posted
Bryan, my Dr. does a fair amount of mild hyperbaric therapy. He did admit to me that it seems the hyperbaric doesn't help Babesia, (I take that to mean directly, obviously for some it did) for whatever that is worth...
My primary symptoms are odd nerve sensations inside my head and nose. I didn't see any improvement that I can definitively say. In the beginning, it almost seemed like it was helping.
I had increased dreaming, and seemed like it may have relieved a certain aspect in my head... but then it kinda petered out and nothing else happened.
Because of the increased babesia symptoms after my first half hour dive, I only did the pressure for a while. I didn't react as badly with that, but not sure I saw improvement either?
Oh, and my dr did say that he often sees some sort of improvement in his patients that use hyperbaric. He thinks it can keep lyme infection down without antibiotics. That's a pretty powerful thing to say!
I will say, I did go off lyme antibiotics and didn't crash... but they also didn't seem to be improving me either...
I hope my unbiased viewpoint is helpful... I am experimenting myself!
Oh, I also had a neighbor that tried mild hyperbaric for about six months. He thought it made him worse, and quit and improved some.
I don't know! There are a LOT of variables in here. I used antibiotics and antimalarials in conjunction, so maybe that's the reason hyperbaric didn't work for me. Maybe I didn't have enough faith to let it be my sole therapy!
If anyone has any advice or wisdom on my babesia problem, I am all ears and am VERY open minded to suggestions...
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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kgg
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Foxy lady, you are right. There are so many variables. My naturopath wants me at least on herbals for my Lyme/babesia/bartonella. But I keep resisting her. First, when I tried just one drop, I felt worse. Whereas, at that point, I had been only diving and had felt better. So I have yet to add in herbals. At this point, I am going to tell my naturopath that on herbals we are going to have to agree to disagree. ;-)
I wish I could offer some wonderful wisdom for you on Babesia. But I really don't have anything to offer. I did the Mepron/zith route twice. I hope to never have to swallow the yellow paint again. Considering I was not symptom free, I would guess that Babs still played a role in my poor health. But mHBO sure has helped me.
It is so hard with tick born illness, because we all react so differently to treatments. Interestingly, my young adult son, who never reacts well to any treatment and still struggles with fatigue issues responds well to mHBO.
Posts: 1844 | From Maine | Registered: Jun 2004
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posted
I just talked to Samir , the CEO for 20 years of Oxyhealth , and he said you do not need to breathe o2 in the chamber and that a recent study showed you get results without o2. Does anyone know which study he is referring to? This is a big statement coming from the CEO of Oxyhealth.
Posts: 641 | From Nevada | Registered: May 2009
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posted
Very interesting Dan. I wonder what simply diving without the o2 would do to the Babesia?
I think. Somewhere in the back of my head... that there was a study with mold. and that mild hyperbaric was very helpful but there was no supplemental oxygen.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
Wish I could attach it here but Samir sent me a PDF with some studies in it showing that no o2 was required. I mean, real scientific studies. I'm not saying the o2 doesn't help (I know Phoiph will be here shortly to chime in...). But it's good to know that the Babesia issue may be circumvented by experimenting without o2. Or, maybe something like, use o2 every 3rd dive.
I have the interesting benefit of being at 6500 feet elevation where I live, so whenever I visit sea level, it is like a hyeprbaric treatment! And I usually don't have babs flare ups when I visit sea level so I'm assuming I won't in a chamber with no o2.
Samir also said he didn't think my elevation would be a problem with hyperbaric because it is the RELATIVE change that heals the body. My body is already in equilibrium at 6500 feet so the "punches" (his words) of pressure will work the same regardless of what elevation you are at. Which really makes sense, since sea level is really an arbitrary elevation, there's nothing magical about it.
Posts: 123 | From Tahoe | Registered: Oct 2016
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Phoiph
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Regarding altitude, it depends on what you're using hyperbaric to treat.
If you are an athlete who lives at a certain altitude and wishes to treat an injury (or just improve your performance), then in theory, adding mHBOT will help as it is a relative change to what your body is used to, and will signal healing reactions.
If you are treating a specific infection, however, then there are certain levels of oxygen saturation that must be reached in the tissues to disarm or kill that pathogen. This is why different conditions are treated at different pressures (e.g., infected non-healing wounds are treated at a higher pressure than a brain injury).
In this case, the amount of pressure you receive matters, and you will receive less pressure as your altitude increases. Adjustments are made for this in clinical HBOT chambers.
