posted
I needed to hear that as well Digby! I am not wanting to get on the crazy train either right now!
Couple questions:
1) Do you all use your cell phones to surf the net while diving? I do it often to pass time. Would that affect the success of the dive at all? I know microwaves are not the best to have around us all the time.... Just looking to know I am not messing anything up! (I don't use wifi in my house)
Background: When I went to Germany- Dobel to get Photons we were advised and it was strongly encouraged that we be disconnected while being treated so I was-- and in the middle of the Black Forest with a hotel that had no wifi. Just making sure I am making the most of my treatment in the chamber- if I should always be in airplane mode, I can do that.
2) How about a kindle? Is that okay? I use it on airplane mode.
3) Digby, how much of a difference have you seen with the 1.5 hours vs. the 1 hour with compress and decompress added? I have done this a few times when I am really herxing and it seems to help. I feel like the treatment gets deeper if I am in past an hour though I won't go over 90 minutes and honestly do not have time to do that all the time.
Thank you all for your help! GO TEAM O2!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
willbeatthis~
IMO, to get the most out of your sessions, especially in the beginning, it is ideal to let your brain rest while in the chamber.
Personally, I wasn't able to read or attend to the computer initially anyway, and in retrospect, I believe the "forced rest" was to my advantage. I do use my laptop now when I dive, but I have noticed an increased "restorative" benefit when I just rest inside the chamber instead.
If you think about it, your brain metabolism/oxygen demand increases with use...so it makes sense that rest will allow more energy to go toward healing.
I realize your question was about the impact of EMF's, which no doubt also play a part, since they impact the quality of rest and immune function.
So..."powering down" may have dual benefits...
Posts: 1981 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
Thanks, Phoiph. That is what I will do... I seem to feel I derive more benefit when I am at rest and it seems it is all I want to do in the chamber. I struggle to read even.
Thank you for your quick response to my question!
Thank you for the link as well! Very informative!
I have completed 91 dives since January 29th (only two consecutive days I had to be out with a flu/cold).
Thank you for your dedication to us all!
Hugs to all! Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I guess I am the opposite. I take both my phone and Kindle in the chamber with me. I check my emails, FB and research. I also read books on my Kindle while in the chamber. My son takes his tablet in and watches movies to pass the time.
Kudos on completing 91 dives, willbeatthis
HW88, I took a pic of the inside of my chamber at the foot end when I was ready to start unzipping. But I am not savvy enough to post it. If you want to PM me your email address I would be glad to send it to you.
Posts: 1770 | From Maine | Registered: Jun 2004
| IP: Logged |
posted
Thanks willbeatthis and digby... Today, chest is fine. Such WEIRD things. I guess I'll see if it comes back. When I first started treating, I panicked about everything symptom.
Now, I usually give it a few days before I think it's serious (mostly the weird ones go away), But I always ask for others opinions. It helps.
THANK YOU! skip today. Will dive tomorrow--building up slowly.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
| IP: Logged |
posted
willbeatthis, I do use my tablet in the chamber. I even made a tablet holder so I don't have to hold my arms up the whole time.
Having said that, I agree with Phoiph that the time is best spent in deep rest. So, I also spend most of the time in meditation (I teach meditation) while diving.
I wish I could answer you question about EMFs. I am not sensitive to them and the science is all over the map. I do know that when I lived out in the country where there was no cell signal I felt worse than I do now, living in a suburb. So????
Posts: 550 | From NW Arkansas | Registered: May 2003
| IP: Logged |
posted
HW88, Glad your chest is feeling better. And I'm happy that you are taking it slow.
Posts: 550 | From NW Arkansas | Registered: May 2003
| IP: Logged |
posted
Thanks, Digby. Good to hear this info. I'm finding rest very natural in the chamber and will work to keep it that way.
With regard to length of time if you don't mind my asking, what is the difference for you diving 90 min vs 60? I notice my feet and knees start to hurt which to me means- we are striking gold(a positive way to look at it). I've always had circulation issues thus I bet the lyme and cos loved that and are now being attacked. One can only hope.
Any thoughts on that?
