posted
I guess I can assume I have parasites? I have a sensation I've never had before, after taking a parasite drug I've never taken before... Buzzing/vibration seems like a common thing with this, sooo...yea, huh?
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GretaM
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Yes, to the buzzing!
I get twinges in my spleen and gallbladder area also when I hit hard.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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surprise
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posted
I am still treating parasites (Medbendazole again) it's amazing what an issue this is- don't see an end any time soon,
and looks like I need some antibiotics. Not as heavy as before, but... can't contain bacteria despite herbs.
Started berberine complex as well. I would love a New Years resolution to be done! That's what I thought last year :-/
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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GretaM
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posted
Hang in there surprise!
It will be worth it to keep going, although it is tough and a bit discouraging to keep seeing them.
I have been treating parasites with herbals for going on 5 years now. This year salt/c is really flushing (ha!) them out.
3am wakeup call...
Parasites are very active this month.
I hit them hard, it seems they hit back harder...
keep punching and kicking away at these things!
Gmb-nice job on working up to 2 tsp salt/c!
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Maya12
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posted
Hi guys so many are finding this months full moon really bad , I have been flaring like crazy since about Sunday, it really sucks
Just had a chelation yesterday and it has really stirred things up badly. I go for a blood ozone treatment tomorrow and I sure hope that helps.
Posts: 1632 | From Canada | Registered: Feb 2012
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lymeboy
Unregistered
posted
Ok, finishing up my round of Biltricide. before I move on to the Ivermectin/pyrantel, should I take a break for a day, or power through? I'm not feeling worn yet. Though I definitely had some reactions.
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desertwind
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I went straight to Ivermec.after taking Bilticide-no break or clear out time in between the meds.
I have not been on here for a while because I have been feeling great! But....last night felt that familiar deep twinge like something was brewing.
Had a "parasite" night. Silly me to think I could kick it in a few months of treatment. Anyway, back on anti-para.'s again. This months full moon is a real kicker!
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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Catgirl
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posted
Fascinating thread Nitsuj! Sadly, most docs and labs don't know what to do with worms (not equipped or trained).
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lymeboy
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Today is my first day of Ivermectin, and I feel like I got hit by a truck. I am so exhausted and uncomfortable. I feel like I'm going to fall over. What can I do to combat this? Also, I have painful, sensitive spots on top of my head. It feels bruised for an hour or so, then it is sensitive to touch. I think I remember reading someone else having top of head soreness while treating parasites. Is this right?
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Catgirl
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You might have to lower your dose of iver. Not everyone can tolerate the dose on the Dr. K protocol (it's high). Coffee enemas will help.
Are you taking salt/c too? If so I would lower it or stop. The iver is strong.
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GretaM
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Lymeboy-has your enema kit arrived yet? If it has can you do a coffee enema?
My doc recommended to take a teaspoon of Eno in a glass of water and drink it while it is still fizzing.
Or Alka Seltzer Gold.
Both those go straight away to help the liver.
Also, I am a big fan of castor oil packs on top of the liver to help support it.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Catgirl
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Hang in there Maya--I hope the ozone helps! This has been a tough full moon.
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Maya12
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posted
I just had the ozone yesterday but still feeling pretty crappy. Was feeling a little bit better before the ozOne but likely herxing now today uggg
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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How is everyone feeling/ hanging in with the full moon today?
Certainly not one of my best days ever. This full moon really is a bad one
Posts: 1632 | From Canada | Registered: Feb 2012
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gmb
Unregistered
posted
It was an especially tough week in that I started my first course of Parastroy last Satureday.
Nite sweats hit hard on Monday and to a lesser extent Tuesday and Wednesday. This has never been a consistent sx. No sweats Thursday nor today.
Painful tingling feet has returned big time as well since starting the Parastroy. Also increased agitation and brain fog.
surprise
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posted
Today I feel a thousand times better than all week, and I took a 1x dose of Ivermectin this morning (12 mg) not sure what that means...
all the other parasite drugs make me feel like garbage (with lots of detox)
Started lipo glutathione, Bactrim DS, and berberine this week. 3 days of Medbendazole.
