kgg
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posted
I have emailed the company. I checked on their "where to buy" page. But so far I have yet to see a company that sells the non-PVC mask. I will let you all know what they have to say.
Posts: 1856 | From Maine | Registered: Jun 2004
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posted
I had extensive conversations with their rep and I don't think they plan on changing the materials but were very cooperative. I bought my Oxymask here but they are not non-pvc.
I'm still on an every other day basis, no oxygen, but I feel it hitting BART. My extreme insomnia is back (uggh) and the anxiety is heightened. I'm doing my best to detox and take it at a pace I can.
Glad it's doing something, but man, the down before the good is tough.
Thank you again for all the help getting started.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
Hang in there HW88! I think you are smart taking your time. Yes the down time is tough but just remember the way we get through this illness is truly through it. Wishing you better days here soon!
Thanks Jolley and KGG!
Bryan, how is your leg?
Thanks Digby as always and Phoiph too!
Posts: 859 | From Southeast | Registered: Mar 2011
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kgg
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HW88, I find I have to dive early in the day or I have difficulty falling asleep. What time of day are you diving? I'm sorry the Bartonella is rearing its ugly head. I hope it calms down for you quickly.
Jcarlnew, thanks for making that phone call to the company. That's a bummer about the non-PVC masks. When I had a procedure done lately, they put a nasal cannula on me. That same smell was there. Wish I wasn't so sensitive.
Posts: 1856 | From Maine | Registered: Jun 2004
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hmm. kgg, that is interesting. I usually dive early afternoon. Maybe I will try mornings. Thanks for the suggestion.
I don't sleep well on my "OFF" day either though. hmmm.
I'm just hoping that the first thing 'fixed' is my sleep. uggh. I think it might be my hardest symptom to deal with. ... Sooo, it will probably be the last symptom to go.. HAHA.
I haven't been sensitive to plastics, etc. so hopefully the mask I just ordered will be a good one (once I actually get to the point of adding oxygen.)
Willbeatthis, thanks for the encouragement.... It was needed.
Hugs and goodnight to all my fellow divers. Again, thank you for the help with the learning curve!
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kgg
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HW88, more thoughts on sleep. I also added a supplement called l theanine 200mg. It has a calming effect. But I also found for months that I slept less hours, but was tolerating the lack of sleep better than prior to diving. So I ended up just going the flow.
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Phoiph
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My neurologist/HBOT friend explained it to me this way:
Sleep architecture is very complicated, and many factors need to be in synch (e.g., hormones, digestion, neurotransmitters, brain waves etc.).
For this reason, it may not be one of the first things to improve (although with some it does).
For me, it was one of the last things to improve, but like kgg, I tolerated the lack of sleep much better throughout the process. Gradually, I began to sleep more deeply and for more hours at a time, and eventually, a normal sleep pattern returned.
Also remember that mHBOT increases metabolism, etc., which may be stimulating for some(especially at first), so the suggestion to try diving earlier in the day is a good one.
Posts: 2085 | From Earth | Registered: Jul 2013
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Thank you kgg and phoiph. I'll look into l theanine. And phoiph, thank you for your explanation on sleep. It makes sense that all those things need lined up. It will come.....
I dove early this morning, so we will see if mornings work better. I bet it will at least help.
I have definitely had more energy since starting mhbot, so maybe it is more of a stimulant for me.
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kgg
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HW88, I had more energy too. It was kind of weird. Because my brain felt more awake but my body was fatigued. I would be able to do something, like the dishes and have to sit down. But then 10 minutes later I was up doing something else. Then I would have to sit down. And so my day would go. I really knew I was making progress when I was up doing the supper dishes at 6PM. That was normally my got-to-go-lie-down-before-I-fall-down time. Who knew being happy about being able to do wash dishes was something that would happen?
Posts: 1856 | From Maine | Registered: Jun 2004
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posted
Oh kgg, I feel like that could be MY post. Here's to more energy and health!!!
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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So I've got a question... I'm trying to figure out the best time to dive. I dove last night after walking about 4 miles(no other time to work out right now than at night) and I definitely herxed more after but I was in bed so it wasn't so bad. I feel like I tend to want to sleep when I dive and or read so I thought it might be a good pre bed activity-to wind down. I also get the fatigue you are talking about Kgg and Hw88. Thus, it's led me to thinking that using that to my advantage sleep wise. I really need to do more sleep inducing things at night it seems. If not, I have a tendency to be a night owl. It really comes down to me working full time, seeing clients at night and having to fit my treatment and dives in as well as get to the grocery, cook, detox and the like. I'm not complaining, just looking for suggestions!