That said, it is not ALL about killing pathogens through mHBOT, but by enhancing immune system health so it can do the job it was meant to do on the pathogens.
Treating with mHBOT at your altitude of 6,500 ft. will be a relative change for your body, and depending on your state of health, may help you. But, as we discussed, I know of someone with Lyme who treated at 5300 feet with a home chamber and supplemental 02, and their condition did not change. My neurologist/HBOT specialist friend concurred that the altitude was likely too high for this amount of pressure and rendered the treatment less effective in this case.
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Phoiph
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quote:Originally posted by foxy loxy: Very interesting Dan. I wonder what simply diving without the o2 would do to the Babesia?
I think. Somewhere in the back of my head... that there was a study with mold. and that mild hyperbaric was very helpful but there was no supplemental oxygen.
posted
Bryan, I am sorry to hear that you are still struggling with babesia and your foot injury. I wanted to chime in as I am a relatively new diver so to speak but I seemingly have done just about every treatment out there- photons and the like. I can tell you that I had hesitation about the potential babesia concerns that others that have discussed as it was a big problem for me. Dr. H was okay with me trying mhbot as long as my babs was not flaring. He really did not tell me more than that. At that point, I was ready to give it a try because the rife program that had helped me so much began to be less effective. Additionally, the doctor out of Maryland I believe addressed this concern rather well and it allayed my fears- as well as Phoiph and the others that went before. Now, true, not everyone has had the same experience. I wish I had an answer for you. What I learned from Phoiph seemed to just ring true for me and make sense. Basically, getting the immune system on board. Something I know I lost sometime ago. Well, I think my first dive or so, I had a babs flare (1). And I have been diving for an hour for about three weeks with oxygen and have had no babs issues. Drenching sweats are my tell tale. Now I am using rife and herbs right now until I gain more ground with the mhbot. Have you thought about renting a system or talking to Phoiph about options to try out what you have discussed above- that way you wouldn't have to make a full investment. I would have to say that babs was probably my worst infection and so far so good. If anything, I am fatigued and I can feel that the oxygen gets to places I wasn't able to get to before as I am having some brain herxes etc and retracing but no real babs. That is my experience anyway. I will be thinking of you and you sure have come to a great spot for assistance with this modality. Godspeed.
Posts: 859 | From Southeast | Registered: Mar 2011
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Phoiph
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FoxyLoxy...
Thank you for making the point that there are a lot of variables involved, and that your were treating with "antibiotics and antimalarials in conjuction", with mHBOT, which may have affected your results. In observing and comparing people's reactions to mHBOT over time, it appears this can definitely be a factor to consider.
Also, if someone has been on pharmaceutical treatment for a long time, there are more layers of toxins in the body to remove. It may actually take more time to see results in this case than someone who is even more symptomatic, but has not been on a lot of medications, for example.
I'm not saying this is necessarily true in your case, but am agreeing with you that everyone brings a different history to their treatment.
Sometimes it takes some brainstorming and tweaking to discover anything that might be interfering with progress. If you decide at some point you wish to continue with mHBOT...please feel free to PM me so we can do that!
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
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Regarding using a chamber without supplemental 02...
Using pressure alone raises the oxygen level in the chamber slightly.
I personally know of someone who (at sea level), improved tremendously by diving twice per day, 1-2 hour sessions, for 1 year without supplemental 02.
She stopped diving at 1 year, and unfortunately relapsed after a very stressful time in her life. Once she started diving again (once a day for 1 hour with supplemental 02), she recovered.
It is unknown if her treatment would have been more effective had she treated the first time with supplemental 02. Regardless, I am quite sure that 1 year was too soon to quit diving in her case.
Bryan...in your case, where you are already at a disadvantage due to your altitude, I would strongly consider using supplemental 02. Even if you don't use the mask at first (and you wouldn't if you are going to increase your dose slowly in the beginning), you can still let the supplemental 02 flow into the chamber.
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
Bryan, yes, I am only treating with mHbot and dive daily. I'm not planning to discontinue until I'm totally symptom free for an extended period. It would be great to wean down a bit around the two year mark, but I might daily dive indefinitely.
Posts: 64 | From Washington | Registered: Aug 2015
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posted
For anyone who bought a Respiro chamber, can you please tell me the dimensions of the boxes that it was shipped in? I am buying a used one and the seller doesn't have any boxes. Thanks!
