posted
yay, my vendor is swapping concentrators!! Thankfully, the man I borrowed mine from had this vendor's number. Thanks for the direction Phoiph.
Goodbye, rattling concentrator. Hello, one that works. (hopefully)
Its funny. At this time I am usually in it. It feels so weird just to go to bed. It is like not brushing your teeth! (or eating pills):/
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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Phoiph
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Foxy loxy...
What kind of concentrator will you be getting in the swap?
If it is going to take a long time, you can always dive without your concentrator for the time being. The pressure is still beneficial, and the 02 content inside the chamber will still be slightly increased.
Posts: 2083 | From Earth | Registered: Jul 2013
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He said it would be the same one. He was willing to take it back because it is still under warranty. I was so glad. I only had to pay fifty bucks to ship it!
He said I should get it the end of this week, so only a few days without it. Good idea to keep diving Phoiph. I never thought of that! Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
Ok so I got my "new" concentrator. It rattles too!!!!! It isn't as loud as my old one, but I am assuming they all do a bit?
The air quantity seems the same as my old one, so now I feel kinda stupid. But it didn't USED to rattle...grrr
Does anyone else have a concentrator that rattles?
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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Phoiph
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No...I'm going to email you the contact information for a vendor who you can trust to ask about this...
Posts: 2083 | From Earth | Registered: Jul 2013
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susank
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Question about air quality in the room where my chamber is located. Probably it's not the best. The room has carpet - and the chamber, compressor and concentrator are on the floor.
I can't keep my house as clean as it should be. There is probably (lots of) dust and animal dander in the carpet. I do have a Hepa filter/tower running in the room.
I think the compressor and the concentrators both have filters? I have an awful feeling I am pumping allergens into the chamber.
I have not been diving with supplemental O2. I think I have noticed, though, that when I have - the air in the chamber seemed "cleaner". (Another good reason to be using the concentrator?).
Even though the air from the compressor and the concentrator come from the air in the room.
Thoughts/ideas? Thanks.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Phoiph
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Hi SusanK...
If you have a lot of dust and animals, you will need to clean the filters more frequently; probably weekly.
Is there a reason why you're not using the concentrator to just flow in the 02 (without wearing the mask at first)?
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susank
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Tks Pho. Is there a filter on the compressor? Maybe the thingie that one end of the tubing is connected to?
(I did not get any instruction manuals).
I thought that perhaps I was having a bit of trouble with the supplemental O2- so have tried diving w/o it. I guess time to hook it back up - and not use a mask.
Regarding the pressure issue I may be having; neighbor and I ran the chamber with and w/o the extender. The gauge still reading just a hair short of 4 PSI - not going past that.
I banged around the foot valves - that did not seem to help. FWIW we briefly covered the foot valves with our hands - and IIRC the gauge read above 4 PSI - which I guess would be expected. Wondering if that means anything?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Phoiph
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There are two round black spherical filters on the compressor. They have a little paper filter inside that catches dust and can be gently brushed off.
They are difficult to open and don't need to be cleaned very often, from what I've been told...but if you do have a lot of dust it might be a good idea to do this more often.
To remove, you would unscrew the spheres from the compressor, then twist the two halves apart.
About your gauge...it sounds to me like it is working, if it goes above 4PSI when tested...so you must still be losing a slight amount of air somewhere...and I suspect it is your zipper tab which can easily get bunched up and create a gap.
Next time you pressurize if from the outside, once it gets near 4.0, put the palm of your hand over the closed end of the zipper (at the large window end) and put some weight on it to seal it. See if it creeps up to 4.2...
If so, try to get those tabs flattened out when you zip up.
