LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Mild Hyperbaric Treatment (Page 39)

 - UBBFriend: Email this page to someone!   This topic comprises 89 pages: 1  2  3  ...  36  37  38  39  40  41  42  ...  87  88  89   
Author Topic: Mild Hyperbaric Treatment
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
willbeatthis, I had the same problem with my Vitaeris and used a rubber band to keep it away from the valve.
Posts: 550 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
You all rock! Glad it's an easy fix! Sure tells you none of us want to be without our chamber!

Thanks,Phoiph and Digby! [Smile]

Posts: 859 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Ed1717
Junior Member
Member # 50143

Icon 1 posted      Profile for Ed1717     Send New Private Message       Edit/Delete Post   Reply With Quote 
What a wonderful and informational thread. I too was one of those people who went years without knowing what was going on with my body, and only recently had a diagnosis after 16 years. Many of the stories here are like revisiting my own journey.

I have a question about a used Vitaeris that I am considering buying from a clinic that I use. The oxygen concentrator (to be included in the purchase) is connected directly to the compressor, so that the O2 it supplies is used first to pressurize the capsule, with the remaining intake of air required by the compressor supplied by room air. As a result, I have no idea what the O2 concentration would be in the capsule. The concentrator is only 6LPM, and although I'm not sure of its output pressure, it shouldn't matter since it is supplied to the compressor as an input prior to pressurization. So my question is, is there any chance that it might be at a high enough concentration that I would not have to buy another concentrator to supplement with a mask? If not, is there any risk of too much oxygen (thinking along the lines of toxicity) from having two concentrators running (one into the compressor, and one to a mask as recommended in this thread)? My practitioner doesn't think I should alter the current setup, as that is the way that it was medically approved and received from the vendor.
Thanks for any help!

Here is a good explanation as to why you only have to worry about your ears when pressurizing the capsule (keep in mind, pressurizing the capsule is analogous to descending in an airplane, and depressurizing the capsule is analogous to ascending in an airplane):

http://www.aviationdoc.com/articles/Ear%20Problems%20and%20Flying.pdf

Posts: 3 | From Northwest | Registered: Apr 2017  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
In my opinion there is no way you will get sufficient Oxygen without a mask. Why is it hooked up that way. And even if it was not, 6 LPM is to low. Can it be unhooked as compressors certainly do not need. How old is it he chamber?
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ed1717, I've never heard of hooking up the O2 like that. The hard shell chambers use pure O2 to pressurize, so you are breathing 100% O2.

I wouldn't know how to calculate the amount of O2 that you would have in your set up without an O2 meter, but I would guess it would be much lower than with the standard set up.

Personally, I would leave it and add a proper 10 LPM concentrator hooked up to a mask. Obviously I am not concerned with O2 toxicity at these levels or for the limited time we spend in the chamber.

Posts: 550 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
Ed1717
Junior Member
Member # 50143

Icon 1 posted      Profile for Ed1717     Send New Private Message       Edit/Delete Post   Reply With Quote 
The chamber is 5 years old. Hooking it up that way actually makes a lot of sense; as Phoiph has explained, you need sufficient pressure output from your concentrator to overcome the pressure of the chamber. This kind of setup completely eliminates that issue, as the oxygen is supplied to the compressor as an input, so it will readily use all the oxygen provided and increase the normal oxygen concentration of the chamber as opposed to just filling it with compressed room air (which only slightly elevates the oxygen concentration in the chamber). The big question is exactly what would the oxygen concentration be, and unfortunately, I think the only way to find that out is going to be with one of those expensive oxygen meters. I'm not sure if I can unhook it, as there is no cap to block off the input, but it might possible as it would likely only result in room air being sucked in from 2 ports provided the one way valve is upstream of it.
Posts: 3 | From Northwest | Registered: Apr 2017  |  IP: Logged | Report this post to a Moderator
BryanRosner1
LymeNet Contributor
Member # 49076

Icon 1 posted      Profile for BryanRosner1     Send New Private Message       Edit/Delete Post   Reply With Quote 
ED1717, if you read back a few pages you'll see that a few of us - including myself - have purchased oxygen sensors, so your question is easy to answer.