Just glad I pulled out of the week's funk, it's been BAD. So hang in there everyone, detox, and remember it will get better.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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GretaM
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posted
To describe how today is going:
I couldn't find an emoticon that showed a woman running back and forth across the screen, screaming bloody murder, while pulling her hair out.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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surprise
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posted
Oh Greta! This disease is the strangest thing ever- after this week of serious grief, week before this one on Cipro absolutely miserable,
I went out tonight and had one of the best nights of my life. My little kids had a festival at their school- my PANS daughter started
lipo glutathione again this week and is doing awesome- I was truly happy and felt great, had fun, with the big moon shining down.
Hard to believe when down so low, I really know. So hang on, it's there, it is there---
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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GretaM
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Surprise-that is awesome news about your great day
I bet that festival was a lot of fun.
You deserve a wonderful day like today after your last couple weeks.
Reading about you and your family's great day has given me a ray of sunshine today.
I am so glad to hear about the lipo glutathione. Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Catgirl
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posted
Surprise, I am so happy to hear this! :) Hang in there everyone!
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GretaM
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posted
I'm sorry I have to get this out.
I understand trying parasite cleanses/meds, and maybe feeling no different afterwards or not seeing any results in hair, skin, stomach function, or even seeing things in the toilet.
Giving it a shot is great.
But I get PO'd when folks aren't even open to the idea of parasites and pooh-pooh it.(no pun intended here).
Especially since Burgdorf found the lyme spirochetes along with a belly FULL of microfilarial worms.
That is a documented fact, acknowledged by every side.
So at the very least, we have these microfilarial worms.
At the very least.
Eat sushi? Great. Add in a few more species.
Eat your steak medium or rare? Great add in a few more.
Ever eaten a garden carrot fresh from the ground? Great! Add some more.
Cats. Dogs. Rabbits. Guinea Pigs. Great! Got some more species there.
Ever worn bare feet in sand or on grass? Awesome! Got some more there.
I mean it goes on and on and I just needed to get this out of my brain.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Catgirl
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posted
Thanks for posting that Greta. And Burgdorfer's finding is huge, yet overlooked daily.
I think some people just don't want to believe that they could possibly have parasites. It could be fear, or denial, or a closed mind that keeps them from recognizing this.
Part of the problem is that we were all raised to believe our environment (homes, work, hospitals etc) is sterile, except for in third world countries. This is simply not realistic.
Hopefully the naysayers will understand after continual plateauing, sliding backwards, or slowly degrading. Even people who have never had pets have parasites. They are part of this earth.
Yes, you can keep more bugs from you by rinsing your food, etc, but parasites find a host no matter what. Eggs are often airborne or in food you simply cannot see them.
Parasites are part of the planet for a reason. Nothing on the planet is meant to live forever. IMO, mother nature made them along with bacteria, microbes and viruses to insure it. They help break living things down. Knocking back the bugs only makes sense.
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GretaM
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posted
Well said, Catgirl. Well said.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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glm1111
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posted
BRAVO Greta for posting these overlooked facts and continues to put people in denial. I have read about a ND doc who believes that most degenerative diseases are caused by parasites.
I really agree with this after doing years of research and coming to the same conclusion.
So happy to see so many finally going after these most invasive infections. Thanks so much for the posting and for your always insightful feedback Catgirl!
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lymeboy
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posted
I've been taking ivermectin for 5 days. I started eating Greek yogurt again for breakfast. Is this an ok meal while treating parasites?
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GretaM
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Yes indeed as long as it is plain and you don't add any sugary things to it.
Greek yogurt is higher in protein than regular, runnier yogurt and has good bacteria in it.
When I was doing strict low carb, there was some research that indicated that the naturally occuring sugars in plain Greek yogurt was actually consumed by the bacteria.
So the sugars listed on the label were analyzed in the batch, but actual sugars may be lower.
If you can add something high in fibre to the yogurt to help detox the toxins from your parasite meds.
Enjoy Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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lymeboy
Unregistered
posted
I usually add a banana and shaved almonds to it. berries If I have them. I didn't have this for the longest time while taking Mepron, and I missed it.
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CD57
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posted
Does anyone here get mouth sores, really painful roof of mouth, together with head pressure and skull pressure? UGH, this is ALL NEW.
The full moon was TERRIBLE, I don't think I slept at ALL. That is the first time it has been so noticeable to me. I am not on any treatment except Buhner bartonella and mycoplasma herbs but going downhill fast.
I don't want to kill parasites to release more bart, when the bart I have doesn't respond to the meds for it! Anyone have any insight? Lymeboy, Surprise, others with bart?
Posts: 3528 | From US | Registered: Apr 2007
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surprise
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posted
CD57, I could talk about Bart for a long time, but I'm going to make this short. I read this line last week:
Bartonella will root itself in the intestinal wall.
This clicked with me, as I have had Bart come back after having it tamped down pretty good. I'm on Bactrim DS (first time)
and oh boy. Cipro a few weeks ago for a UTI knocked me up. I don't know how your gut health is, how your diet is- but, I think the parasites/ yeast/ bacteria hang out in a sludge
and need to be taken out. Sometimes I wonder: all this in this little body- how- caked on intestines? Pulling off organs?
Once you start seeing parasites leaving, it makes you want to get them all out best you can. Nasty and not right.
Getting the Bart down makes my mind sharper- but it's crazy on the multifaceted die off.
P.S. I had Bart tamped down pretty good and tried to walk away, but started getting more frequent gut attacks- my gut wasn't right.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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lymeboy
Unregistered
posted
I'm flying blind with Bart right now. The only thing I am treating is parasites. I have no means to treat it whatsoever right now. It has been the worst infection for me by far. The depressive/anger elements have already crept back. I have no answers, in fact, I am all but ready to throw in the towel. I won't, but I'd like to. Something inside of me seems to have given up a while back. The bart isn't going anywhere for me.
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GretaM
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posted
This full moon was terrible!
I don't know why, but it really kicked the you-know-what out of me.
I had such great results with Rifampin.
For the first month.
Now things are on the downslide.
I am very agitated, everything annoys me, my eyes are bothering more.
It's the agitation an anger that bother me the most.
I feel like the rifampin isn't working anymore, with any of the others I've paired it with. This sounds ridiculous but I feel like the rifampin awoke the sleeping bear.
If this agitation keeps up...
I don't know what I will do.
I can't give any advice CD. I'm sorry.
It does feel like forward progress when I see worms exiting though.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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glm1111
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posted
lymeboy,CD57
The bart for me was eradicated with extensive parasite tx. Remember that the parasites protect and carry the bacteria in their coats, so getting them out is imperative. Also extra cloves kills the eggs. PLEASE don't give up. Peristence is key.
CD57, I would def add in antiparasitics and salt/c to your protocol. If you don't kill the parasites, the battle can seem futile.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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dbpei
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posted
CD57, check on one of my recent posts. There was someone who spoke of her daughter having these symptoms. I think she attributed to bart. I have had some of this, but not to the extent you describe.
I did have something called a 'fistula' on the roof of my mouth, which was connected to a terribly infected tooth, which needed to be extracted. This was a root canaled tooth and the infection had traveled to the bone.
I have a 'retention cyst' in the lower sinus right above where this infection was and I constantly wonder if bartonella or some other bacteria or parasite have made their home in my sinus... I am going to see a 3rd biological dentist about this in a few weeks.
Posts: 2387 | From New England | Registered: Aug 2011
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Catgirl
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posted
I agree with Gael, bart is parasite related. Bart likes to flare on me before the full moon. A-bart helps me with the flares.
Gael, thank you for telling us about bart (inspirational)! It sounds like it took a long time to eradicate. I will be patient.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
I started the last batch of parasite meds, Albendazole, and am experiencing the tip of my tongue get tingly and burning sensation. Almost like I burnt it. Not all the time but I especially notice it when I drink something hot... Any thoughts? Maybe a side effect since it started other same time?
Posts: 93 | From PA | Registered: Nov 2009
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CD57
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posted
Bart just flares on me all the time. I can't believe that I can be on heavy duty meds for it that do NOT kill it. Hideous Rifampin for months, mycobutin, Levaquin, etc...the fact that you guys can at least knock it back with meds is amazing. I have to keep trying diff things.
Lymeboy do you feel like bart is related to parasites for you?
Parasite treatment has NOT helped so far but I will keep trying stuff.
