posted
project: I used supplemental O2 for years with no benefit beyond relieving my air hunger for a little while. mHBOT however has had a very significant benefit and seems to be actually healing me.
Posts: 539 | From NW Arkansas | Registered: May 2003
| IP: Logged |
posted
Thanks Phoiph and Digby for your information.
I'm considering trying to go the mHBOT route to get the last 10-20% and achieve full recovery and am wondering if you can tell me if this might be a good strategy.
I had late stage chronic Lyme for 20+ years, started treating four years ago and haven't been working for the past two years.
I have made a lot of progress over the 4 years and can do vigorous exercise, my brain works fairly well again, and all in all I'm feeling okish. I still have some residual neurological symptoms like mild anxiety and depression. I also feel a bit toxic and need to use the sauna 2/week to eliminate this. I'm currently treating for parasites and hoping this will net me a few more %.
My issue is that I'm going to run out of savings unless I can go back to work within a year or so. I could probably work now if I stopped my current treatment, but the herxes from Rife are still quite bad. I can't really see being able to work while using it until I've got the bacterial load down to the point of not herxing at all anymore. But I'm not sure if this is realistically achievable within the next year.
So one option I'm considering is getting an mHBOT setup and then continuing to use it when I return to work. My question is, does mHBOT work relatively gently or do you get occasional bad herxes from it? I need a treatment modality that will continue the healing and prevent relapsing while only causing mild, predictable herxes.
Thanks!
Posts: 131 | From CO | Registered: Jul 2015
| IP: Logged |
posted
Project: mHBOT can be adjusted to your needs by altering the pressure, frequency, time in the chamber and the amount and delivery method of the O2.
If you get a chamber you will find your sweet spot where you rarely used, but slowly improve.
BTW, I found Rife treatments to be too intense for me.
Posts: 539 | From NW Arkansas | Registered: May 2003
| IP: Logged |
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Hello Everyone. I will post an update soon. I am about 425 dives along.
A question for Phoiph - I did look through the posts on this thread to see what you did for diet and I did find some posts. I will try to make some bone broth even though my bone broth tastes like pee.
Would you mind sharing what type of GI issues? Maybe you don't want to give details. Constipation? Pain?
I have severe GI issues and Ridiculous constipation. I'm probably going to see a specialist and get some images to see if there is blockage.
I am currently on a modified version of the Wahl's protocol, about 6 cups of vegetables and Paleo. I don't eat processed food and I only drink water.
I am considering trying the plan that Digby is on, but I'm not sure how that will be on constipation. I ordered the book for that plan.
I believe that once I get the GI and Bladder issues solved, I may be on my way out of the abyss.
[ 06-26-2016, 12:30 AM: Message edited by: Haley ]
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
project...
As Digby mentioned, you have control over how quickly you work up to speed. Going slowly and working up gradually in the beginning is key to not having severe reactions. IMO, herxing is overrated!
Once up to the full protocol, commitment and consistency becomes crucial.
For me, it was definitely a 2 step forward, 1 step back process...
Posts: 1885 | From Earth | Registered: Jul 2013
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Haley...
I'm really not sure there are words to describe how bad my GI issues were.
You asked for details, but I apologize in advance if this is "TMI"...(you can't make this stuff up!)
My stomach continually felt as if it was filled with glass shards, and that a giant had his fist shoved into my solar plexus. I hunched over my stomach constantly with a heating pad, and could never take a full breath. Eating was sheer torture. I force fed myself 3x a day, each time with my head on the table, sobbing, and wondering how I was going to do it again (5-6 of the same foods for 5 years due to severe allergies/intolerances). If I tried to eat a different food, the vibrations in my nervous system/gut would increase to the point of wanting to crawl out of my skin. Then, I would have a night from hell, like on a "bad trip". Retching every morning, gastroparesis, and NO stomach acid, Whatever I managed to get down just sat there undigested until the next time...
I remember when I had the first inkling that something was healing in my gut. I was in my chamber (several months after beginning treatment), and I felt the first hunger pang that I had felt in years. I was so overjoyed at that basic sensation...I had totally forgotten what it felt like to actually want to eat...
Once the stomach acid started flowing again, I was able to gradually add more foods, and things began to slowly improve.