susank
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Thanks. Now I know where the filters are on the compressor. (Your third paragraph above - you meant compressor, right?). Are tools required?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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susank
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Pho - questions about diet. I have been trying to follow the GAPS diet as best I can. I note where you did that as well - and I eat much like your (famous) six foods. Except I could not do sardines. My sister cooks for me. Perhaps the last batch of broth was bad - anyway - something made me real sick - so I can't much think about broth for a while. But wanted to ask - did you have veggies in your broth. What veggies did you eat? I really don't want to eat. I try to eat salads/greens daily - but tonight just threw it all out. I'm trying to eat real/raw/fresh, etc. I know we need veggie/fruit fiber. Probably should not be eating fruit (sugars). Truly the only vegetable I can think about is an avocado - and IIRC they're not even vegetables. ?? I have had a rule for years - must eat one green veggie a day. What did you do for fiber if I might ask?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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susank
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Another question - re: cleaning inside of the chamber. A gal on a mHBOT FB page said some folks place a bowl of peroxide in the chamber and let it run. Don't know if that means wiping down the insides after or what. Or if the correct way to clean/sanitize is to use a solution and by hand wipe down the insides. Ugh - can't imagine doing that - but if I must.... So - what's the easiest/most effective way?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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quote:Originally posted by susank: Pho - questions about diet. I have been trying to follow the GAPS diet as best I can. I note where you did that as well - and I eat much like your (famous) six foods. Except I could not do sardines. My sister cooks for me. Perhaps the last batch of broth was bad - anyway - something made me real sick - so I can't much think about broth for a while. But wanted to ask - did you have veggies in your broth. What veggies did you eat? I really don't want to eat. I try to eat salads/greens daily - but tonight just threw it all out. I'm trying to eat real/raw/fresh, etc. I know we need veggie/fruit fiber. Probably should not be eating fruit (sugars). Truly the only vegetable I can think about is an avocado - and IIRC they're not even vegetables. ?? I have had a rule for years - must eat one green veggie a day. What did you do for fiber if I might ask?
I had trouble progressing through the GAPS introduction diet. Finding a source of fiber was very problematic for me. Adding veggies would make symptoms worse. But i discovered it was the fermentable veggies that mostly did it. FODMAPS. They feed intestinal flora (good and perhaps some bad types) and can trigger all kinds of different reactions. Good flora for example pushes the immune system and that can cause all kinds of problems when you still have a toxic body. Good flora can also kill off candida and that leads to toxin release in your body. Bad flora produces these toxins on their own. What exactly is going on will probably remain a mystery, but these reactions dont seem to happen with non-FODMAP veggies for me. The exception being kale and spinach, being so nutrient dense they can trigger some detox symptoms. They did for me initially. However these veggies are import ones to add to your diet eventually. And now after a couple of months i can handle them just fine.
So maybe try non FODMAP veggies first and only after that try to add medium FODMAP veggies like avocado.
Also you can use psyllium husk or pure cellulose powder as fiber supplements. They dont seem to feed the gut flora and will just pass through you, absorbing some of the toxins along the way.
Also for me being toxic with an overloaded liver, i found that eating all the fats from the GAPS intro diet would really stress out my liver even more. Lots of nausea. So try to keep your calories to a minimum to sustain your weight. Dont overeat.
Posts: 387 | From The Netherlands | Registered: Nov 2013
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Phoiph
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Susank...
As per the manufacturer, the best way to clean the chamber is with a 50/50 solution of over the counter 3% hydrogen peroxide and water.
If you are sharing the chamber it is important to do this more frequently than if you are just using it yourself.
When not in use, keep the zippers open so air can circulate inside. You can set a box of baking soda inside if you like.
I couldn't handle raw vegetables at all when I was ill and down to 5-6 foods, except for the fermented foods which were more tolerable for me.
I ate lots of avocados. I also ate soaked and oven dried raw nuts (walnuts, almonds, & pecans). Preparation here is everything; the soaking removes the tannins which are what irritates the gut. I also ate peeled green apples (later I could handle the peel). There is a lot of fiber there.
You can also use the soaked/baked nuts to make nut milks and nut butters (as I know you said you need to put on weight).
susank
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Re: 50/50 HP and water. What to do? Place a bowl inside and run the chamber and that's it?
Wipe down windows - but also the insides - by hand?
Ugh..my back - thinking about this. What do others do?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Phoiph
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SusanK...
A 50:50 solution of hydrogen peroxide and water mixed in a spray bottle. Just spray and wipe the inside occasionally.
You can put a bowl or open box of baking soda inside when not in use.
Posts: 2083 | From Earth | Registered: Jul 2013
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susank
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Thanks. I will be sharing the chamber with one other person. I guess there is the worry of germs breeding in the chamber with the heat and moisture/sweat. Parts of the chamber will be difficult to reach by hand. Ideas for a long-handled "something" to get to the (perceived) difficult to reach spots. Asking - because the Solace is small - and I hurt everywhere. Getting on hands and knees - contorting to clean the ends etc - need help. Sorry to be such a pain asking these questions..... Thanks in advance. (Can I run an essential oil diffuser in the room when the chamber is not in use? Peppermint - or something similar in regards to killing germs?).
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Phoiph
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SusanK...
Remember that the chamber is not a sterile environment, and you won't ever make it so.
Of course, you will both have your own masks, and your own clean sheet/pillow each time.
If the other person is stronger, have them wipe the chamber down before and after their use, and you won't need to do it.