Posts: 123 | From Tahoe | Registered: Oct 2016
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posted
Hey Bryan- How about just asking him to take everything to UPS and have them pack it. The seller did that for me as its so important with the compressor in particular and in my case the air concentrator as it has to be upright etc. I got on the phone with the UPS person at the store that day to reiterate how important it was to get to me in working order. She understood and extra care was taken. I paid for this of course but it was worth it! Congratulations on this step! Welcome! Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Feeling it today! Worst herx yet. I am thankful to Mhbot - Phoiph and Peimomma for walking me through this. So thankful to know my immune system will finally be back in charge again. On an interesting note I am always hungry now and seem to be less chemically sensitive. I'll take it! Thank you all! Everone else doing okay??
Posts: 859 | From Southeast | Registered: Mar 2011
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Funny how we count the little steps like less sensitivity as such good newsš I was herxing for a couple of months, constantly feeling terrible, up in the night but then a few hours of energy here and there.
It's like seeing some sunbeams through the clouds. I was looking back at my journal from 2 years ago and reading over some of the terrible nights and days I had but also the small accomplishments.
I hope you are keeping a journal.
I love your updates, it brings back memories of my journey. You started almost 2 years behind me so I look forward to reading your posts in Feb 2019. It goes fastš
Posts: 238 | From AZ | Registered: Jan 2015
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posted
Awww... I have never needed a post so much.... Thank you, Peimomma.... I am indebted to you and to Phoiph. Your encouragement has truly been the light at the end of the tunnel even before I started this journey. I haven't been keeping a journal as well as I should but I will starting today. It is truly comforting to see that you had rough patches like this too....
It gives me hope. Thanks, Phoiph for warning me that rough waters were ahead. And, never letting your light diminish.
I will continue to update you all and Peimomma.... again, thank you.... I am SO GLAD you are where you are today and yes, I look forward to to my posts in Feb. 2019. Maybe we need to plan a trip... We could meet up with Phoiph and have lunch... Gosh, I hope your new job is going GREAT and that you are making your way back to where you were with the mhbot. You have accomplished so much.... it is no wonder that with such big changes, you may have needed more bonding time with your Respiro! Let me know how you are...
Phoiph... I hope you are doing well! Thank you for all you do for so many....
Kristine, Kgg and Jolley... How goes it?
Digby, are you still making strides? You too have been SUCH an encouragement to me....
Thank you all.... Posts: 859 | From Southeast | Registered: Mar 2011
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kgg
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Thanks for the encouragement to post, willbeatthis. I had a return of a low grade fever this week, that left me lowly motivated. Then yesterday the fever left.
I was able to attend a women's breakfast yesterday. I was able to interact with people. By the end I was really tired. I was wiped out for the rest of the day. But it was really nice to be out.
Posts: 1844 | From Maine | Registered: Jun 2004
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I'm loving my job and still holding up beautifully. I have continued treatment 7 days a week to give my body the extra boost as it adjusts to the busy schedule. My work days are 10 hours with commute, lunch and actual work time. I start with a dive at 0430 then get ready and off to work. I arrive home at 5:00, eat dinner and off to the gym I go usually arriving home by 7:00 pm for a little relax time, shower and off to bed by 8:30.
I walk about 2 miles during work split between breaks and my lunch to get fresh air and O2 pumping. In total I walk between 5-7 miles a day.
I try to get 7-8 hours of sleep and a little more on weekends.
When you keep a regular daily journal it will encourage you as you continue to see on paper those small breakthroughs that keep pushing you toward your goal.
Gentle hugs mHBOTers
Posts: 238 | From AZ | Registered: Jan 2015
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posted
Kgg- It is great to hear from you and that your fever is gone. Also, that you got to go out to the women's breakfast. I will pray that you keep improving. Thanks for posting. I hope your son is continuing to respond well too. It's a blessing to find a natural treatment to work- as I hope too to never swallow the yellow paint again- that Mepron is just awful. That is really when I became super chemically sensitive- had trouble finding a car I could drive. Thankfully that's much improved now.
Oh- Rock Star- Peimomma! Wowser! You really know how to inspire! You are doing fantastic! Five to 7 miles a day! That is perfectly awesome and then putting in a full day with a commute. Well, my hat is off as you've worked so hard to get to this place! I know your husband must be so happy too!
Hey Jolley- how are you? And Haley, is the grounding still helping you?!