The air in my house while not doing any treatment is about 17% o2.

The air in my chamber NOT near the mask, but with o2 coming in, is about 30%.

But the air coming out of the mask is about 90%.

Therefore, I think you'd lose most of the benefit if you aren't using the mask.

I personally bought my o2 sensor because I was sick of "relying" on some repair shop to make sure my concentrator was working, I wanted to test it myself.

Posts: 123 | From Tahoe | Registered: Oct 2016  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am not sure that there is no back pressure on the O2 compressor even if fed through chamber compression. One thing I know is with 10LPM and a mask you feel the 92% O2 coming to breath.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Ed1717~

Welcome to the thread, and thank you for sharing the interesting aviation link...

It is my understanding that it is possible to hook up a concentrator directly through the compressor, however, IMO it is not the best option.

As you mention, it is true that hooking it up this way may allow you to use a lower PSI concentrator with your chamber without damage from backpressure, but considering a 6 LPM 02 flow mixed with compressed room air, I would guess-timate 26-27% oxygen concentration in your chamber.

While this 02 percentage is higher than compressed air alone, it is still less than half of what you would receive via mask with a more adequate concentrator, and may or may not be a therapeutic level for you. Personally, I wouldn't want to invest the extended time to find out.

There is no problem unhooking the concentrator from the compressor; the tubing is likely fed into one of the ambient air intake filters, and will return to taking in room air once you remove the tubing (do not cap it).

My suggestion is, if you decide to buy the Vitaeris (and there are inquiries that should be made about any used chamber before you do), is to definitely not try to hook up an additional concentrator, but to sell the 6LPM concentrator and purchase one that is more powerful and adequate for use with the chamber, and feed the 02 tubing (with mask) directly through the chamber port the traditional way.

I don't sell equipment, but if you like, I can help you ask questions about the used Vitaeris before you buy it, and provide you with resources for other options if you are interested. I also have a good resource for oxygen concentrators.

Also, just a FYI about oxygen sensors...I have been advised that they require additional calibration when used under pressure to give an accurate reading...(OR you must divide the reading by the ATA). Bryan...what does your manufacturer say?

Posts: 1981 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
This is why Phoiph is the "go to" person of MBOT and such a blessing to the community.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
Awwww, thank you, jcarlnew...

Let's not forget that you started this thread!

Posts: 1981 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Ed1717
Junior Member
Member # 50143

Icon 1 posted      Profile for Ed1717     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks everybody! Phoiph, I sent you a PM regarding the info you mentioned.
Posts: 3 | From Northwest | Registered: Apr 2017  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well, said, jcarlnew!

Well, I am bummed. My 11 year old Vitaeris chamber burst a zipper today. I was 4 minutes into inflating when it gave with a whoosh.

I am two weeks post op from an appendectomy and was so glad to have my chamber to heal!

Now to weigh my options. And figure out what to do next. Fix the zipper or call it good with this chamber and use OxyHealth's exchange program. Will let you know what we decide.

Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh goodness-KGG! So sorry to hear this! Please keep us posted. Wishing you a speedy recovery as well!
Posts: 859 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
kgg, In regards to Oxyhealth exchange offer, I have reason to believe you can negotiate with them. I went the repair route on 2 recently, but they were windows, not zipper. In addition, I still am keeping my eye on the Newtowne military discount chamber as it is cheaper for a new chamber than their exchange program. But of course their is not as many years of experience with the Newtowne, albeit a couple have gone that route.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you, Jcarlnew. That is food for thought. I had not considered changing brands. I definitely do not want a Summit-to-Sea. I wonder if the Newtowne has a strong off gassing smell? Any one here have a Newtowne?

I would not qualify for the military discount. I also wonder how much the dual compressor is? Hmmm will be making calls on Monday.

Thanks!

Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
They will send you sample materials. The military discount is very expansive, like even great, great grandparent.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
They will send you sample materials. The military discount is very expansive, like even great, great grandparent.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Really? Thanks for letting me know.
Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
Happy Easter Gang! Yes, thais great info Jcarl! Thinking of you KGG- no one wants to be without their chamber. Hope it will be speedy! Hugs!
Posts: 859 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you, Willbeatthis. (Still love that name!) Lots of phone calls to be made today.
Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
We decided to go with a Newtowne chamber. After they received my physician's prescription this afternoon, they shipped it right out.

We have had a lot of extra expenses since the first of the year. The bottom line was I could not justify spending the extra money with the exchange when Newtowne was so much less. I have peace about that.

My main concern was with the off gassing smell. But I was going to deal with that with a new chamber from OxyHealth as well.

I can't wait to get back to diving again.

Editing to say, thank you Jcarlnew for mentioning Newtowne to me! Much appreciated

Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
HW88
LymeNet Contributor
Member # 48309

Icon 1 posted      Profile for HW88     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's been a while since I checked in. willbeatthis... I just read your post. THANK you for allowing yourself as another walk through contact. I can't express my love for everyone on this site that I don't know personally, but have given so much to help me... I can't express my gratitude for not being alone in this.

OK, so on to my question. Anyone with experience with nertowne chambers? Good/Bad. I think that is the direction I will go as well kgg. Same reasons.

Thanks everyone!!!

Posts: 798 | From Cincinnati, OH | Registered: Jul 2016  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
HW88, I asked on the FB group mainly about off gassing. But the two Newtowne owners that responded said they were happy with their chambers and with the customer service there.

I would be glad to give a comparison with the Vitaeris once I get my unit set up.

Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
kgg, looking forward to your evaluation of the Newtowne Chamber. Thanks.
Posts: 550 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
reminder
Member
Member # 48228

Icon 1 posted      Profile for reminder   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Check in every now and then....mhbot is starting to work for me...7 days feeling semi normal is amazing to me.

I go in and out....fallback and push foward,however,as of late noticing another level of wellness and words can't describe the sensation.

Not getting my hopes up (happened before) staying positive and just letting go.....as for brands,will review a couple brands (on my 3rd now) very soon....just giving it that break in period for an accurate reply.

Keep diving....next goal....socializing again for the first time in over 3 years.

Well wishes to all here.

Thanks Phioph

--------------------
Chronic Lyme

Posts: 36 | From Florida | Registered: Jun 2016  |  IP: Logged | Report this post to a Moderator
HW88
LymeNet Contributor
Member # 48309

Icon 1 posted      Profile for HW88     Send New Private Message       Edit/Delete Post   Reply With Quote 
kgg I would love a comparison. I'm trying to 'try it out' at a local dr. office first to make sure I can handle the pressure and then I'm diving in! [Smile]

Hoping for some good gains.

reminder, what dive number are you on?

Posts: 798 | From Cincinnati, OH | Registered: Jul 2016  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Honestly, I would have to do some figuring. I am 14 months into treatment. I missed some time this past Fall and then recently with my surgery. So I don't have a true dive # off the top of my head.

I hope you are able to give it a try locally. The only thing that is of concern is that some want you to inflate faster than many of us started at. I still inflate taking 10 minutes. Please have a discussion with them about how fast they want you to inflate the chamber and what you are comfortable with.

Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
reminder
Member
Member # 48228

Icon 1 posted      Profile for reminder   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
HW88...Dive # 345,however,I stopped all meds approx 6 months ago.

I rarely miss a day (5 since starting).

Admitted skeptic from the start,until I started thinking more about "healing" than destroying...if that makes sense.

Learned patience....no quick fix with this situation.

The more info I read on diving,couldn't wait to get started.

I wish you the best on your decision and future updates on progress.

Reminder

--------------------
Chronic Lyme

Posts: 36 | From Florida | Registered: Jun 2016  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
KGG did you get your Newtowne?
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
This is so exciting KGG! Keep us all posted!

I will tell you all I am in one of those two steps back stages. I would say my Bart is really rearing its head right now and I can feel it most in my feet with pain and neuropathy. Not horrible but definitely letting me know some work is being done.

I am grateful too so much to this group for being so supportive as we navigate our way with mhbot and Phoiph... YOU ARE AMAZING!

My gratitude is pretty much endless...

Soon I will be into my 4th month-- gosh, how time flies. I do my best not to miss a day and thankfully due to a cold I only missed two days.

KGG, I cannot wait to hear about your new chamber! Looking forward to your continued success!

Thanks, Remember, for keeping us updated! It is always so encouraging to hear of progress!

HW88 -- I hope your time at the clinic is fruitful and do let us all know how we can help... we are HERE!

HUGS to all!

PEIMOMMA- I miss you! Any updates!??? Phoiph, I hope all is going well in your beautiful life.... Thank you for your service to us all! [group hug]

Posts: 859 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bryan, how is your leg?! I am crossing my fingers and praying.... much improved!
Posts: 859 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, Jcarlnew, the Newtowne arrived Thursday. Since Thursdays are crazy busy days for us, we set it up Friday. I was diving by 1PM. =)

I have no regrets buying from a different company. Although it is different, obviously. So all of my automatic motions are not so automatic. But awkward. I know by the end of next week I will be fine with it all.

I bought the 34" military chamber. So it is 2" larger than the Vitaeris. The extra room will not hurt my son's feelings when he starts diving. He has shoulders that require extra room.

There are less windows in the Newtowne. The one I bought has two. The Vitaeris has 5. But I don't really miss the windows. I turned the chamber towards my room windows and have a light on at the end and it is plenty bright in the chamber.

My husband prefers the brass fittings and the connections over the ones used with the Vitaeris. He thinks they will last longer as they are brass and the hoses are connected with c clamps instead of plastic connections. We ordered it on Tuesday before 2PM and we received it on Thursday by UPS. That is pretty fast!

The Newtowne has an external frame vs. an internal frame with the Vitaeris. While not very attractive to look at, I actually prefer the external frame as I was the one that had to take the internal frame out when we went on an RV trip last Fall. Not as easy feat. Where as with the Newtown, you just slip the D rings out of the connection and go. They say you can set it up on a bed and not use the outside frame. Which is what I will do when we go in the RV this summer.

We bought two compressors as it is a larger chamber. And that was what I was used to using with the Vitaeris. We did not ask if we needed two, just requested two. I mentioned to my husband that we should have asked. And he said he was glad we had two. If something should happen to one I can still dive while the broken one was being fixed.

The Newtowne has 3 zippers. The Vitaeris has two with 2 rubber gaskets between the zippers. That seems to be the thing that will challenge me the most. The middle zipper is the air lock zipper and the most important one to be tucked into a horseshoe shaped area at the end of the zipper. That takes moderate strength. I do not have a lot of arm strength and so far have needed my husband to get in the right place so it seals. Otherwise the zippers are easy to move. I typically dive early in the morning before anyone is up. So I hope at some point I will get the hang of it so I can dive without assistance.

My ears adjust differently to the inflation and decompression. But that is a user adjustment. I knew automatically where to turn the release valve and when, according to how my ears were doing. With the Newtowne it is a brass lever that you turn. So I just need to get used to where to turn it to while I am adjusting the pressure.

Finally, yes, there is a new smell. I asked about this before buying. She said that they lay the material out and air it for 2 weeks before putting it together. It is not offensive or very strong. I will try to speed the process by cleaning it with water and H2O2 for a while. I knew with both chambers that I would be dealing with the new smell. Thankfully, I don't seem to react to it. So I will just live with it until it airs out.

Bottom line? I am happy with this purchase so far. I will compare it to buying a Cadillac vs a Mom van. Well, I have never bought new expensive cars and have always been very comfortable in a Mom van. My bank account is happy. And I am back diving very quickly. That makes me a happy camper. =)

Thanks for reading all of that!

[ 04-22-2017, 01:45 PM: Message edited by: kgg ]

Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
kgg...

Thanks for sharing this great, detailed information on the Newtowne.

Since you will soon have had experience with both manufacturers, your opinion is very valuable...so please keep us informed!

Posts: 1981 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Jcarlnew, my husband specifically requested that I thank you from him about mentioning the Newtowne chambers. He is very happy with it and says thank you!
Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
Your welcome. I hope you like it as well as your husband. As you have clearly detailed there are going to be differences between a $5K and $20K chamber. I had to have both of my 2006 Oxyhealth chambers repaired for windows this year at $1000 per crack. And guess what, when they repair, they just cover the side windows. The technician says that to many windows raise the risk for window failure. Don't know how many windows the new one comes with. You will be a great assistance to this community if you report that people can get into MBOT at a much lower price point. I email with Phoiph quite regular as I joke I started the thread but she does all the work. I know she wants more experiences with Newtowne before she can recommend, but everybody I know so far has been happy.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
My OxyHealth Vitaeris was 2006. Wonder if that was a bad year? ;-)

Just covering the windows is not my idea of "repair".

I will definitely keep people updated on the Newtowne.

Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
kgg.... Wow, great review! Thanks for taking the time and effort to write that up.
Posts: 550 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
They repaired the big and end windows
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
So they only patched 2 out of the five and repaired the other 3. KGG you do know that Oxyhealth went to one compressor, must have been sometime in 2006 as one of mine has 2 and one has one. I talked to Newtowne about this and they said using one is just as fast as our 2 compressor Oxyhealth. Other than backup this surprises me. Do you have to throttle back because of rapid compression? Thanks for great info.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi KGG~ I am beyond happy for you. Thank you for all that you have shared. You are a wonderful contributor to this group!

Please keep us posted! No doubt getting a chamber at a more affordable price is huge.

Honestly, had I not found my chamber - Solace- on Let Go and with lots of guidance from Phoiph, I am not sure I would be diving now. My husband was a sweetheart and gave it to me for my birthday. Best present I have ever received. I love hearing your success Reminder. Time for bed but I wanted to say.... HOORAY, KGG and Reminder.... Keep us posted and thank you as always for the support! Go team Go!

Posts: 859 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Jcarlnew, perhaps we really should have discussed the need for two compressors. I don't think they charged us more for the two. My husband was the one who was on the phone ordering it so I don't know exactly how the conversation went.

Yes, I throttle back because I find that my ears like 10 minutes opposed to five. Initially, I used to inflate over 5 minutes but it caused my balance to be off. And I really did not need additional help on that. =/ When I went to 10 minutes the imbalance seemed to resolve.

Willbeatthis, I love your enthusiasm. =) Thanks

Reminder, thanks for the update. I like that...think of healing instead of destroying. Think I will adopt that as well. Thanks!

Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by jcarlnew:
...I know she wants more experiences with Newtowne before she can recommend, but everybody I know so far has been happy.

The biggest obstacle that I face in helping people with mHBOT is cost/affordability, so I truly hope Newtowne will stand the test of time. So far, so good.

It will be difficult to compare until we know at what general age the Newtowne chambers (which have been in regular service) begin to need repairs, the cost, and how many of those repairs are possible before the life of the chamber is expired. All of that information will be helpful to weigh the pros and cons in the future.

Again, I am very hopeful that Newtowne is a more affordable option, as cost is a huge deterrent for many who could be benefitting from mHBOT. This is why I so appreciate those that are moving forward on it and reporting back to us over time.

Regarding the 2006 Oxyhealth chambers needing repair (I also had a 2007 that also needed window replacement)... I agree that repairs are overpriced, a huge inconvenience, and the warranty should be longer. That said, would we expect an 11 year old vehicle never to need service, parts, or repair?

Posts: 1981 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
Awesome short video: "Oxygen's Surprisingly Complex Journey Throughout Your Body"

http://ed.ted.com/lessons/oxygen-s-surprisingly-complex-journey-through-your-body-enda-butler

After watching, one can better understand how mHBOT is crucial to this this process for those who's systems are impaired through chronic illness, etc...