I don't know about a diffuser...I personally wouldn't want any smells to permeate the chamber.
Posts: 2083 | From Earth | Registered: Jul 2013
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I’ve read this whole thread from the beginning and you are a wonderful bunch of people even though you struggle with your health. Kudos for being such a respectful, kind group of people.
I’ve been sick for many years. Got diagnosed with Lyme in 2005. Like many of you I’ve tried “everything” from Antibiotics to Nutriceuticals, from Rife to Ozone. So far nothing has helped as much as mild Hyperbaric Oxygen Therapy (mHBOT).
I read Phoiph’s story and reached out to her for assistance and all I can say is; she is an angel here on Earth. Her help was freely given and I credit her with my improvements.
So I started with 18 dives in a big chamber at 2.0 ATA which did nothing but cause herxes. I am now a believer in the slow but steady approach of MILD HBOT.
I’ve done well over 400 dives in my Vitaeris Chamber and have gone from walking to the mailbox with a cane and taking a cart during a rare trip to Wal-Mart, to walking 2 to 3 miles on local trails without any assistance. I recover much faster when I overdo it, sleep better, and can tolerate foods, supplements and environments that use to put me in a tail spin.
I am far from cured but for the first time I am seeing improvement in spite of my advancing years.
There are a couple of things that I think are essential to a successful mHBO therapy. One is eating a real food, low carb, high fat diet. It may not be for everyone but the research shows anti-inflammatory effects, increased mitochondrial activity and a more efficient Kreb’s Cycle with lower reactive oxygen species production.
Which brings us to the second important item. Reduce antioxidant supplements. If you load up on C, E, CoQ10, etc. while diving, you will block the increase of our endogenous (made within our bodies) antioxidants like glutathione, catalase and SOD.
I have to admit that cutting back on my antioxidants which I had been taking in large doses for decades was really hard for me. I was convinced my body would fall apart but instead I just keep getting stronger. There is research supporting both sides of this issue so I can’t say for sure which is right but I can say that my lab rat (me) is thriving with fewer antioxidants and it makes logical sense.
Good Health to All, Digby
Posts: 566 | From NW Arkansas | Registered: May 2003
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posted
Phoiph I have a question about elevation and diving. Currently I live at about 500 above sea level but we are moving to AZ where it will be 1600 feet above sea level.
What changes can I expect from the elevation difference.
As always much appreciation of your knowledge and wisdom😊
Posts: 238 | From AZ | Registered: Jan 2015
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Phoiph
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Aw...thanks, Peimomma...
I don't think you'll notice much change. My elevation in AZ is 3400 ft.
Are you still doing 1 hour dives/day? If so, you could add 15 minutes once you move.
Posts: 2083 | From Earth | Registered: Jul 2013
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posted
Hello Digby! Your post certainly encouraged me, and it's timing is beautiful, thank you.
Have you researched, considered or are you even aware of any concerns over a person with SOD genetic defect doing mHBOT? There is an article online by Pharmacist Suzy Cohen that made me start pondering this issue.
I do not understand the action of oxidative stress, the human body and mHBOT. I will heed your antioxidant warning (I'm currently only taking two capsules of Vit C (with dinner which is usually six hours after my dive).
I am on dive 168, was just recently able to start adding supplemental oxygen leaving mask just laying to the side. My difficulties making progress (and it taking so long to add oxygen) are what has my pondering this SOD gene angle.
I look forward to using a cane to get to the mailbox. I currently need a walker to get to fridge and bathroom.
Posts: 42 | From beautiful Texas Hill Country | Registered: Jun 2015
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I haven't looked at that but I will. Keep in mind that even with a gene deletion the body can usually still make the final chemical in the cascade. It just has to use work arounds.
That's where epigenetics come in to play and HBOT is a significant intervention that can turn on genes that increase endogenous antioxidants.
If I find anything of interest, I'll post it here.
Posts: 566 | From NW Arkansas | Registered: May 2003
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posted
Oh, and one more thing...my healing has been so slow and subtle that for a long time I was convinced HBOT was just another failed therapy.
The thing that helped me was that I'm stubborn, so I just kept at it through the herxes and the boredom. :^)
Posts: 566 | From NW Arkansas | Registered: May 2003
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posted
Digby how long was it before you clearly started noticing improvements?
Posts: 120 | From Maine | Registered: May 2015
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Phoiph
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Digby...I'm so happy you're here. (He has knowledge & background, people! He's helped me connect the dots on many subjects...)
Just wanted to add my earlier email response to Toyswalk on this subject:
In my opinion, the article grossly simplifies the antioxidant process and takes it out of context. It is actually a very complex and integrated process, with multiple endogenous and exogenous factors at play. Focusing on a single snp doesn't give an accurate "big picture", as the body has many compensatory strategies.
I also don't lump mild hyperbaric oxygen therapy into the same category as ozone, hydrogen peroxide, etc. It is a much more healing and comprehensive therapy.
Think about all of the neurodegenerative diseases and those associated with aging (e.g., MS, Parkinson's, Dementia, Alzheimer's, Diabetes, etc.). Many believe free radicals damage is a huge factor in these diseases, and that this population has less ability to fight them. If mHBOT was contributing to their free radical damage, why would it be the ONLY known therapy that regenerates neural tissue and promotes recovery in these people?
Think of the autistic population. They are known for high free radical levels, snps, and inability to detoxify. Yet this study points out that their low levels of endogenous antioxidants increase after mHBOT therapy:
posted
Thank you both. Digby, please contact me directly by email if you are interested in my SOD links. Phoiph can give you my contact info.
Posts: 42 | From beautiful Texas Hill Country | Registered: Jun 2015
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posted
Monti, Ha! There was nothing clear about the process. And I fought it all the way. After decades of failed treatments I was pretty sure this would fail as well.
So, the best answer I can give you is that in retrospect I was seeing benefits after about 200 dives (maybe even before) but I wasn't willing to attribute them to the chamber until fairly recently. Hope that helps.
Posts: 566 | From NW Arkansas | Registered: May 2003
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posted
Pho...Thanks for the kind words. I agree with your succinct post above.
BTW, I have a medical Ozone Generator and used it extensively in the past. It will increase endogenous antioxidants, especially if injected but it is not equivalent to mHBOT in other ways.
Ozone helped some specific symptoms but in no way affected the deeper illness. Perhaps that is the difference... deep healing instead of chasing symptoms.
Toy...Feel free to IM me with the links.
Posts: 566 | From NW Arkansas | Registered: May 2003
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posted
Hi All Trailblazers: This is such an encouraging and incredible thread. Your documentation and help to other Lyme sufferers is really incredible.
I would like to learn more. I am diligently reading this thread (actually for a second time) as it is sticking better this time.
Phoiph: Your gift to us all with your shared experience and guidance is truly beyond words.
I have sent you a PM. I look forward to hearing from you when you are able.
I am ordering the Oxygen Revolution book now. I Thank you all for your contribution to so many.
WBT Posts: 859 | From Southeast | Registered: Mar 2011
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Phoiph
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Welcome, willbeatthis (and you will...:)
Thank you...I'm a little backed up at the moment...but will answer your PM very soon!
Posts: 2083 | From Earth | Registered: Jul 2013
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posted
Thank you Phoiph! You are so encouraging. Thank you.... No rush.... My reading material is on its way and I am still reading through this thread.
Thank you so much.... Posts: 859 | From Southeast | Registered: Mar 2011
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posted
My new AirSep concentrator doesn't seem to be working, although it makes breathing sounds and there is a light air-flow out. But no effect in me like at the doctor's office.
I am sending it back anyway because of external damage from shipping and I received the wrong model, but it will be 2-3 weeks before the right one comes.
Is there any sense in using the chamber w/o O2 until the new unit arrives?
Is there a simple way to test if this unit is actually emitting compressed O2?
Thanks!
Posts: 22 | From HI | Registered: Apr 2016
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Phoiph
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Hi Kristine...
Yes...There is definitely benefit to using the chamber with pressure only. Just plug the 02 port with the brass screw.
The only way to test the concentrator 02 purity is with an expensive 02 gauge. 02 equipment/repair shops can do this for you...usually at no charge if you bring the concentrator to them.
This is why you want to make sure you get the model concentrator with the oxygen purity monitor...because it will alert you if the purity falls below 80%. The AirSep New Life Intensity 10 with this feature will have a little yellow light on the front panel.
Posts: 2083 | From Earth | Registered: Jul 2013
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I wonder if this is why some Lyme patients are having success with mHBOT/HBOT, and maybe someone's response to it correlates with their degree of bone infection.
Posts: 131 | From CO | Registered: Jul 2015
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Phoiph
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Hi project...
HBOT is recommended for refractory osteomyelitis, and it is one of the 13-14 "covered" conditions that insurance companies/medicare may pay for.
It is usually treated at a higher pressure (HBOT, not mild hyperbaric, or mHBOT) for a specified number of treatments, which is done in a clinical setting.