Thanks so much!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
willbeatthis, I don't really feel any difference in the longer dives but I did when I first started increasing time. Just increased symptoms...the usual herx. I increased 5 minutes at a time and only did it every other day.
My thoughts on your hypothesis are that you are absolutely correct! As you know Borrelia are microaerophilic, which means they need a small amount of O2 to respire but more than that is toxic to them.
Diving forces the O2 into all the tissues of the body killing the spirochete...hence the herxes.
Of course that's only one benefit. I believe that the slow but steady effect on the immune system is the real gift of mHBOT.
Posts: 550 | From NW Arkansas | Registered: May 2003
| IP: Logged |
posted
Thanks, Digby. What a great explanation and help to me honestly. I am really amazed at how much my extremities- especially my feet are really feeling the kill so to speak.
It's great to have a hunch confirmed. My perfect storm going into lyme really is likely what I have needed mhbot as you said. I certainly had that -- bad gut (undiagnosed gluten and dairy allergies at that time), tons of abx over the years for sinus infections, hypothyroidism, bad circulation (renayud's), weakened immunity due to the death of my mom - things quite frankly, I just lived with up until lyme. And helped lyme entrench obviously.
Thus, I am really grateful for the last part of your post and honestly what was the hook for me with mhbot-- immune modulation. When Phoiph and I talked and I learned of her history and then matched it with mine ... down to chemical sensitivities.... well, it all made perfect sense.
You have been a huge contributor here and your knowledge is extraordinary and a real gift to us all. I have always been a why person so thank you for helping me to better understand! I am glad things are going so well for you!
Here's to Borrelia's microaerophilic nature! Sweet revenge Thank you so much...
Blessings Team! Cannot thank you enough! Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
I love it very much, at the same time I’m still very sick, but I'm slowly making progress.
I'm about 15-20% better than I was before I started diving. When I skip 3-4 days I feel more tired and weak.
I couldn’t tolerate most of foods, meds, herbs and supplements. That has improved a lot thanks to mhbot!
Mhbot has been the only therapy that stopped my ongoing getting worse year after year. By the time I started I was more dead than alive.
I’m mostly bedbound for almost 10 years but now I'm able to exercise. I ramped up from 30 seconds to now 15 minutes every day! (hometrainer and light weights)
Antibiotics did definitely contribute to that too.
Question: In a few months I almost certainly get a PICC line (rocephin), do you know if I have to take any precautions when diving with it? Any experiences? Thnx.
Wishing you all the best of health and keep diving!
Survivorgirl1
[ 05-03-2017, 08:12 AM: Message edited by: Survivorgirl1 ]
Posts: 16 | From Europe | Registered: Jun 2014
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Survivorgirl1, I am so happy for you and the improvements you have had! And I love your stick-to-it-ness.
My son had a PICC and was diving in our chamber when we first got it years ago. Our NP at the time said it would be no problem. Well, I am sorry to report that he developed a clot in his axillary vein. Would he have developed a clot even without the mHBO? Probably. He had hypercoagulation at the time. But I don't know what part the mHBO had.
It is good that you are asking. I hope that you are able to get a clear answer on this.
Posts: 1770 | From Maine | Registered: Jun 2004
| IP: Logged |
posted
Hi Survivorgirl- Good to hear from you! I hope as well someone can answer your question.
Kgg- how are things going with your new chamber- Hw88 too- I wonder the same.
Still moving forward! Digby is right! Don't try to micromanage the process. It is a ride that is for sure! It is amazing to me the areas this gets to that nothing else came close to hitting this hard- I'm grateful!
Onward O2 Warriors!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I am thrilled to be able to get in the chamber daily. When the zipper on my Vitaeris blew, I told Phioph it was a sad day. Indeed it truly was! So I am happy to have the Newtowne chamber.
But, I have yet to conquer the outside zipper on my new chamber. Every time I think I have it closed my husband always reports that it is not yet closed completely. He is going to cut a dowel to see if that will help me to get it tucked into the area that completes the zip. Otherwise, I am very happy with the new chamber.
I am still not back to square one from my surgery. Last year this time, my energy was so much better. I am impatient to get back there.
Willbeatthis, glad to here you are still doing OK with the increase in time.