Posts: 1981 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
jcarlnew
Member
Member # 45378

Icon 1 posted      Profile for jcarlnew     Send New Private Message       Edit/Delete Post   Reply With Quote 
Totally agree with Phoiph's assessment. I know this 60 year old vehicle needs lots of maintenance. I am hopeful the repairs on my Oxyhealth will extend the life another 11 years. I am not recommending Newtowne, just throwing it in the mix for consideration as financial access to MBOT. Phoiph is a tremendous rescource to check used Oxyhealth chambers and visit about the options.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Phioph said, "That said, would we expect an 11 year old vehicle never to need service, parts, or repair?"

Not at all! I knew I was just biding my time because of the age of my chamber. And kicking myself for not using it more, sooner!

But by the time you add up the $1575.oo for the zipper repair, plus my shipping it to them, plus the rental for the estimated 6-8 weeks of repair time ($800/repair cycle plus shipping), the warranty being a year and I wanted them to either check the windows or replace them while they had it, so that would have been more. When we added it up, buying Newtowne new seemed like the better option.

As far as the repair warranty goes, he offered a year warranty. And if in the year the zipper went again and we wanted to use the exchange program, he would take the repair cost off of the exchange cost. Which I think is fair. But my husband still wanted new. And I did not want to spend big bucks new.

I truly appreciate your help and feedback on all of this while trying to make this decision Phioph. It was very helpful.

Posts: 1770 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree with you both! I was just responding to the possible concern that 2006 may have been a "bad year".

And...I can't express how happy I am that everyone is so open, inquiring, generous and helpful here...

It was very difficult in the "old days" when I was a "party of one"...trying so hard to convince everyone on the merits of mHBOT, how ill I truly was, and that it really had made me well.

Now, thanks to everyone here, the thread has taken on its own momentum, and we can all learn from each other's opinions and experiences... [Smile]

Posts: 1981 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
HW88
LymeNet Contributor
Member # 48309

Icon 1 posted      Profile for HW88     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have a quick question. How long did it take everyone to start moving in a forward direction with mHBOT? I have improved over the last year on antibiotics, but it took until about month 5 before I could honestly say I was making progress.

From there it has been two steps forward, one leap back.... and so on.

I was just wondering about time frames for mHBOT.

I went to a clinic today and dove for about 30 minutes. I did fine and so I'm hoping to start soon with my own.... Just wondering what exactly to expect as far as improvement.

Thanks!

Posts: 798 | From Cincinnati, OH | Registered: Jul 2016  |  IP: Logged | Report this post to a Moderator
Digby
LymeNet Contributor
Member # 3888

Icon 1 posted      Profile for Digby     Send New Private Message       Edit/Delete Post   Reply With Quote 
HW88, My experience with mHBO is that it takes an attitude of patience. I didn't feel any benefits for the first 3 or 4 months. And when I finally saw some improvement I doubted the changes.

My best advice if you are thinking of starting with mHBOT is try not to micromanage the process. Keep a journal and review it no more than once a month. It's not easy to do but will save much unnecessary suffering.

Good luck to you on your hyperbaric journey.

Posts: 550 | From NW Arkansas | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
willbeatthis
LymeNet Contributor
Member # 31111

Icon 1 posted      Profile for willbeatthis     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks, Phoiph, for your ever present support. Because of you, I believe this thread acquired true momentum- see what true service does- it CHANGES lives... THANK YOU!

And to team O2- many thanks! You've all been an immense help. Reading the entire thread a couple times was an incredible education and led to a great level of comfort-so thanks again!

I love that Newtowne is being reviewed so to speak- way to go, KGG! I've always been a mom van kind of person too! Keep us posted!

Digby-thanks for your response to HW88. I'm into the end of my first quarter- Jan 29 was day one for me and soon to be in my fourth month. I am doing the two steps forward three back but overall I have windows of feeling better I believe than the pre-lyme me. I am very grateful. I remember being really tired the first 6 weeks or so as my body adjusted. Welcome HW88- I think you'll be pleased!

Peimomma and Jolley and Haley- any updates? Loved hearing from you Remember! So happy for your success! [group hug]

Posts: 859 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
  This topic comprises 89 pages: 1  2  3  ...  36  37  38  39  40  41  42  ...  87  88  89   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.