Note: People with Lyme will need to be very cautious about doing higher pressures...
That said, there may very well be benefit from long term mild hyperbaric. I would recommend seeing a true specialist in HBOT/mHBOT...I know one of the best neurologist/HBOT specialists around if you get down to AZ...
Posts: 2083 | From Earth | Registered: Jul 2013
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posted
AZ is not too far.. can you pm me their name?
Why do you say that people with Lyme should be cautious doing higher pressures? There is an HBOT place 15 mins from me and I was thinking of doing a session to try it out.
Posts: 131 | From CO | Registered: Jul 2015
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Phoiph
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Yes...I will PM you her name.
Generally and in a nut shell, neurological/brain conditions (of which Lyme is one, as is Autism, MS, Parkinson's, Alzheimer's, ALS, Traumatic Brain Injury, Stroke, CP, etc.) respond to mild pressures (i.e., a "sweet spot") and can show regression with higher pressures.
Higher pressures are also carry more risk, and cannot be done long term, which is necessary for the comprehensive, deep healing required for Lyme.
Many people have "tried" higher pressures, but have experienced significant reactions that prevented them from continuing. Or, their therapy was typically short-term, which did not allow them to hold on to their gains.
Consistent, mild pressure over time has been much more successful in my experience, and is what most of the people on this thread are participating in.
You have a new PM.... Looking forward to touching base with you soon on sources of chambers and oxygen concentrators - like others on this board, we're setting our sights on a bright future that has this disease under control and being a resource for others who are battling for a "normal" life again!
Posts: 3 | From Missouri | Registered: May 2016
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posted
Hi Phioph- there is a message in there from me as well and now your messages are full. Thank you so much for all your help! WBT
Posts: 859 | From Southeast | Registered: Mar 2011
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Phoiph
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Thank you...I'm backlogged.
I'm answering earliest calls/messages first...but promise I will respond very soon...
Posts: 2083 | From Earth | Registered: Jul 2013
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. . . Cognitive impairment is one of the most disabling symptoms seen in patients with Lyme disease. . . .
. . . Clearly if we are dealing with germs in the brain we need to use antimicrobial agents which are powerful, able to penetrate into the brain and able to target the specific organisms of concern.
Typically, the focus is on spirochetes, pleomorphic variants, blood parasites, bacteria in blood vessels, biofilms and perhaps other organisms, like worms.
What else? How do we make the brain work better? . . .
. . . Hyperbaric oxygen therapy. For practical reasons most patients only have access to home units with offer a low pressure.
A new unit can be purchased for as little as 5500 dollars. Patients who do the best spend 2 hours or more per day in the chamber.
The treatment reduces oxidative stress, promotes glutathione and has been specifically shown to improve neuroplasticity with reversal of abnormal SPECT scan patterns. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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susank
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I have held off - but guess I need to buy an Oxyhealth mattress. How thick are the ones made for the Solace? How cushiony are they? What are they made of? Need to off-gas?
Does everyone have a mattress in their chamber? If not one made for the chamber - what do you use?
Is there something better than the Oxyhealth mattress for someone with a very painful bony back?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Phoiph
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susank...
The mattresses are convex shaped to fit the curve of the chamber on the bottom, and flat on the top.
They are several inches thick in the center; made of foam zipped inside and a nylon cover.
The off-gassing would depend on an individual's level of sensitivity to that material. It hasn't been much of a problem for most people.
If you decide to use other materials (i.e., cut mattress pad foam layers to fit, etc.), you can always add an extra layer under your chamber (between the chamber and the floor).
When I made my platform on casters, I added a foam layer to the top of the MDF (cut slightly larger), then stretched fabric over it, and stapled it to the underside of the MDF. (Cutting the foam layer slightly larger makes the edges soft when the fabric is stretched over them.)
Posts: 2083 | From Earth | Registered: Jul 2013
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posted
Has anyone traveled with your mHbot and concentrator? I was looking to see if it would be easier to take the oxygen concentrator by plane (as baggage) or if I should ship it. I still have the box it came in which I will use to package it. Does anyone have experience with this? What is the easiest way?
Posts: 64 | From Washington | Registered: Aug 2015
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susank
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I'll probably buy the mattress online.
Price: $300
Looks like the same (size) mattress is sold for the Solace and Respiro.
Does this sound right?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Thankfully, the man I borrowed mine from had this vendor's number. Thanks for the direction Phoiph.
![[Frown]](frown.gif)
It isn't as loud as my old one, but I am assuming they all do a bit?![[group hug]](graemlins/grouphug.gif)
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