Posts: 3528 | From US | Registered: Apr 2007
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Catgirl
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posted
Peyjad, I've had that before. I think it's due to a B-12 deficiency or yeast.
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posted
Thanks Catgirl. Went to llmd thursday and she thought the same thing. Definitely a weird sensation . She gave me b6 though so i am confused lol. Guess I'll give that a try and if no relief I'll get b12
Thanks!
Posts: 93 | From PA | Registered: Nov 2009
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glm1111
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posted
Bringing this back up for Truesun to review for lungworms.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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RZR
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posted
Is it important to take breaks from parasite treatment?
I have been battling 3 years now. I have knocked the load down because I did gain the much-needed 15 lbs. back I had lost. I rotate pharmaceuticals and Parastroy...taking Parastroy 3 weeks and then meds one week...sometimes 2 weeks Parastroy, 2 weeks meds. I have not been taking a break.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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gmb
Unregistered
posted
RZR,
I think I read on the Parastroy or Hunaworm sites to take breaks between treatments
I just started Parastroy this past October 12. On the 14th and 15th I had some medium night sweats noticed mostly when I woke up at 3:00 am with damp hair. The sweats stopped, but then have returned the past two nights/mornings.
Is this common, or is my babs making another comeback? The only ABX I've started to take after my recent round of Coartem is minocycline.
Catgirl
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Member # 31149
posted
RZR, I think it is a good idea to give your body a rest. I was watching Dr. Oz today and he had a segment on parasites. It was good! The guest doc he had on said that it is important to take a break from wormwood. I've wondered this myself as I am not testing (energetically) for it right now. I'm not even testing for the meds. Maybe a good time for just the salt/c.
Also, for anyone who didn't see the segment today (Dr. Oz), the guest doc said that even the best parasite tests (the newer ones) are only 50% accurate (the older ones, the ones they still test most patents with are even lower).
Gmb, sounds like babs or proto.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
A little less than two years ago, I found that I had a tapeworm in my small intestine. Quite large! I started by using praziquantel, but that released a monumental amount of what seemed to me heavy metal into my system, causing me to go from mostly functional to pretty sick. I found some articles that suggested that tapeworms can sequester much higher burdens of heavy metal in their tissue (something like 300x) than their fish hosts, and so my reaction started to make sense to me. Later, I read on this thread that Dr. K says that the worm sequesters the metal in its coat as a defense mechanism against the immune system, and that made even more sense.
Since then, I have been focusing on detoxing metals, mostly through Medicardium EDTA suppositories. Finally about six months ago, I got to the point where I felt like I was able to go back to killing the tapeworm again, though the metals release has been pretty brutal at times. I have been using a mixture of diatomaceous earth, ozone water and herbal parasite formula. And lots and lots of enemas, mostly coffee enemas but other kinds as well.
I feel like I am getting toward the end, but this is still rough. The parasite releases a variety of toxins and also seems pretty stuck in the intestine. Has anyone been through this with a tapeworm? Do you have any suggestions?
Posts: 35 | From Chicago Area | Registered: Jul 2008
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Catgirl
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posted
Yes. You have to use more binders, and more than once per day. Coffee enemas definitely help clear the toxins, but they don't get them all out. You need something to bind them and carry them out of your body. DE is good, but IMO, not enough. I would use something that has some clay in it.
Also, my doc told me that for people with babs, it's harder to get the worms out. They don't let go very easily--you have to keep working at it.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Catgirl
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posted
I forgot to ask, how did you find the tapeworm? That is awesome you found it! Did you have it surgically removed (you said it was quite large)?
I like Detox2 by Byron White (greenandhealthy.com). The sheet my doc gave me said it has the capability of pulling thousands of toxins out of the body.
Here are some notes as well as binders that Gigi posted in the past (great info):
..."The need for binders is always present. If you don't pay attention to them and use them, you will find the same toxins circulating your body again and again and that is why so many people never seem to be able to get well.
we need to do the same when treating parasites. because the system gets flooded with the toxins they held. Usually serious metal toxicity shows up after a parasite kill, and that as sure as day turns to night, is followed with fungal toxin release that feels just as miserable -- unless you prepare with binders several times a day.
Half hour before all meals and at night time.
Killing bugs and almost any therapy or act that mobilizes becomes sort of useless unless you prepare with binders.
Neurotoxins are present for thirty-some years, is what Dr. K. said many times, unless you work with binders."
...
quote:Originally posted by GiGi: Binders and Detox Remedies:
Biosil (Connective tissue and intercellular detox)
Charcoal (Binds toxins, Diarrhea) 2 capsules very 2-3 hours up to 8 total in 24 hours. Capsulres are preferred to tablets. Use only as needed - it will compete for absorption with food and other nutrients. I used to take them at bedtime, with nothing else.
Chlorella (pyrenoidosa or vulgaris)
Apple Pectin
DMG (dimethylglycine) Assists chemical detox
Green Clay/ Calcium Bentonite Living Clay (suffocates larval forms of parasites and toxins in the gut. 1 tsp 2x/d in small amount of juice (berry juice works best). May need to be given with 1 tablespoon of ground flax to prevent constipation.
Microsilica (detox/put in Klinghardt Lyme Cocktail)
Cholestyramine (primarily for mycotoxins). Rx. always without aspartame.
Cholestepure
... Alternating is always a good thing. Don't take charcoal too often - but it works when you really feel miserable from die-off. Take it when you know meds are causing die-off ---- not days later...
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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gmb
Unregistered
posted
I just finished my first bottles of Parastroy after a month off ABX while on Coartem starting in mid Sept. I also got back on Salt/C with the parastroy. My stools remained fairly consistent thru this period and I know that everyone may not see bugs exiting.
Over the past 3 weeks I have had a return of cyclical night sweats, peripheral neuroprophy, and brain fog. Yesterday was the worse with what felt like I had a kidney stone, and the pain and sweats/chills put me in bed for most of the day. But the pain and sweats passed in six hours as fast as it began.
Today I'm doing OK. So what gives? Yesterday was the worse day in many years of TX. I did start Plaquenil on last Wednesday, but I've taken it before with no reaction.
I'm also on Mino, colloidal silver, Burner's CSA blend, and Japanese knotweed. I'll add Rifampin maybe tomorrow and stay with 2 tsp Salt/C per day.
Comments? Next steps for parasites? I see my LLNP on Nov 19, and hopefully she will have some good take-aways from the ILADS conference.
posted
I found out about the tapeworm when I did a 5-day fast with parasite herbs and then started eating nothing but produce for a while. It released a bunch of eggs, irregular shapes but sort of like rice. And so when I looked up what that could be, I realized it was a tapeworm. (Which made sense considering other symptoms I had had.)
So then right away I tried the Praziquantel. A huge amount of stuff (bright yellow!) came out, but I was overwhelmed by the metals release. So I didn't do follow-up on the drug and the whole thing grew back. I think it is about the same size as it was the first time.
So after concluding that the metals were the main problem, I used about 60 boxes of Medicardium (EDTA suppositories) and some DMSA suppositories, and have done literally thousands of coffee enemas.
I also did a lot of csm early on. I was doing really scrupulous mold avoidance at the time, and that seemed to prompt my body to release a lot of the mycotoxins. The stuff the worm released felt more like metals to me, or at least definitely different.
I was very sick for a very long time (bedridden, close to death, etc.), and so I guess it's not surprising that my methylation system would have shut down and allowed all these metals to accumulate. And the worm to benefit from them. I am almost well now, except for this one issue, I think. It is a challenge though!
I've used most of the binders on that list. But what seems to have been most helpful recently has been the coffee enemas (e.g. 5 per day) and the Medicardium.
I've been more proactive in the killing stuff recently. It feels like a lot of dead matter is wedged in my small intestine. So I am hoping to get that out. Maybe castor oil shots (which the Gerson therapy uses), though I do dread those.
I wish I knew more people with this sort of illness who had addressed a large tapeworm successfully! All I keep hearing from people is how hard it is. Which I already know. Posts: 35 | From Chicago Area | Registered: Jul 2008
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surprise
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posted
Hilda Clark says 3,000 mg of COQ10 in the morning on an empty stomach will kill tapeworm.
Do you think they could be seen on a CT scan? Would they even tell you? Curious.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Pennington,
NJ08534USA http://www.lymenet.org/
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