I do think the bone broth kept me alive. (Mine probably tasted much like yours but I didn't have much sense of taste at the time.) Once I started absorbing again I feel it really began to help.
I'm happy to say that I have no gut issues anymore, although I continue to eat as cleanly as possible.
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Thank you Phoiph - much appreciated. I will check out those links. I'm sure that I am making it wrong.
I appreciate all of the information. I really think this will be huge if I can solve this problem.
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
posted
Haley I think so too! That may just be what tips the scale for you Posts: 120 | From Maine | Registered: May 2015
| IP: Logged |
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Thank you Monti. I hope so. I now have a sciatic nerve issue. I have never had anything like this before. I have no idea how it happened. It's soooo painful.
It seems like anytime I feel that I will emerge from Lyme that I get hit with something else. It fees like a test sometimes. So crazy.
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
posted
Bone broth is incredibly healing to the GI system and aids in the repair of leaky gut. It is a very nutrient dense food. If you visit The container Store, you can pick up small serving sized glass containers to freeze the broth in.
Applying magnesium gel topically helps with sciatic nerves. It relaxes muscles surrounding the nerve.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
| IP: Logged |
susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Hi all - a couple of questions.
Re: Broth
I need to do this again - would like easy "recipes" for bone marrow broth and vegetable broth. A friend who is clueless about this will have to make this for me. (I'm pretty clueless/helpless about this myself as I can't/don't cook). My sister had been making broth for the both of us - but she was recently in a terrible car accident - spinal fractures etc - so cooking is out of the question. I very much wish she could do mHBOT. If I had the money I would buy her the one that is wheelchair accessible.
Re: Dysautonomia/POTS and mHBOT
Today a friend of a friend called me. Her daughter has Dysautonomia/POTS - has been housebound for four years - is still a teenager. So sad. Lyme negative but have suggested they test with Igenex. Anyway, wondering - would mHBOT be helpful or contra-indicated for POTS?
To mention - I have been diving - not daily - depending on ears and how I feel. Back to using supplemental O2 with tubing loose in the chamber.
I was having trouble zipping/scootching on my bad back - to end up with head under the window. I figured out I don't need to have my head under the window - (do I?) - which eliminates scootching the length of the chamber. I dive with my eyes closed anyway - don't need to see out. I can also now dive w/o seeing the gauge. I have not bought a mattress yet - for now use small pillows and put under my back (lumbar area) a hot water bottle - which really helps. I don't use hot water - but anyway - it acts like a mini waterbed under my back.
This has been a rough past few weeks - but I am soldiering on. Being hopeful.
Thanks all.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
| IP: Logged |
me
Frequent Contributor (1K+ posts)
Member # 45475
posted
SusanK, you can buy bone marrow broth at places like sprouts.
I just through in frozen veggies (soup mix from Kroger), pre-cooked chicken, rice, and spices.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
| IP: Logged |
susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Thanks - did not know that about Sprouts.
I just remembered the name of the veggie broth - can't believe I remembered it. Bieler's broth. !!!???
I hope it's something like a clear soup - ie throw away the veggies like one throws away the marrow bone. Or else the veggies pureed or something. I have trouble chewing veggies.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
| IP: Logged |
posted
I have POTS and my condition has not worsened. I personally have found low dose hydrocorstisone to work like a charm.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
| IP: Logged |
posted
I have had my chamber for about 6 weeks and have already found myself in there with several big spiders and one Hawaiian centipede. (Despite my house being very clean!)
Does anyone know if the Oxyhealth chambers function the same without the blue fabric cover? I think the bugs would not be able to walk up the white rubber/plastic stuff.
I'll keep the chamber zipped up for now, but I don't want to create a moldy environment in there.
Posts: 22 | From HI | Registered: Apr 2016
| IP: Logged |
posted
Now that you mention this, I realize that behind the cover would be a great place for spiders.
The cover just makes it look friendlier and helps protect the vinyl from scuffs, so you can safely take it off. It doesn't do anything else unless you have the Quamvis chamber, which has belts on the cover.
I'm a pretty tough guy but diving with spiders would freak me out. Hopefully it was just a little dust spider and not the scary ones.
Oh and you might try putting a glue trap in the chamber to collect any that are hiding under the mattress. Good Luck!