Has anyone watched the Thyroid Secret you can watch for free right now- each day is a new topic online. You can google it. It's been very informative- until 6 pm today's it's on chemicals - very interesting with good detox info. Just wanted to pass this on!
Keep diving!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
I'm excited to report that I am getting a used respiro to try to finish off this foot business and the havoc it has caused.
The seller says it doesn't come with the part that goes around the concentrator hose in the hole in the chamber to keep from letting air leak out between the hose and the chamber. Maybe this is called a hookup kit? Can people share what they use? Thank you.
Posts: 123 | From Tahoe | Registered: Oct 2016
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Phoiph
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Bryan...
There is a "hyperbaric hook-up kit" made and sold by the concentrator vendor I mentioned.
It consists of tubing with a brass fitting that screws onto your chamber 02 port. There is a piece of electrical tape wrapped around the tubing to act as a "cork" to keep it from sliding out.
If your chamber doesn't already come with this, it can be ordered separately...but let's see what it comes with first, so you don't buy something you don't need...
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
Thanks phoiph. She told me expressley that it does no come with that part. So I need to buy one. What part number to I reference when contacting? And is it the same gentleman who you sent me to for the concentrator info? Sorry for typos typing on phone
Posts: 123 | From Tahoe | Registered: Oct 2016
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kgg
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Kudos, Bryan!
Posts: 1844 | From Maine | Registered: Jun 2004
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Phoiph
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Bryan...
Yes...if you look back on the attachment I sent you re the concentrator, all the info on the hook-up kit is there, including pricing. If you need new masks, you can order them at the same time.
If you need me to resend the attachment, let me know.
Posts: 2072 | From Earth | Registered: Jul 2013
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Haley
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posted
This is my latest theory. - mHBOT + not eating = success.
I eat healthful foods, but have noticed lately that if I dont eat at all I feel much better.
I thought about Phoiphs journey and wondered if that may have helped her to turn a corner.
I am back in my chamber and will experiment with bone broth only for a few days, then eat very little food for a while. I will let everyone know how it goes.
Welcome to the group Bryan.
Posts: 2232 | From USA | Registered: Aug 2009
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kgg
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Oh Haley. I'm so sorry that food seems to not be helpful right now. I thought I was eating really healthy paleo type diet, only to have my IBS symptoms flare on me. Eggs for breakfast. A big salad for lunch. Dinner was meat and veggies. Snacks were nuts and fresh berries. Both my naturopath and PCP mentioned the FODMAP diet. It is not an easy diet. It eliminates onions and garlic right off. (Of course my homemade bone broth had both onion and garlic in it!!). Almost everything I ate that was savory had those in it! Plus the type of nuts I was eating were high FODMAP. I found out my "healthy" diet was not healthy for me!
Now, my constant nausea is gone. My IBS-D is much improved. I can leave the house without my immodium. ;-) It helps people with chronic constipation and reflux. The low FODMAP diet is from the Monash University of Australia. FODMAP stands for Fermentable Oligo- Di- and Monosaccharides and Polyols. Examples of FODMAPs are lactose, fructose, sorbitol, mannitol, fructooligosaccharides, and galactooligosaccharides.
It is not a diet to embark on lightly. Many people see a dietitian that is FODMAP certified to navigate. But it has been very helpful for me. I like this website/blog for info: https://www.alittlebityummy.com/
I am concerned about you diving while eating very little food. What are the symptoms you are dealing with?
Posts: 1844 | From Maine | Registered: Jun 2004
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posted
Willbeatthis, I had a bit of a set back after getting a virus over the New Year Holiday. So, I've been tanking for well over 2 years and I can still have flares.
However, I am a bit unusual in that I've struggled with this in some form or another since 1974. Now, I know that I've said I've been sick since 1991 but that was relevant to this forum. Prior to that I was Dxed with CFIDS/FM.
So what I am trying to say is that even after all this time I had a 2 month flare but I am now back to where I was the end of last year.
And even during the flare I was able to walk and work around the yard. Things I couldn't do at all prior to HBOT.
The healing continues!
Posts: 564 | From NW Arkansas | Registered: May 2003
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posted
Haley, I have been on a ketogenic diet with intermittent fasting, since just before starting HBOT.
I coach people on the diet and I am convinced that the combination of keto adaptation and fasting can significantly improve the symptom picture for people with Lyme. It improves immune function and reduces inflammation systemically.
I have tried many diets over the years from raw food vegan to FODMAP, including macrobiotic and adjustments based on food allergy/sensitivity testing and this is the only diet that helped my condition. Plus I no longer have pre-diabetes or hypercholesteremia, all with no drugs.
Posts: 564 | From NW Arkansas | Registered: May 2003
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Haley
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Thanks for your concern kgg. I appreciate it and am so happy that you are feeling better. I am familiar with most eating plans, including FODMAPs. It is important to stick with small portions with FODMAPS, which supports my theory that small portions may be better. This is just a theory for now. http://blog.katescarlata.com/2015/04/28/portion-size-matters-on-the-low-fodmap-diet/
Digby, I am familiar with that plan also. I have not done the intermittent fasting. For how long do you fast? I really do want to try it, but don't have much fat on my body, so will probably get very skinny.
[ 03-06-2017, 09:39 PM: Message edited by: Haley ]
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Haley, I lost ~ 20 lbs of fat and then stabilized. I've since put on some muscle, now that I can exercise if I am careful.
I was water fasting for 2 consecutive days every couple of months. Now I do a 24 hour fast (these are very easy when you are keto adapted) once every week or a bone broth fast for 2 days every couple of months.
I want to do longer fasts but I think it is important to respect the hair trigger stress response that is so common in Lyme Disease.
Posts: 564 | From NW Arkansas | Registered: May 2003
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Haley
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Interesting Digby, do you think you were less symptomatic on your water fast days? What is hair trigger stress response?
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Water fast days vary wildly. Sometimes I feel wonderful and other times very sick. I don't know if it is due to a herx or a "cleansing" response.
By hair trigger stress response I mean the Amygdala/Adrenal/Cortisol system is often easily triggered in PWL, regardless of the stimulus.
For example it can be a scent, a food intolerance, too much noise or an emotional issue that would be annoying in the average person but becomes a major stress response in a PWL.
Posts: 564 | From NW Arkansas | Registered: May 2003
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posted
Goodness! Thank you all for your posts! I'd buy stock in this thread if I could. It sure helps to hear how everyone is doing and the tweaks that can be made with diets.
This information is super! Kgg-so glad you have found a diet that works for you!
Haley, I look forward to how your new tweak works out... you have always inspired me to never give up! I am thinking of you!
And, Digby- wow- you are an amazing source of information! I am glad even with flares you are much improved. I basically do a protein heavy diet but have been interested in going ketogenic. Wouldn't be that much of a leap.
Kudos, Bryan! I'm honored to be starting at about the same time as you! I know you have to be excited about your Respiro!
Thinking of this whole team! And to Phoiph and Peimomma... Thank you as always! Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Does anyone notice that it is easier to equalize their ears when their head is in an upright position compared to laying down? Maybe it's because I've been a bit congested, but I find it much easier and less painful to be upright.
This presents a bit of a challenge in the Respiro, though it is doable.
Posts: 123 | From Tahoe | Registered: Oct 2016
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Phoiph
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posted
One of our mHBOT friends here, who has ear issues, posted that the "Cobra" yoga pose helps her clear her ears while inflating.
Just an important reminder that if ear pain is experienced during inflation (pressure is normal as long as it can be cleared), then the pressure valve should immediately be turned toward "deflation" to a point where there is no pain or discomfort...
Never push through ear pain!
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
I went for the hyperbaric treatment today for the first time at 2x ATA for 90 minutes 100% oxygen. I am not experiencing any herx, instead I feel better. Much less pain, more energy, and clearer brain.
As matter of fact, every time I used oxygen mask, I felt better.
What does it mean? What organisms does oxygen suppress?
Has anybody experienced immediate relief of symptoms? Like within hours?
Posts: 41 | From NJ | Registered: Apr 2015
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On fasting/eating little, I once was so sick no matter what I did, I just decided to stop eating. Everyday, I drank some organic veggie juicy, like two glasses per day for 3 days. I also did a liver flush at the end.
I felt like a new person, like I have never been sick before.
As a result, I try to do a 2-3 fasting every month or two.
Posts: 41 | From NJ | Registered: Apr 2015
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On fasting/eating little, I once was so sick no matter what I did, I just decided to stop eating. Everyday, I drank some organic veggie juicy, like two glasses per day for 3 days. I also did a liver flush at the end.
I felt like a new person, like I have never been sick before. It didn't last more than a week as I started eating more.
As a result, I try to do a 2-3 day fasting every month or two.
Posts: 41 | From NJ | Registered: Apr 2015
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posted
Rainboworiver I am one of the few that started treatment at full pressure with O2 for a full hour since my first treatment 785 dives ago. I began feeling relief and thought if one dive is good, 2 must be better so for 3 weeks I dove 2 times per day for 1 hour until I hit the wall at about 60 dives and then it was herx for 3-4 months.
I had a good detox protocol set up that worked for me to clear toxins and press on each day with one hour treatments but it is pretty intense. I'm a person that pushes the limits to see how much my body can handle (probably the years in the military that warped my thinkingš) I wouldn't recommend it if you have children, a job or other commitments because you will hit the wall and your symptoms will intensify. I had none of the above and a husband that was very supportive and did a great job of helping when I was going through the worst part of the treating.
Phoiph's famous quote "one step forward and 2 steps back". It's a long journey, 2 years and counting for me but worth all the ups and downs along the way.
Posts: 238 | From AZ | Registered: Jan 2015
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posted
Most of you know I'm back to work and unfortunately they are pushing me to get immunizations. I have sent in a letter from my doctor for an exemption but it doesn't seem to be enough to satisfy the GOV standards.
I'm hoping someone might have some good links to articles or studies on vaccines and immune compromised patients or supporting documentation that LD and vaccines are not recommended.
I'm present my labs today with my H&P but you all know how it is trying to educate the uneducated medical community about LD and all our issues.
Thank you in advance
Posts: 238 | From AZ | Registered: Jan 2015
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Phoiph
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rainboworiver...
I know we are going to try to connect by phone this coming week, but after reading your post I wanted to make sure you are aware that if you are diving at 2.0 ATA at 90 minutes with 100% medical grade 02, you are doing HBOT, not mHBOT.
IMO, that is a very high pressure and length of session, especially to start, when you are dealing a with chronic neurological illness like Lyme.
My suggestion is to ask your doctor and the clinic if you can dive at 1.3-1.5 ATA, starting with less time in the chamber, working up slowly.
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
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Peimomma...
Sorry to hear you're being pressured about immunizations at work.
I would contact/Google D.A.N.(Defeat Autism Now) for research and back-up literature on vaccinations.
I will also try to find some for you.
(P.S...Hopefully the journey is "TWO steps forward..." )
Posts: 2072 | From Earth | Registered: Jul 2013
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kgg
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posted
Peimomma, I have a nurse friend who may be able to give you medical articles. She is on FB. If you are willing to PM me your email, I may be able to connect you two.
Posts: 1844 | From Maine | Registered: Jun 2004
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Haley
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posted
Thanks for the feedback rainbow š I'm going to give it a try
Posts: 2232 | From USA | Registered: Aug 2009
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Peimomma- I am sure thinking of you! Some great suggestions have been given here. I know what you are dealing with is stressful but I am confident you will get the information you need. I will look around for you as well!
Welcome Rainbow!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Hi Digby, Do you know of a good book on ketogenic dieting\fasting in terms of boosting the immune system? I would love to read it-seems I feel better too with less food when I'm not ravenous from mhbot. I've never been so hungry. Thank you!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Does anyone know if mHBOT is ok to use if you have a CBS mutation/upregulation (plus BHMT mutations) that has led to sulfur intolerance and sluggish phase II liver detox?
IV Glutathione (also Bactrim, milk thistle, DSMO, DMPS, high sulfur foods) made me feel much worse, so at least now I know why (CBS). Doesnāt mHBOT increase glutathione production? If so, shouldnāt I hold off on trying mHBOT until I am further along in treating CBS mutation (just started molybdenum glycinate) and liver detox (starting castor oil for now)?
A little history --
Bullseye 2010, diagnosed lyme/bart 2011 by PCP (although most likely bitten 1st time 30 yrs ago), diagnosed clinically w/babesia by LLMD 2014.
Iāve been on combination Rx abx as well as few natural ones for much of the last 6 years (one year break), initially w/PCP then with LLMD, both attempting to follow Burrascano/ILADS guidelines, but having to try other combos/alternatives because of my inability to tolerate so many abx. I also refuse IV abx as well as some orals with serious potential side effects (like Levaquin/Cipro).
To this day I have not been able to tolerate the ārightā combination of antibiotics at the right doses for the right length of time, so although I have treated for a long time, I have essentially undertreated in my opinion. Just did Advanced Labs lyme culture test, waiting on results.
I finally gave up on using long term Rx abx last year once my GI symptoms got worse--have SIBO/dysbiosis, now leaky gut (starting L-Glutamine powder), possibly gastroparesisāthanks lyme/bart (having GI workup). No doubt all the Rx abx are partly to blame.
May have ANS testing for vagus nerve. Cardiologist I saw last year for chest pain, palps, SOB felt vagus nerve could be reason for heart and GI symptoms. Now seeing GI doc who thinks probable motility issue (so vagus nerve).
My diet is so limited there are barely any foods left: gluten-free & dairy-free (both pre-lyme diagnosis), now egg-free, sugar-free, low histamine (mast cell activation), low FODMAP (SIBO), now low sulfurā¦itās ridiculous! How Iāve gained 30 pounds in the last 6 years I do not know ā¹ I know many of you can relate.
Iāve been working w/excellent lyme literate herbalist to help get on core Buhner protocol for all 3 infections. But unfortunately Iām also having trouble even tolerating many of the detox/support herbs needed before getting to core protocols/killing infections (other than cryptolepis which I seem to tolerate and have been on since 2015).
My gut just canāt tolerate so many things. And Iām fed up with so many pills, tinctures, etc. making me feel so much worse (way more than just GI symptoms). I need to simplify my treatment plan.
So Iām stuckā¦..Needing to heal my gut and address CBS and liver detox, but also treat infections as naturally as possible. Iām considering one or more of the following: mHBOT, UBI/UVLRx, RIFE, hopefully some more herbs eventually.
Can someone tell me whether or not itās ok to use mHBOT with CBS upregulation since increasing glutathione has made me feel worse? Should I treat the CBS mutation/liver detox for a certain length of time first? How long?
Iām trying to decide whether or not I should try my first mHBOT session yet (20 minutes max with no supplemental 02). Iām claustrophobic but need to just get over it. My PCP has an Oxyhealth Vitaeris 320 that I can try for $100/session, or can rent for $1,200/month, which is better than buying my own right away.
PCP also offers UBI treatments, and has one chronic lyme/bart patient who improved a lot with a combo of mHBOT and UBI. There is also a local doctor (not mine) who has the new UVLRx but donāt really want to add yet another doctor to the list.
I appreciate any advice. Thanks.
Posts: 26 | From Pennsylvania | Registered: Apr 2011
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
In this pdf (http://www.drhirani.com/Assets/HBOTIntro.pdf) it states that mHBO increases glutathione by 15% for 24 hours. I bet any IV or oral supplementation of glutathione is higher than that level, but I cant find documentation to verify that. But I would think that mHBO would be a gentler introduction of glutathione to your system. I bet Phioph has those stats. I do know that when I tried IV glutathione push. I did not feel better afterwards. So much so that I did not pursue that treatment again. mHBO did not do that to me.
I hear you about being fed up with pills, tinctures etc. That is why I bought our chamber. I knew that I could not take antibiotics for the rest of my life. It has proved to be invaluable to my health. It has been as beneficial as IV antibiotics (that I have done twice for months at a time).
But as far as your specific question about the CBS mutation and how mHBO impacts that. I am not sure it can be answered. MTHFR science is in its infancy. To know how it affects mHBO treatment has probably not been studied.
The mantra here is with mHBO treatment is to start low, go slow. That way it is tolerated better. Some us started that way. Inflating the chamber for 10 minutes, 20 minutes without oxygen, then 10 minutes for decompression/deflating. Not increasing the time until it is tolerated. There is no extra points earned for pushing too hard.
I definitely think that this mode of treatment worth consideration.
Posts: 1844 | From Maine | Registered: Jun 2004
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I wanted to be as transparent as possible so I did videos as I was treating over the last 24 months. I also kept a journal to refer back to as I went day by day and it definitely helped me see the gains I made over time.
Kgg I sent you a message....or maybe not? Trying to forgive out who's who on FB and this page.
Thanks to those for the good leads. I took my lab reports in and an explosive of what they mean to Lyme patients. I look as this as an opportunity to educate the medical community that is still oblivious to what we endure. I'm very thankful that both of my bosses are extremely supportive of the exemption for me so they are willing to plead my case. Regardless I won't take the 4 vaccines they are requiring.
I'll keep you postedšāļøšµ
Posts: 238 | From AZ | Registered: Jan 2015
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