Posts: 1770 | From Maine | Registered: Jun 2004
| IP: Logged |
I'm doing well with my chamber. I'm pretty sure I'm getting all zippers closed. I found it easier to close with the zippers on top rather than the side.
I should have my husband check for me. The outside zipper has to be pushed up and tucked in a little slot, so I can see why kgg says she's having issues with the zipper.
kgg, I bet the dowel will help. Something to push it in the little slot/pocket.
I'm doing pretty good so far. I've been going really slow, though. Every other day. Adding 5-10 minutes each time. Then I will add in the other days. THEN the oxygen.
Happy so far with my purchase and decision. Hoping for wonderful things to come.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
| IP: Logged |
posted
I'm still a bit away from using my oxygen concentrator, but I was wondering what I should set my oxygen levels at?
Maybe this is something I ask my LLMD or is it pretty standard?
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
HW88...
It depends on which concentrator you have...
AirSep New Life Intensity 10 should always be set at 8.0 to 8.5 LPM. Gradually increase your time using the mask, as opposed to changing the LPM setting to work up on the dosage.
posted
Thanks phoiph. I will look and see which one I have.
I will gradually add time using it. Do I just take it off and lay it down for the rest of the time in the chamber?
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
This was probably Phioph's suggestion. But what I did was not put it on when inflating. I wanted to be able to clear my ears without the mask interfering. I would time it so I put it on and finished my dives with the mask on.
Posts: 1770 | From Maine | Registered: Jun 2004
| IP: Logged |
posted
Kgg, the rest of the time did you just leave it next to you in the chamber?
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
HW88...
Yes, you can just lay it down in the chamber during the rest of the dive. That way, you are still receiving some extra 02 while it flows into the chamber, but not as big of a dose as if you were wearing the mask the entire dive.
kgg has a good suggestion...it is best to leave the mask on while deflating, so wearing it at the end of the dive works while you are titrating up to the full protocol.
Posts: 1981 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
foxy loxy, She could try Quercetin and/or an alcohol free mullein oil preparation as drops in the ears.
Posts: 550 | From NW Arkansas | Registered: May 2003
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I inflate over 10 minutes. Usually I only have ragweed/end of summer allergies. This year I am starting with spring allergies. So I have been using Alavert. That has helped my ears clear easier. I have also in the past, used Sudafed to unstuff my sinuses.
If her ears aren't equalizing/ clearing then they would bother, even afterwards. At least I have experienced it.
Posts: 1770 | From Maine | Registered: Jun 2004
| IP: Logged |
posted
Hi Foxy- My ears too took a bit to get used to the compressing and decompressing(I've had chronis sinus issues most of my life). I use Astelin and Nasocort (1 spray each nosrtril 1x per day). I also take Singulair daily and like kgg- Sudafed on occasion. I think it is something you have to have patience with. Digby had great suggestions too. Godspeed!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
Thanks so much you guys! I will pass along this info and hopefully something will help! Posts: 477 | From Pennsylvania | Registered: Nov 2015
| IP: Logged |
posted
Hi everyone. Wanted to give an update as I passed my 1 year mark of daily dives and have completed over 400.
Successes: more energy over the course of the year, brain fog decreased, less pain in spine and hips (more diet related than mhbot I think), less anxiety, fewer anaphylaxis episodes, cd57 up to 90 from 70, c4a down to 12000 from 20000
Challenges: intermittent episodes of chills, muscle spasms, racing thoughts/depression, low energy, spine stiffness, difficulty with eye tracking, nightmares (3 days a month), low VEGF, high HHV6, high mycoplasma pneumonia, anemia (low serum iron, ferritin, and hemoglobin saturation- now taking b vitamins and iron)
I am starting to realize that although I thought my diet met my needs, it did not, and am trying to figure out how to nutritionally meet my needs best. I am looking into both mold treatment and Andy Cutler chelation after my nutritional status has improved as I continue to have difficulty maintaining mineral balance in my body.
Overall it has been a great year. A recent flare had me feeling really setback. Our emotions can be fragile; this is a rough ride. It takes courage to hope and keep pushing forward.