I'm up to 90 min plus compress and decompress and I'd love any suggestions for best time of day to dive. Does anyone dive at night? Thanks all!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
KGG, will you let's us know when you call Marie at Newtowne and discuss your zipper issue and her suggestions.
Thanks
Posts: 100 | From Kalamamazoo,Michigan | Registered: Feb 2015
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kgg
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Jcarlnew, thank you for the prodding to call Marie at Newtowne. This time of year when the sun finally shines, I am usually out gardening/weeding. And the days get away from me. I just called Marie. She suggested using the end of a paint stirrer stick. Which was a better idea than my husband's dowel idea. And I believe I have an unused one in my paint supplies. So I will be trying it tomorrow.
Willbeatthis, since you tried it in the evening last night, did it interrupt your sleep? Or your ability to fall asleep? That is what happens to me. It wakes my brain up and I cannot initiate sleep. (Which is different than my typical insomnia of waking at 3 and not being able to get back to sleep).
As far as exercising and diving back to back. I mentioned to Phioph in an email once that my son was working out and then getting into the chamber. She recommended to put some time between the two activities. I am going to copy and paste so I quote her accurately:
"This is not a hill I would choose to die on, but if there is any room for suggestion, I would say it would be best if he alternates his exercise with the chamber. In other words, space it apart from each other (by alternate days if possible), not do a session right after exercising. In theory, there is an oxygen demand and free radicals created by exercise...and if the chamber is done right after, it may be that the effect goes toward that demand (which is fine, but we want it to go to supplemental healing). mHBOT is also a little like exercise in the way that it increases metabolism...so better to space it apart from other exercise. Same with taking antioxidants."
I don't know if that information helps you decide easier when to dive or more difficult. I am not a night owl. Just the opposite. I am a morning person. So I would say, as long as you could fall asleep after diving, it might be that night time is the time for you to dive.
Posts: 1856 | From Maine | Registered: Jun 2004
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willbeatthis, I did mhbot for a good year before bedtime. I too felt it was relaxing and a good way to fit it into my day. I even worked it up to two hours before bedtime and I slept fine!
Wishing you success!
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
Hi Kgg and Foxy lady! Thank you so much for the expert feedback. I really appreciate it.
I am a little pressed for time in my schedule these days so I may have to just accept that I fit diving in when I can whether it be at night, sometime after exercise or during the day when time permits prior to exercise.
I have become very hungry after doing mhbot and it is harder for some reason (not really surprising) to lose a little weight so I am trying to exercise once a day or close to it - mostly gentle stuff- walking and/or elliptical but I have to do that only briefly as I overused the elliptical prior to mhbot and have some knee damage that seems to be getting better. I am part of a weight loss group and goodness, lets hope I can reach my goal.
My nails are growing like crazy and I have never had them be this strong (they used to always break no matter what). The only thing I can think of is the mhbot. I am not doing anything differently other than eating a little more because I'm pretty hungry. I know that seems like a small thing my nails but it is really something to see. I cannot trim them quick enough and they are hard as ever. To me, this means mhbot is doing some great things for me.
Thanks KGG on the feedback from Phoiph and yes, I do try to space them even by an hour or so (or longer if can) and I tend to now have a real go with the flow and I just have to get the mhbot in right now. I am not always this busy.
Foxy, how is your friend doing with her ears and diving? I hope you are continuing to improve.
KGG, the paint stick idea sounds like a good one. I am crossing my fingers you can get this solved.
So far so good, I am still at the 90 minute mark. I am into my 4th month-- more recently the 90 minutes. The foot pain seems to have gone for the most part but my knees are still reactive and herxing which is good. I need to get the lyme out of there.
Weirdly I have been having ice pick like quick pain in my head every now and a again and pain in my teeth. I am so pleased with mhbot.
Thank you all for your encouragement and support... it means the world.
Keeping on Keeping on.... HUGS EVERYONE and thanks for being there for me! Posts: 859 | From Southeast | Registered: Mar 2011
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kgg
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Willbeatthis, ice pick headaches says Bartonella to me. I too have had to cut my nails more frequently lately. But they are not much stronger at this point. If that is going to happen, I would be a happy girl. I am not one to paint my nails. I am not foo foo. But to have them split or break is a pain.
You do not mess around! Fourth month of diving and on to 90 minutes! You go girl!
Posts: 1856 | From Maine | Registered: Jun 2004
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Phoiph
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Just for the record, daily 90 minute sessions (as opposed to 60) still concerns me:
posted
Thanks, KGG! Glad to hear your nails are growing too. I am not a painter either as I am in too much water for that... dishes etc.
Foo foo! Ha! Sound like you are not much of a purse dog kind of person either the poor dogs!