Posts: 539 | From NW Arkansas | Registered: May 2003
| IP: Logged |
posted
Does someone on this thread know if home mHBOT chambers are legal in Canada? I came across a blog post stating that they are not available for home use. Can't find anything definitive stating that they are or are not.
Posts: 131 | From CO | Registered: Jul 2015
| IP: Logged |
posted
Thanks Peimomma
Posts: 131 | From CO | Registered: Jul 2015
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Hi Everyone...
Many times I'm asked about people's progress who don't post on LymeNet.
I wanted to share an email I received a few days ago from a father who's 30-ish daughter has been ill for several years with suspected Lyme, high Epstein Barr titers, surgeries, etc., etc. etc. She has been through many protocols without success.
These kinds of emails are so rewarding and are a humbling reminder of the power of this therapy, and the need to raise awareness and educate others as much as possible. We never know who we might reach. After all, if we don't do it, who will?
"hi ***** I hope this finds you in good health and spirits. It has been a long time since I gave you a report on ***** but it is time to fess up as best I can at the moment.
After ***** bought the used chamber she started using it regularly and I've noticed a steady improvement in her overall health - Maybe she is not the model of perfect health yet but she is so much better that every time I see her or talk to her I want to lower my head and thank you and thank ***** for connecting ***** to you.
There is no way to tell you how grateful I am for your efforts to educate us and help us get an effective healing therapy.
You were right - ***** needed oxygen - she got a little of it w/ the H2O2 IVs from Dr. ***** but those had limited effectiveness that wore out in about a week.
posted
Thank you, Phoiph.... I needed to see this tonight. What an inspirational story....
Thank you for all you do for so many. Words seem trite when trying to adequately express the kind of gratitude this engenders in us all....
BLESS you Phoiph and Peimomma and all those that have gone before paving the way.... You carry light as you go and really, from the bottom of my heart, thank you..... Hugs!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Thank you, willbeatthis, and everyone...
I'll try to remember to post more of the feedback I receive outside of LymeNet.
Being well and helping out is a privilege...and it is epically rewarding in cases like this where I have personally met the people involved and see the improvement first hand.
Another update...I realized I just passed my 5 year anniversary of starting mHBOT. I spent several days "unplugged", camping in the mountains, hiking, and running trails around the lake with my beloved Aussie cattle dog. It wasn't so long ago that not only was I so ill I didn't think I would live, I was certain I didn't want to. Moral of the story: wellness may be closer than you think. Never, never, give up!
Posts: 1885 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
Thank you so much Phoiph for this beautiful picture of wellness and happiness you shared with us! Five years and you are truly living! I have a magnet on my fridge that says Never, Never Give up! Like you, it is a beacon... thank you for making my day with this. Sending you hugs! And CONGRATULATIONS! Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
I was reluctant to post this but i think it is helpful to share both positive and negative experiences mhbot.
Due to a recent disaster (housefire), i have been without my chamber for over two months now. (I had been diving consistently for 1 hr daily, at about 800 dives...)
During those years, my lyme pain/inflammation was kept in check but i continued to experience other issues, tooth decay, gum mouth inflammation, thyroid problems, increasing food/environmental sensitivites, yeast/mold/fungal issues, etc. i kept diving hoping that eventually all these issues would resolve themselves.
Now that i have been without my chamber i am experiencing SEVERE relapse of all my old issues and am unable to function at all. Severe brain inflammation, inability to think, pain everywhere, joints cracking, flu, fever chills, twitching, light sound sensitivity, nausea, swollen lymph nodes, sore throat, etc etc.
It is so bad i cant sleep on a mattress and have to lie down flat on hardwood floors with ice packs behind my skull.
I was retested and came up positive for lyme, both babesia duncani and microti (previously only positive for one of these), and bartonella hens. again... So every infection is active and i feel it, very acutely.
I have not given up on mbhbot as it allowed me to be mostly painfree for the basically the whole time i was diving, but i wanted others to know that it wasnt the magic bullet for me Posts: 96 | From USA | Registered: Sep 2013
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Where's the like button👍, so many posts that I would like to thumbs up. Not yours Spinning👎🏼😓💚. Sorry to hear this.
I thought I would pop in and give an update on my foot, my pits, my body pain and life in general.