I wish you all health, and am thankful for our shared journey.
Posts: 64 | From Washington | Registered: Aug 2015
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Nasacort is a steroid. It can weaken your immune system and cause you to catch illnesses from others.
There is a warning about that that comes with the Nasacort.
I experienced it myself after I had been rid of lyme for a number of years.
The doc had me spraying with it daily. After 3 months, I noticed that I was catching every illness that came down the pike.
I stopped the Nasacort and started weightlifting again (to boost my immune system) and all the various illnesses ended.
I had no idea I was spraying a steroid into my nose daily!
Here is an example of a warning that comes with Nasacort:
"Immunosuppression
Persons who are using drugs that suppress the immune system are more susceptible to infections than healthy individuals. Chickenpox and measles, for example, can have a more serious or even fatal course in susceptible children or adults using corticosteroids. In children or adults who have not had these diseases or have not been properly immunized, particular care should be taken to avoid exposure. How the dose, route, and duration of corticosteroid administration affect the risk of developing a disseminated infection is not known. The contribution of the underlying disease and/or prior corticosteroid treatment to the risk is also not known. If exposed to chickenpox, prophylaxis with varicella zoster immune globulin (VZIG) may be indicated. If exposed to measles, prophylaxis with pooled intramuscular immunoglobulin (IG) may be indicated. (See the respective package inserts for complete VZIG and IG prescribing information.) If chickenpox develops, treatment with antiviral agents may be considered.
Corticosteroids should be used with caution, if at all, in patients with active or quiescent tuberculosis infections of the respiratory tract; untreated local or systemic fungal or bacterial infections; systemic viral or parasitic infections, or ocular herpes simplex because of the potential for worsening of these infections."
"Corticosteroids may weaken the body's ability to fight infections. This may make you more likely to get a serious (rarely fatal) infection or make any infection you have worse. This effect might also rarely occur with corticosteroids inhaled through the nose (such as triamcinolone). The risk may be increased if high doses are used, especially when used for a long time."
This may not happen to everyone, but it certainly happened to me.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Thanks for checking in Jolley. Congratulations on completing a year of mHBO. Loved reading your list of improvements.
We are in the process of treating mold in my young adult son. I think between metal chelation and mold treatment, I would address the mold first. Then see where your health is at. Unfortunately addressing mold is not a fast process either.
You are correct TF. Nasacort is a steroid. Best avoided if possible. But if a steroid is needed for sinuses, I would rather do a nasal inhaler than an oral one. Only temporarily though.
Posts: 1770 | From Maine | Registered: Jun 2004
| IP: Logged |
A while back I was starting to have great difficulty with my ears especially when I dove. In despiration I removied dairy completely from my diet (something I probably should have done long ago). It has made all the difference. My ears are clear now I no longer have to pinch my nose and blow. Instead I just swallow.
Also for the first time in many many years I no longer need to blow my nose every 15 minutes.
Monti
Posts: 120 | From Maine | Registered: May 2015
| IP: Logged |
I had that same experience with soy. Very difficult to clear my ears then magically it was gone when I quit drinking any soy milk.
Posts: 64 | From Washington | Registered: Aug 2015
| IP: Logged |
posted
Thanks KGG. Hope your son has improvement too. I treated mold a while back, but we're wondering if we need to treat again. It is not a fast process either way. I think that is what makes this journey so challenging.
Posts: 64 | From Washington | Registered: Aug 2015
| IP: Logged |
posted
Question about the oxygen mask. My mask came with a bag attatched to it. If I take the bag off, there is just a hole that I'm assuming the oxygen will go out of.
Is there a plug of some sort? Do I use the bag.
I do have the new life intensity 10.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
| IP: Logged |
posted
KGG, talked to Marie at Newtowne and mentioned the zipper issue. She wants to get in touch with you as she indicated she has many tricks to assist you in the closing. You may have already talked to her but just letting you know.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015
| IP: Logged |
And thanks for the info TF. I don't think she will want to be on steroids... She is pretty naturalistic kind of person.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Thank you, Jcarlnew! To call her is on my to-do list but have yet to do it. It is nice to hear she may have some pointers. Will try to call tomorrow.