Thank you for this post, Phoiph. Seems I should back down and see where I am at. I can always go back up. Thanks for always being there...
Posts: 859 | From Southeast | Registered: Mar 2011
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Quick question, does anyone know how the doc, LymeMd's patients have done. I think he has recommended longer times.
I am just curious as honestly, the longer times have seemed to help with some unrelenting knee progression and foot pain of late. It was like when I was getting ready to get out is when I could really feel it beginning to work in those areas. Anyone else have this same experience.
I sure don't want to do something that is toxic to me. Thanks again Phoiph.
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Phoiph
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Different people have different tolerances, and the same person can have different tolerances at different times.
There is a balance that must be struck between beneficial oxidative production/therapy, and the body's ability to produce natural antioxidants. The tipping point toward oxidative stress is likely not the same for everyone, but if someone is very ill, the tipping point could be at a lower threshold.
So, although 90 minutes may be working for certain individuals, my concern is that 90 minutes could become misinterpreted as an across the board "standard" protocol (especially those new to the thread), and as the article mentions, this could be detrimental to some.
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kgg
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One of his (LymeMD) posts on FB. But not very often. I think she is on here too, but I don't remember her user name. Hopefully, she will see your question and answer.
Thanks Phioph for the explanation.
Posts: 1856 | From Maine | Registered: Jun 2004
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posted
I am a patient of LymeMD... He told me that he sees better results in his patients at longer times. He told me to do the two hours.
Quite honestly, I am not sure a saw much of a difference. But then again, hyperbaric hasn't done much for me that I can directly tell.
I am sure Phoiph is correct in the fact that what may be ones "sweet time" may be different and that if you are seeing improvement at two hours it may be what you need.
I seem to be continuing to improve since stopping the hyperbaric!!!!!!!!!?????? I am scared to even say that because... well.. you all know how it is!
I have become "seizure" free at night, and don't get the strange sensations of "oh no, am I gonna pull through this!" odd head sensations?"
My Dr. keeps thinking that maybe I could go back on hyperbaric if I can get the babesia symptoms under control.
Truth be told, I am a little scared of it now.
Sometimes, I wonder if the oxygen is just too stimulating for me? I know too much oxygen can bring on seizures.... Phoiph if you have a comment on this I am all ears!
Willbeatthis, I love to read your posts! You seem like such a nice, positive person! Posts: 477 | From Pennsylvania | Registered: Nov 2015
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Phoiph
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Hi foxyloxy~
I am so glad to hear you are improving!
Yes, IMO, 2 hours daily was likely way too high of a dose, especially with all of your head/neuro symptoms. I'm not surprised you've improved with a break, and I can understand why you'd be apprehensive about starting again! That is exactly why I am concerned about people doing such long daily sessions. I am well, and I would never do 2 hours daily.
The article on this subject (posted above) was written by Dr. Paul Harch, who has been researching and treating with mHBOT for decades. He talks about oxygen as a drug, and the implications of the cumulative effects of over doing it, especially with neurological conditions.
I also realize you did not feel you made significant progress when doing mHBOT less than 2 hours daily. If I recall correctly, you were doing a variety of other protocols simultaneously, so, in all fairness, it is really difficult to know what, if anything, could have been interfering or impeding progress with mHBOT.
My impression is that many of Dr. J's patients are also doing other intensive therapies in combination with mHBOT...so again, it is difficult to know what is actually helping them when so many factors are involved.
The difference is, I see mHBOT as a main therapy that works best with minimal interference...but maximum focus on scrupulous diet and gentle movement/exercise. This is how I used it, and how I've personally seen the best results in others. If someone is already on antibiotics or other therapies, it seems they start to see more progress once they become more stable from mHBOT and able to simplify their protocols.
Others may see mHBOT as an ancillary, supportive therapy to their main treatment (e.g., antibiotics, etc.) only. IMO, this is a completely different way of using mHBOT, so results (and interpretation) may vary greatly between the two philosophies.
Posts: 2085 | From Earth | Registered: Jul 2013
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Boy, I wish and hope there will be a day when all I have to do is dive to keep symptoms away!
That would be WONDERFUL! I like diving and it would be such a simple fix...
I am not sure I am brave enough to quit all my meds and rely only on hyperbaric... yet...
My symptoms are very scary. I have lived through extremely frightening head sensations... and so I cling mightily onto whatever my Almighty Dr. says!!!!
He has been a lifeline in this whirlpool of madness! (God bless him hundredfold)
He thinks the mHBOT helps the medicine get to where it needs to go. I think that is why most of his patients are doing both abx and mHBOT.
He did tell me once that he though mHBOT powerful enough to keep lyme away. I thought that a powerful statement!
ahhhhh!! so hard to know what to do! But since I seem to be possibly improving (is that tentative enough?) I had better stick with this a while!
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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Phoiph
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foxyloxy~
I totally agree...I think you should do what you and your doctor think best...and I am very happy you are making progress.
I am not in any way trying to go against his advice or trying to influence you in any way...just offering another perspective for the sake of discussion.
Keep us posted on your progress!
Posts: 2085 | From Earth | Registered: Jul 2013
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posted
Thank you, Kgg, Foxy and Phoiph! It truly is something how powerful mhbot is.
In the last couple of days I've had true bone pain right underneath my knee. Reminds me a bit of the foot pain but my guess is - if these bugs communicate- they are saying Whoa Nellie! Or for all you folks that watched Sanford and Sons- I'm Coming Elizabeth! And I'm saying Dynomite- like JJ from What's Happening!
All you can do is laugh! Bless! Hugs all!
Posts: 859 | From Southeast | Registered: Mar 2011
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kgg
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Willbeatthis, you certainly sound like you are hitting the critters. My right knee has been talking to me in the last few weeks. Thankfully, it is not stopping to me, just talking. ;-)
Posts: 1856 | From Maine | Registered: Jun 2004
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Thanks, Kgg! I am glad your knee is just talking- not stopping you! Were you able to get the painters stick to help you get zipped up? Seems like your doing great with your new chamber! Thanks for your encouragement always!
Hope everyone else is doing well too! Hw88 how are you doing?
Happy Saturday! Go Team O2! Hugs!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Thanks, Kgg! I am glad your knee is just talking- not stopping you! Were you able to get the painters stick to help you get zipped up? Seems like your doing great with your new chamber! Thanks for your encouragement always!
Hope everyone else is doing well too! Hw88 how are you doing?
Happy Saturday! Go Team O2! Hugs!
Posts: 859 | From Southeast | Registered: Mar 2011
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kgg
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Yes, thank you for reminding me to post about the paint stick. (I will know I am totally healed when I actually have a mind to focus and short term memory). I have used the paint stick twice now. And both times it worked like a charm. I have my husband check just to make sure. One more time and he will be relieved of zipper duty. =)
Posts: 1856 | From Maine | Registered: Jun 2004
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posted
willbeatthis, I'm doing pretty good. My sleep is starting to calm down a bit for now. (it's still really unpredictable, but it's not as bad as last week?) I'm working my time up. Taking it kind of slow, but getting there.
I do feel it is helping. Hoping to wean off other meds after I'm up to speed.
I am also Dr. J's patient. He is excited that I am doing mHBOT and really believes in it. He told me everyone has a different 'sweet spot' in regards to time.
Like Foxy, my head issues are the worst for me. Hoping they improve with mhbot.
So far I'm hopeful... It is definitely a 2 step forward, one back. I just have to remind myself that during the step back.
I do love reading this thread.
Thank you for asking about me! Hope everyone else is doing well this Saturday! Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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TF
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posted
Hi, HW88. I saw this post of yours and wanted to tell you how happy it makes me that you are doing pretty good!!!
Pretty good is great when you are treating lyme.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Hi Hw88 and TF! Hw88 this is great to hear! Yes, TF is a true angel!
Thanks also for the info about finding your sweet spot with time. I really appreciate it! I'm thrilled Dr.J is excited for you to be doing this! He's given a lot to our community! Keep up the great progress Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Question for everyone. I've had yeast athletes foot on some of my toes on my right foot for years. Itches like crazy.
Since starting mhbot, it has spread to the other foot! I know it is the mhbot, as this issue hasn't changed with other stuff in 10 years.
I wear socks in the chamber so it isn't something simple like my feet touching in the chamber. My feet have touched each other much more in bed, etc.
Then I started researching and found many people saying mhbot exacerbated their yeast issues. Most still felt the benefits outweighed this, but I still think this was an interesting thing to uncover during my research!
Can anyone comment if they've had yeast flare ups?
Posts: 123 | From Tahoe | Registered: Oct 2016
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kgg
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I have not had a flare up. But I remember when I was reading a lot of Amy Yasko years ago that she said it would flare yeast. I asked Phioph about this when I first started, but I don't recall her answer. But I don't believe it was a concern.
Posts: 1856 | From Maine | Registered: Jun 2004
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Hi Brian- An old poster here Oxygen Babe said it did. I would say that yes, I've had to be more diligent like no sugar whatsoever (even pumpkin puree in smoothies a no go right now).
Sorry to hear about your athletes foot. I imagine candida protocols may help. I like Candex and SF722 Thorne as well as capryllic acid and saccromyces bouladari. That's my regimen and no real carbs other than green veggies.
Kgg- when you say your knees talk can you describe? Thank you!!
Hang in there Bryan!
HW88 -hope all is well!!
Posts: 859 | From Southeast | Registered: Mar 2011
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kgg
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Willbeatthis, I feel pain in my right knee going down stairs. It is more apparent then than other times. It is not a new symptom, but more recently started up again. Unfortunately, we are in a two level house, so I am climbing stairs a lot.
Posts: 1856 | From Maine | Registered: Jun 2004
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posted
Kgg are you eating a non inflammatory diet? I know when I start to slack on my diet pain in my knee quickly returns.
Posts: 120 | From Maine | Registered: May 2015
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How do people recommend staying away from carbs and fruit, when also working out and exercising?
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TF
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To Bryan:
Eat just meat and non-starchy vegetables. You can also eat eggs, seeds, and nuts. Drink kefir daily.
That is how I had to eat the entire time I was treating lyme disease. And, I was doing 1 continuous hour of weightlifting every other day as required by the Burrascano Guidelines.
Did you see jory's post about how to get rid of candida on the skin?
"Brussels, for your chronic candida try using 3g of no-flush niacin (niacinamide or nicotinamide) once a day every day. It does wonders for me and entirely cleared up my GI candida and a horrible yeast skin overgrowth."
posted
Back to the rescue TF. Thank you as always for looking out for us all.
Bryan, I hear you... that's why I had the pumpkin in there(my smoothies) generally before a workout. Now I just eat copious amounts of non starchy veggies. I did try some rutabega tonight as it is supposed to be antifungal and okay for candida. So far so good. I didn't have that much though. Workout went well.
TFs recommendations for folks that can do nuts and dairy would be a great way to go. I cannot do dairy, gluten, eggs or nuts really - so that is why I do AIP(Paleo autoimmune). I'd be on the floor without my protein and copious amounts of veggies. I do consume a good bit of bone broth too and I cook my veggies with it- chicken bone broth- makes frozen organic cauliflower into a mashed potato like dish. I really need flavor or my diet gets very real very fast.
TF- you rock! Bryan, I hope these Jory suggestions and TF suggestions get you feeling much better soon. I'm gonna try her suggestion myself tomorrow with the niacinamide.
Kgg- Yep, I know what you mean! Both of mine are talking, feel tight across the top and really come to life in the chamber- they burn too then. Interestingly my anti inflams don't help much with this. I'd say it's got to be a mass killing. It's about time.
So interesting the phases you go through. O2 is powerful!
Thanks for being the best support a girl could ask for!
Thanks Team O2! Posts: 859 | From Southeast | Registered: Mar 2011
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Phoiph
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willbeatthis...
Have you tried soaking and oven drying nuts? It removes the substances that make them hard on the gut and difficult to digest. Even at my most ill, when I was down to 5-6 foods for years, I could eat nuts prepared this way.
Here is an easy how-to article/video. You can also make nut milks and nut butters with nuts prepared this way:
Do others feel a slight vibration (though it is definitely there) in their body (mine lasts a couple hours) - I equate it to if you think of water molecules moving to get hot -- I have been feeling this vibration particularly in my legs after diving. I am sure it is all good but I just wondered if I was the only one. Just wanted to ask!
Thanks for all team, YOU ROCK! Amy
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
willbeatthis.....the vibrations left leg and used to happen up my spine,however,now they just occur in the leg...a quiver sensation,it has subdued over the last 3-4 months.
When this all started I even had "zaps" in my head and they also settled (were the worst).
Hope this helped)
-------------------- Chronic Lyme Posts: 36 | From Florida | Registered: Jun 2016
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posted
Willbeatthis, yes, I get that sensation too. I get it during flares and sometimes in response to supplements. Recently B vitamins had it "vibrating" out of control. It is often in my spine or legs and feels like an insect fluttering. At times magnesium has helped.
Posts: 64 | From Washington | Registered: Aug 2015
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Thanks, Reminder and Jolley. I am glad it is normal. I am curious as to why this would be so. I definitely feel it is a flare. Does anybody know what coinfection or what have you might cause this. I suspect Bartonella with the pain mainly in my legs and the burning too. Wowser.
Getting ready to get in my chamber to wind down and go to bed. You all are the best.
BTW - the rutebega- well, I think you must have to have a pretty tough stomach. I could not digest it hardly at all even well cooked.
No sleep for me last night due to that experiment.
Hugs all for the support. It means a lot!! Really!
And, Phioph, YOU are still my HERO! HUGS!!
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