My foot is doing so much better since my last post, it just needed some good old fashioned walking to get the blood, O2 and healing back in the area. It went 5 weeks with no pressure and a pin. After the pin was removed the toe and surrounding area were swollen and tender so not much walking. After my June doctors appointment he said to walk more so I got to it and now the toe/foot looks and feels great again. Good color and mobility.
I believe I wrote a post awhile back about my armpits aching and feeling full after treating and I was using a homeopathic detox. I'm happy to report no more aching pits and no need for the remedy.
I dive 2 times a day 3-4 times a week with no issues and I am down to my coffee enema detoxes one every 2-3 times a week.
I think I also posted about achy joints due to our crazy weather in the PNW, rain and cold still with only a few warm days. A nice lady suggested some topical magnesium and that fixed the issue.
Many know I'm a less is more for my body with supplements so I only use what my body says it needs.
I'm running close to 100% feeling good but we will see where the labs say I am in January.
I love seeing all the new people here and many more coming onboard in the FB groups thanks to the wonderful ladies that started them.
I hope my next post is announcing the start on my new job😊
Posts: 233 | From AZ | Registered: Jan 2015
| IP: Logged |
posted
I am so sorry you are so sick Spinning!! WHAAAAAA (mini tantrum)
Thanks for sharing your experience though! It is encouraging that you were able to keep it more or less under control with hyperbaric.
I feel at this point the same way. Not a whole lot better but kinda leveled out and able to be off antibiotics.
my family dr. just asked me about it today and I said "yup, I am still doing this. It is "free" and painless!!
I will be surprised if I get anything more than this out of it, but I am a stubborn lady...I attempt to give everything a good TRY.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
| IP: Logged |
posted
Peimomma, I'm so glad to hear about your great updates! Looking forward to even more good news with that job update
Phoiph, it's not over til it's over..and it's not over just yet just waiting on getting new equipment now so I can continue my dives..miss clear brain, no-pain so much...
Miss Foxy, stubborn is the best way to be! Being stubborn and foxy at the same time, obviously. It'll take you far sending my best and will shoot you an email soon <3
Posts: 96 | From USA | Registered: Sep 2013
| IP: Logged |
posted
Spinning, so sorry to hear that; I hope you're able to get back in soon and be pain free again. Sorry about your home too.
Peimomma, excited you are doing so well.
Foxy, I hope you get more out of it, stay stubborn
Wanted to give a quick update, am 150 dives in, and have had improvement overall. Better energy and less brain fog, although there are still ups and downs.
I continue to have a lot of symptoms that flare and then go away like muscle spasms and pain in mine spine and hips, nightmares, but these are more manageable than they used to be.
Overall, my anxiety level is down from when I first started diving, which has been nice; that is typically how I know if I'm killing something off along with fatigue. Looking back over my symptom journal has been helpful to see I have less symptoms overall although I still have a lot more ground to cover.
Posts: 64 | From Washington | Registered: Aug 2015
| IP: Logged |
posted
Today we road 240 miles on the motorcycle to visit Jolly😊 We have seen her in months since she came to our house to try my chamber. I just want everyone to know she looks fantastic, life in her eyes, great color and full of life and conversation. It was so nice to see what only 6 months in an oxygen chamber has done for her.
My husband didn't recognize her from the day she showed up to our house last year. He commented on how much life she has now and how healthy she looks.
I look forward to seeing her again in the future as she continues to treat with mHBOT. I don't think we see the change until others point out the differences they see.
Keeping a journal helps, videos are by far the best to see months later how completely sick and void of life you are when you begin. You don't have to be as public as I am but it has helped many people find this therapy and this thread.
I forgot to post my dive count: 572
Posts: 233 | From AZ | Registered: Jan 2015
| IP: Logged |
posted
Hello There, Ladies and gentlemen I trust this message board is still "Alive and Well" as it appears to be "Awesome"!
When I first found this "Thread", and chiefly "Phopih", I was both in poor health and spirits to say the least!
I don't want to go into all of the gory details, however if you read some of my older posts you will get a firm grasp of just bad things were at times!
After 200 plus dives, I'm considerably better! I would have loved to have followed the initial program or 5 dives a week @ one hour a session.
Unfortunately I was one of those people who tends to still to this day experience really nasty "Herxeimer" reactions , when doing Mhbot.
I did however discover for me personally that diving outside on either the ground or white cement which makes contact with the earth helps mitigate the "Herxeimer", reaction many of you may get?
Also I think this may have something to do with the fresh air outside etc(-:
Now my interpretation of the aforementioned can best be described as positive effects yielded from "Earthing Or Grounding"!
I also wear hematite which I have done since day number one, when my encephalopathy was so bad I couldn't think my way out of a "Paper Bag".
My preference is to do a ton of "Earthing", both before and after each and every dive!
Earthing for me personally is a Free powerful "Anti Oxidant", which makes sense "Scientifically" as to why it helps with the Herx's(-:
I tend to sweat allot while diving, however even if I don't I take a luke warm "Very Cold" shower for 10-15 minutes post dive! For me closing my pores "Post Dive", has always been beneficial.
My diet for the most part is "Rice and beans", a few vegetables and pure orange juice. I try not to consumer any dairy, meat, or wheat! I also try to cut out "Gluten", 95% of the time.
In all sincerity to this form so that it may better serve those of you who may be struggling.... I would like to express the following!
I wasn't your "Text Book Case", as I never took ABX, however I was most certainly bed bound, and had a horrible case of encephalopathy! At my worst I had over 30 plus symptoms!
After my appendix burst last December which was followed by both laparoscopic surgery, and numerous bags of (IV) "Flagyl" I was in rough shape.
"Praise the lord", this didn't happen prior to me finding both this thread, Phoiph, and Mhbot.
The (IV) Flagyl hit me hard and I immediately started Herxing, while simultaneously dealing with a very painful post surgically removed appendix area!
I refused the (IV Flagyl), initially however was forced to take it post surgery as I could have died due to infection associated with having my appendix burst gangrenous fluid throughout my body!
Fast forward seven months and I'm still improving! I was desperately lacking "Spiritual Growth", however as my faith in the "All Mighty", has increased beyond anything I could have ever imagined healing once again is moving forward!
Interestingly enough I would often times pray to "God" before coming out of my "Encephalitis" riddled brain!
I quit praying after I came out of my encephalitis riddled brain and was focused on both strictly the scientific, and physical realm.
Maybe this is all my body, brain, and soul were capable of handling at the time on a deep level?
I should have "Slowed Down", however at the time I just wanted to get well both "Physically and Mentally", as fast as humanly possible!
Phoiph, told me to think about "Slowing Down", however at the time I had someone else in my life pushing me "Fast and hard"!
In closing each and every one of you will undoubtedly have a different experience while on this journey!
The key to making all of this happen was "Faith"! I had a sincere "Faith", in both this modality and Phoiph at that time in my life as my guide on this journey!
For those of you who have been "Blessed", to have found both this thread and Phoiph, after years of struggling I wish you the best! I was hanging by a "Thread", no pun intended when I found this forum.
[ 07-26-2016, 03:28 PM: Message edited by: Looking4hope ]
Posts: 50 | From San Diego | Registered: Jan 2014
| IP: Logged |
posted
SIAP Haven't looked at LymeMD blog in awhile but noticed he posted this last month. Found it interesting that his patients doing 2 hours or more are doing the best.
Hyperbaric oxygen therapy. For practical reasons most patients only have access to home units with offer a low pressure. A new unit can be purchased for as little as 5500 dollars. Patients who do the best spend 2 hours or more per day in the chamber. The treatment reduces oxidative stress, promotes glutathione and has been specifically shown to improve neuroplasticity with reversal of abnormal SPECT scan patterns.
posted
If you do two hours I would build it slowly. I went to two hours too fast and felt miserable. I backed off and am at one and a half hours. I am considering two though... my dr wants me too... now hmmm I wonder which dr. that would be????
I am a little scared to tho.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
| IP: Logged |
posted
I almost suggested that this should only be an idea for those that have been "tanking" for awhile foxy,and very comfortable with an hour at a time.
Phoiph recovered with 1 hour a day sessions so I shared this info for those that have been at it awhile and may want to increase time. I remember a poster awhile back said her doc recommended 90 min sessions.
Posts: 805 | From Utopia | Registered: Feb 2006
| IP: Logged |
posted
You can't argue with success. Maybe if an hour isn't doing much for people they could explore this possibility?
Phoiph was successful at an hour but she saw positive gains with it eventually. Maybe it should be bumped up only when there isn't any gains.
Maybe everyone's "Sweet" time is a little different, like possibly even how ill you are.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
| IP: Logged |
posted
How many hours need to pass between a dive and a flight on a plane?
Posts: 64 | From Washington | Registered: Aug 2015
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Hi Jolley...
There is very little information on this, except in the scuba diving world, and there is disagreement there, as well.
It seems that there are many variables with scuba diving (e.g., how long, deep and frequently one dives, etc.) that come into play, so they have come up with general guidelines, but not all agree.
The U.S. Navy tables recommend that you wait at least two hours before you board a plane after diving; the U.S. Air Force says you should wait 24 hours; DAN recommends a 12-hour minimum surface interval before flying.
In the hyperbaric world, that I know of, there are only guidelines for how long to wait to fly after receiving hyperbaric treatment FOR decompression sickness (The Bends)...not for regular mHBOT or HBOT.
It seems likely that when doing mHBOT we are diving so shallow that it is not an issue (although we do dive frequently). If you want to be extra cautious, you could wait 12-24 hours.
Posts: 1885 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
Haley, I had a similar problem I tried messaging you however your mailbox appears to be full? I believe I told you about this a while back? This modality cleared up almost all of digestive issues and intermittent constipation!
Posts: 50 | From San Diego | Registered: Jan 2014
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
FYI...and please share with practitioners:
HBOT2016 – The 10th International Symposium Conference & Expo
Deploying Hyperbaric Medicine and Adjunctive Therapies into the Health Care System:
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Hi - lookingforhope.
Nice to see you here.
I have deleted some emails, please send me the information. I do eat really well, but can't seem to get the correct diet. I would like to do just bone broth, but still have difficulty making it. Not to mention that I live in a small place.
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
posted
Good Morning, I have a couple of items to share. My son has been diving now for roughly 4.5 months. He always experiences chest pressure and last week when he increased his time on the mask from 30 to 35 minutes, he had to exit the chamber due to chest pressure and then could not breathe. Once he was out, he was fine. That night the chest pressure was intense and radiated to his back as well. Now, I know it is Esophageal Spasms and I'm not sure if he can continue diving with this condition. Have any of you experienced this?
Second question. I am hearing about the use of Ivermectin for treating Lyme. The herxing is meant to be awful, but I have two friend's whose boys are doing really well on it. Is there anyone in this group who has used this approach? What were the results and do you recommend it?
Thanks very much for any insights you could provide.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
| IP: Logged |
I forwarded the info to my doctor and she's now going and wondered if you were attending 😊
Posts: 233 | From AZ | Registered: Jan 2015
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
That's great, Peimomma...
Wish I wasn't already committed on those dates...
Hopefully she'll bring us back some good information!
My neuro/HBOT friend here is also coordinating/presenting so we'll be able to access information via her as well.
Posts: 1885 | From Earth | Registered: Jul 2013
| IP: Logged |
I have had esophagus spasms due to tetracycline. I was headed to the emergency room the pain was intense!
Drinking a glass of water will help this problem esp if it is medicine induced.
I am also on ivermectin as well. I am not sure it is helping yet, but I know of many people that it has done wonders for.
If you have any questions feel free to PM me. I don't want to hijack this mHBOT thread.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Hi Foxy Loxy, Thanks for your reply. This is a new symptom brought about by using the mask. He has always had the chest pressure from the first day he dove, but it was not until using the mask that it intensified and he gets shooting pain across his chest from one arm pit to the other. I have him sit in magnesium chloride baths, as well as spraying mag gel topically. Now, every time he eats, he is nauses. Just when we thought we might be making some progress with this therapy, he is worse instead of better. The Lyme attacked his GI system so this is not a result of drugs. I am interested in hearing more about your ivermectin therapy. I understand the herxing is horrendous, but once you've moved through it, people are much better. Having said that, I did read something this morning, somewhere in all the threads, that when you go off of it, your symptoms return. Hav you had this experience? Not sure how to email you, but feel free to email me. [email protected]. Thanks.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
| IP: Logged |
posted
Jolley - Last week I took a short 50 minute inter-island flight just 2 hours after 45 minutes in the chamber, with no issue.