HW88, that is the other thing I want to talk to Newtowne about. That is a non-rebreather mask. Phioph does not recommend using them. I wanted to ask why they prefer them. But no, there is no plug for it.
Posts: 1770 | From Maine | Registered: Jun 2004
| IP: Logged |
posted
Hi TF: I consider you my angel. Yes, the last cold and trip to the allergist, I succumbed to 1 spray in each nostril; however, I think I'm gonna give it up now. Thanks for the clear reminder and your contribution to us all!
And, Monti- and all, I solved constant sinus infections when I gave up dairy. There is data out there that says the protein is too big for humans to digest causing mucus. Yuck! Though I do miss the good Ole days with Honey bunches of os and milk- what a dream that was!
Yay, Jolley! One year down... Remember Phoiph said her second year she was still making real gains. Sounds like you are approaching things methodically and you are sure to come to a good end.
Hw88- Phoiph advises a nonrebreather mask- simple Hudson mask- it doesn't have a bag.
Keep up the great work team!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
For those experienced divers, how many of you combine mHBOT with other supplements and treatments, and what have your observations been in this regard? Do you fare better with HBOT alone, or combined with other therapies?
Posts: 123 | From Tahoe | Registered: Oct 2016
| IP: Logged |
posted
hmm. both the masks I was given have the nonbreather. If I take it off, it's just a hole. I guess I need to purchase a different one, unless there is some sort of plug for it.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
| IP: Logged |
posted
oh, I just read kgg's post. NO PLUG for it. I guess I will be purchasing a different one.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
| IP: Logged |
posted
jcarlnew, do you find oxygen escapes through the holes in the oxymask? Do you get as much oxygen?
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
HW88, Phioph has posted the stats on it. Or was it on the FB group? Can't remember well. But the Oxymask is as efficient as the other. I wish I could get used to the smell. It is a medical PVC that they use now. But I just looked it up and they have some that are non-PVC. So I might buy one of those to see if it smells the same. It is certainly less hot to use.
Bryan, I have yet to use an antimicrobial with mHBO. My naturopath has sold me two Beyond Balance herbal tinctures for Babesia and Bartonella. But I have not used either. Mainly because I wanted to know what was doing what.
I do use some supplements. Not as many as before but I still take some. I take them later in the day as I dive in the morning. And I want to space them away from the dive.
Posts: 1770 | From Maine | Registered: Jun 2004
| IP: Logged |
posted
kgg, can you post the website where you discovered that Oxymask has non-PVC masks.
Posts: 99 | From Kalamamazoo,Michigan | Registered: Feb 2015
| IP: Logged |
posted
PLEASE post where we can get a non PVC hudson mask. That would be amazing. I have the ceramic mask I can use but it is bulky. I am currently using a hudson mask that had aired out and not used by the prior owner.
Bryan, I am using the Rife with mhbot as well as Zhang supplements (coptis, HH2 and Circulation) as well as Cryptoplus. I guess I am doing it all.
I do use my rife too when I scan via zyto and it shows parasites or something that I know I should hit.
At some point, I hope to be just mhbot, I just haven't gotten enough ground taken back to do that.
I hope you are doing well!
Thanks, All!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
HW88, Yes, you have a non-rebreather mask. That's the one I use and I prefer it over the simple Hudson mask as you get more oxygen.
If you decide to use it, leave the bag in place and make sure at least one of the vents is open, without any washers on it. That is what allows fresh air into the mask so that if you breath heavily and use up the available gases in the mask and bag, there is fresh air available.
Posts: 550 | From NW Arkansas | Registered: May 2003
| IP: Logged |
posted
Bryan, I had unsuccessfully used antibiotics and herbals but quit both then started mHbot. I am just starting to add in some supplements (e.g. Iron.)
In general I feel mHbot alone has given great progress, but there are nutritional aspects it won't correct and possibly other things as well.
I don't do many therapies at once, partially because I am so reactive to supplements and foods; for my own peace of mind I need to know which treatment is doing what.
Posts: 64 | From Washington | Registered: Aug 2015
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
![[Wink]](wink.gif)
Thank you so much... ![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic