, you could definitely be "reacting" at 25 dives. (I don't use the word "herxing" much, since I feel this reaction can better be thought of as your "immune system coming online" and starting to do its job... "
That is a very neat statement because the fatigue I feel is just like when I am fighting a bad cold which is very different from typical lyme fatigue. It's more of a sleepy fatigue as if my body is saying "hey, we have some work to do. How about you rest for a bit and let us fix a few things" LOL
Posts: 120 | From Maine | Registered: May 2015
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posted
OK. That's what I thought. Both times I had to stop due to circumstances beyond my control. Once due to a chamber issue and the second time due to sinus congestion which made it impossible to clear my ears.
Your response answers my other question which is if you begin to feel "worse", you dive your way through, instead of taking a break.
Thanks for the help!
Posts: 538 | From kentucky | Registered: Nov 2011
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
soccermomma...
During the period when you're working up to full pressure/time (before you start diving consistently), it is OK to go more slowly or to skip a day if necessary if you're having a very intense reaction.
Once you are through this period and are up to full pressure/time, then it is crucial to be consistent. You will definitely still have a 2 step forward, 1 step back pattern, but your body will have had a chance to adjust to the treatment.
Posts: 2075 | From Earth | Registered: Jul 2013
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Exactly, Monti!
It's not always as much about mHBOT killing the bugs (which it can do), but more about our immune systems healing...
I have heard it said that no type of "anti-biotic" can work without a functional immune system helping out.
Also...it is not unusual to start experiencing colds, flus, etc., when the immune system function improves...
Posts: 2075 | From Earth | Registered: Jul 2013
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posted
My right forearm has felt like it had a sunburn a few times. It wasn't from mhbot directly but I am pretty sure it was Lyme related. I asked about it a while back on this forum and sure enough some people have experienced it.
Posts: 120 | From Maine | Registered: May 2015
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
At susan k....have you tried ozone ear sufflation or garlic drops For your ears ?
Karen ,yes i have been getting burning feeling in hands ..
does retracing through sx happen with mhbot too?...
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
bluelyme...
I experienced retracing of symptoms with mHBOT...in general, the latest symptoms resolved first, and the earliest symptoms last.
I also experienced this in the mental realm, going back to what I thought were resolved issues from years past...even childhood.
Fortunately, each phase of the physical and mental "trip down memory lane" was less intense and shorter lived than the first time around...
Posts: 2075 | From Earth | Registered: Jul 2013
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posted
Susan, try supplementing with coconut oil from trader joes, rub around eyes and take internally for the dryness. I have found this to be the best and it's a good price.
Posts: 532 | From Texas | Registered: Oct 2004
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posted
Susan K. Everyone with lyme will eventually develop hypothyroid. Dry eyes and dry mouth are specifically related to iodine deficiency. You can add more iodine rich foods to your diet, or supplement with Lugols; however, if you do use an iodine supplement, you'll also need the companion nutrients, magnesium, vitamin c and also selenium.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
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posted
Karen... I'm not really sure. The first time I experienced it I wasn't doing anything to cause a herx reaction. For me it just seemed like another obscure lyme symptom.
Posts: 120 | From Maine | Registered: May 2015
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-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Hi Susank...
Not sure if you saw my post earlier re your question about people diving w/out supplemental 02?
IMO, it is most important right now for you to focus on increasing your pressure as your ears will allow. Next would be to work on increasing time in the chamber, and finally adding mask time in increments. Your goal would be daily, 1 hour dives with full pressure and 02 w/mask.
I think it is best to let the 02 flow in while you're working up, but if you decide not to use your concentrator, remove the tubing and replace it with a brass screw. If your chamber didn't come with one, here's what you need from the hardware:
Reminder: Always have your concentrator ON whenever you have pressure in the chamber. One way to remember this is to have your concentrator ON whenever the zippers are closed. Turn it OFF only after the zippers are open.
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