Posts: 22 | From HI | Registered: Apr 2016
| IP: Logged |
posted
Foxy Loxy, So, are you saying that once you start on ivermectin, you have to stay on it in order to keep the inflammation at bay? If that's the case, then I dont want to explore it any further. It would seem to me to be a brief reprieve, not a permanent one. There really isn't any healing then.
The oxygen is causing the irritation, I'm just not sure if it is part of the healing process or not.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
| IP: Logged |
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Karen. You may want to consider having him tested for parasites. If his lungs and his G.I. tract or bothering him it is possible he is dealing with parasites. I personally do not think the oxygen will help large parasites, that's just my opinion. If someone is dealing with parasites in their blood they need antiparasitics. Check out this website - lots of info - debugyourhealth.com
The MIT graduate's entire family got sick, she figured out all of their issues and gives a step-by-step instruction guide on what to do.
Posts: 2232 | From USA | Registered: Aug 2009
| IP: Logged |
posted
Hi Haley, Actually, when he first became sick 9 years ago, I ran a CDSA which came back positive for D.Fragilis and even though he was treated for it, that is a bug most people don't get sick from. In the end, it was lyme all along. The lyme has attached his GI and the symptoms he is having are those of esophageal spasms. thank you.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
| IP: Logged |
posted
Karen, Nobody knows for sure WHAT ivermectin does. Both Drs I have gone too shrug their shoulders but say it helps.
I haven't seen anyone be able to stay off it but I am pretty sure there are people that have.
There are a LOT of people stuck on abx stuck on herbs etc. There is no cure. If ivermectin helps me feel better, I am staying on it.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
| IP: Logged |
posted
foxy loxy, I just spoke to someone whose adult child is on it too. She told me his doctor said ivermectin is a life sentence. In other words, you are on it for life. That is not the program I want for my son. I'm glad you are finding it helpful, but every drug has side effects and I dont' want him to be faced with a life time of drug therapy. Unfortunately, the only person I am aware of who has cured their lyme through mHBOT is Phoiph. There are several people on my Healing Lyme with mHBOT Facebook group who are using this therapy and have been for quite some time, but no one is near where Phoiph is and it's an expensive therapy. My son has been diving now for 4 months and the progress is minimal at best. I am disappointed, but Ivermectin is definitely not for us. I wish you well.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Karen...
Remember that your son is not even up to the full protocol yet...he is only reached 30 minutes using the mask, and he has made progress.
Even so, 4 months even at the full protocol is still too early to judge...
There are many people on this thread who have made significant, life changing gains...as well as people I am in contact with outside of Lymenet...
Don't lose hope, or quit too soon, as I almost did.
That said...IMO the "esophageal spasms" need to be fully checked out...
Posts: 1885 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
Karen I don't believe there is anyone on this thread that has treated for 2 years straight like Phoiph had to regain her life.
I'm at 18 months and I can assure you at my 2 year mark I will be at 100% if I continue on my current path. 4 months is just the point of a first breakthrough in this therapy.
It takes time to heal our bodies and there is NO quick fix to Lyme disease as much as all of us would like over night healing.
Stay the course and he will regain his life like myself, Phoiph and many others on this path.
I've done 602 dives and I would say that I'm at 95% healed. I could fully function at the stage I'm at and not treat every day but as I stated in the FB group I want my all my labs to read normal not just some. I continue to treat so that my labs will prove that this therapy alone can cure Lyme, yes it takes time but it's all natural. It has already cured my Ehrlichiosis on a lab test.
I don't consider this an expensive therapy because it has given me my ability to get full time employment again, something all the other therapies and medicine did not do. That money is gone and my health only grew worse, never better until the chamber. My chamber = priceless
I see so many get frustrated in the first 6 months of treating but at that point they are only 1/4 of they way through the amount of time it took Phoiph to regain her life.
I wanted it now when I started treatment and Phoiph reminded me to be patient and not get ahead of myself. Slow down on living life and let my body heal. My hope as people begin this therapy is that they commit to the 2 years of treating and they don't give up on this amazing therapy.
I don't know what we would do without Phoip's dedication to posting and answering questions, I can only imagine it gets draining 😊 I know I needed reassurance and Phoiph was there but I also needed to reach deep down in myself and believe that this therapy would work if I gave it daily commitment and time. I thank Phoiph for always being here to answer the same questions over and over and for encouraging all of us faint of heart people.
Posts: 233 | From AZ | Registered: Jan 2015
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Thank you for the kind words, Peimomma...and for continuing to share your journey with us...
Posts: 1885 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
I am glad to know you are doing so well, Peimoma and that you believe so in this modality. We are committed, of course, but I not in this with blinders on. I keep an open mind as there are many paths to healing, not just one. I explore other things as they come to my attention. I would be foolish not to. I wish you continued healing.
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
| IP: Logged |
posted
Although this is off the path to mHBOT, I wanted to post for all to benefit. My symptoms started in my stomach. It was a hard road. In my research I found a reply by Stephen Buhner that talked about rantinidine bismuth citrate for gastrointestinal lyme.
He recommends a compounding pharmacy in Texas but I also found it in a product called Paragone by Renew Life. I took that product on and off for a year and I believe it helped me.
Hope that helps.
Posts: 538 | From kentucky | Registered: Nov 2011
| IP: Logged |
posted
rantinidine Bismuth Citrate reduces stomach acid. Why would anyone want to do that?
-------------------- Karen j. Dame Posts: 21 | From arizona | Registered: Apr 2016
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Ranitidine is also an antihistamine. Which may be the source of stomach pain/symptoms. This is especially true for the Lyme patients who also have Mast Cell Activation Syndrome.
Posts: 1687 | From Maine | Registered: Jun 2004
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Additionally, the Bismuth will protect the stomach by lining it creating a barrier. Just need to be careful with constipation.
Posts: 1687 | From Maine | Registered: Jun 2004
| IP: Logged |
posted
The short answer is because it can cure you. However, the long answer is in the United States, they do not put bismuth citrate in randtinidine anymore.
If you read the link from Stephen Buhner, he did not recommend rantinidine bismuth citrate, he just recommended bismuth citrate. I just wanted to give context for the study published in ncbi.
You can get bismuth citrate without rantinidine from a compounding pharmacy or in paragone. I was just trying to be helpful.
Posts: 538 | From kentucky | Registered: Nov 2011
| IP: Logged |
posted
Needing people to weigh in on this. I had lab tests drawn in late June. My human transfer growth factor beta 1 test came back elevated. It's actually 2x the high end of normal.
It's been a long time since I had blood work done and will need to see if this has been tested before.
Am wondering if mhbot can elevate this test? Any thoughts, phoiph? Peimomma, you have blood work done. Have you been had this test and if so has it changed during your therapy?
Anyone else who would like to chime in, that would be great.
Posts: 538 | From kentucky | Registered: Nov 2011
| IP: Logged |
posted
I need to have a molar extracted. How long should I wait to dive both before and after? Worried about bleeding since I seem to bleed more easily with daily dives.
Posts: 64 | From Washington | Registered: Aug 2015
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Hi Jolley...
I was told by my Neuro/HBOT specialist friend just today that many people (who are not necessarily doing regular mHBOT) will schedule 5 sessions before and 5 sessions after a surgery.
The pre-sessions are to prime the body for the stress of surgery, and the post-sessions are to help flush out the toxins from the anesthesia and to promote healing.
I don't know that this would differ much from having a molar removed...however, I would definitely run it by your oral surgeon.
One thing I would ask about is the drying effects of the 02 you are breathing through the mask...and whether this would affect clot formation (i.e., dry socket).
If this is a concern, you could always just run the 02 into the chamber and not wear the mask.
Posts: 1885 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
Joe went in the chamber before and the day after his tooth extration. It was the front too the and he had to have a bone graph as well. The dentist told him it would be beneficial to go in the chamber to help heal the area.
He had his front too the fall out from an old injury after he started diving so he had to have the rest removed and bone graphed,
It all healed up really well. He waiting a day after the surgery to give his body a rest.
Posts: 233 | From AZ | Registered: Jan 2015
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[woohoo]](graemlins/woohoo.gif)
![[Frown]](frown.gif)
![[Wink]](wink.gif)
just waiting on getting new equipment now so I can continue my dives..miss clear brain, no-pain so much...
Printer-friendly view of this topic