posted
I would be careful about using Ozone to disinfect the chamber. At higher concentrations it will rapidly crosslink (degrade) the materials including the foam in the mattress. As Phoiph said, diluted H2O2 is your best bet.
Posts: 566 | From NW Arkansas | Registered: May 2003
| IP: Logged |
posted
I was told by Bruce at Summit to Sea that the material they use will not allow mold to grow on it. Contact your chamber manufacturer and ask them if that’s the case with yours.
-------------------- KB Posts: 176 | From Northern VA | Registered: Apr 2015
| IP: Logged |
posted
How is everyone cleaning their masks and is there a way to disinfect the tubing Thanks
Posts: 261 | From California | Registered: Sep 2017
| IP: Logged |
I used hydrogen peroxide. Not sure about the tubing, whether there might be anything in there. Waiting for the filter to the concentrator to dry and then I will start diving.
I don't have an ozone generator so I wasn't going to try that anyway.
I appreciate your input and support.
Carbokitty
Posts: 118 | From WI | Registered: Apr 2013
| IP: Logged |
posted
Here is an informative podcast on Covid-19 with Dr Leo Galland Parts 1 and 2 https://drhoffman.com/podcast-2/ The best I have heard so far
Posts: 261 | From California | Registered: Sep 2017
| IP: Logged |
I just wanted to give an update (as well as say hi to everyone as we shelter in place/practice social distancing)
I've done 3 dives now back in my home and I am fine. I'm not having any of the symptoms I was having at the Airbnb while I was in California. So it appears that the chamber and accessories are not contaminated. I am grateful!
In the meantime, however, I did experience one bad night since I've been back. Insomnia, waking up during the night with my heart pounding and being awake for usually 2 hours is common for me with mold exposure. This one night occurred the 2nd night my husband was home (he drove, I flew and I arrived home 2 nights before he did). On the 2nd night, I had moved "my" pillow (that he brought back in the car) and a throw I had used daily while I was in CA into the bedroom where I was sleeping. I wasn't sleeping on either one but they were close to me. During the night I woke up with my heart racing and wide awake. I finally got up and moved both of those, the pillow and the throw into the closet. I haven't had a reoccurance since. Could it be that I was reacting to my own pillow or this throw the whole time (2 months)? I'm scared to expose myself again but I think I have to to learn the truth.
I have now done 243 1 hr dives in the last year. I know I still have a long way to go and because of a few 4-5 day breaks when traveling, I likely need to extend my healing time beyond the recommended 2 years. Although I work daily on acceptance of my condition (all these sensitivities), I have my moments (now?) when I feel frustrated and a bit hopeless. I do have hope. Those of you who have achieved wellness with this modality do give me hope to persevere and carry on. And I do intend to carry on with mHBOT for sure.
I do wonder sometimes, though, if this whole mold sensitivity is like some theories that some of us lack the genetics to identify molds from wet damaged buildings. And If that is "the whole thing in a nutshell", boosting one's immune system will not allow us to do anything different to identify mold and get rid of it. We'll still have this sensitivity-with all the constraints it causes ("I can't go here, I can't be near this thing, I can't eat that food"). And I'm aware I'm in the wrong group to be talking about this. There's really not a good mold group to talk about using mHBOT. One can really only use a chamber once they are out of mold. Not good to use while in a moldy house and concentrating that moldy air. And it's really not a modality that's accepted for discussion among those who are avoiding mold. Only mold avoiding behaviors are tolerated for discussion. So thank you for tolerating my ramblings. This group has been a life-line to me. (At the same time, please let me know if it's preferred that I not bring up non-Lyme topics).
Anyway. That's my story. Happy the chamber doesn't seem to be contaminated. Still diving and remaining hopeful. Occasionally frustrated about my reactions to "stuff".
I'm sending good thoughts to everyone for good health and good immune response to this virus.
Carbokitty
Posts: 118 | From WI | Registered: Apr 2013
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Carbokitty~
Here are my thoughts on it.
You may have the genetic predisposition, but those genes were "turned on" sometime in your life (i.e., you weren't sensitive when you were born).
Therefore, they can be "turned off", or at least, "turned down".
A lot of chemical sensitivities come from the gut, and will improve when that is fully healed.
8 months of diving is not long enough to judge, so please remain hopeful! This is a gradual process, with many layers to be traversed. Your body knows what it is doing, and in what order. (That may not always seem like "progress" to the "analyzing brain".)
I was chemically sensitive to mold and many, many substances in the environment when I was ill, all of which I no longer even notice.
I do think that reducing the toxic burden by limiting exposures while you are healing is critical though, to prevent setbacks. That was easy for me since I was homebound, but more difficult if you are traveling, etc.
Posts: 2083 | From Earth | Registered: Jul 2013
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
quote:Originally posted by Hominahomina: How is everyone cleaning their masks and is there a way to disinfect the tubing Thanks
Just use the same 50/50 solution of water and hydrogen peroxide on your mask.
The tubing doesn't need cleaning, as the oxygen flowing through it is anti-bacterial, and the flow is toward you, rather than back through the tubing.
Posts: 2083 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
Carbokitty...One of the big benefits I got from diving is that I no longer have the food and airborne sensitivities that plagued me before. I can now have a glass of wine on occasion. In the past 2 sips would make me feel miserable. I can also go to a toxic place like Walmart and not feel sick. Just stick with it.
Posts: 566 | From NW Arkansas | Registered: May 2003
| IP: Logged |
posted
I use alcohol wipes to clean my mask. It is easier than mixing up the H2O2 solution. Phoiph, do you see any problem with that?
Posts: 566 | From NW Arkansas | Registered: May 2003
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Not if it's Tequila, Digby... Posts: 2083 | From Earth | Registered: Jul 2013
| IP: Logged |
I appreciate the hopeful and positive messages from those who have journey-ed before me. I do intend to continue on ~ never had any thoughts of quitting. Sometimes I just have to get these fearful/negative/hopeless thoughts out of my head.
Glad to not be traveling this road all alone.
My best to all, Carbokitty
Posts: 118 | From WI | Registered: Apr 2013
| IP: Logged |
quote:Originally posted by Digby: Carbokitty...One of the big benefits I got from diving is that I no longer have the food and airborne sensitivities that plagued me before. I can now have a glass of wine on occasion. In the past 2 sips would make me feel miserable. I can also go to a toxic place like Walmart and not feel sick. Just stick with it.
Hello Digby
How long did you dive when you noticed the difference ? Did you have co infections and if so what were they?
Thanks
Posts: 261 | From California | Registered: Sep 2017
| IP: Logged |
I want to circle back around to the gene thing. Once I learned about mold sensitivity and the genetic component in 2014/15, I suddenly understood my whole life in a way I didn't understand it before. I had my tonsils out at 4 years old. I now know it was likely because there was mold in our house (with a basement). We then moved to another house, which had flooding in the basement from time to time. And I was sick frequently. And on and on with other mold exposures from wet damaged buildings. This more recent exposure that started in 2011 in my parents condo (and then I was treated with antibiotics for a Lyme diagnosis) has resulted in "lasting" gut issues and food sensitivities. While many of my past exposures landed me in various hospitals for what appeared to be mental illness (extreme anxiety and depression), none of the other included the use of long term antibiotics. I would say those genes were turned on very early on in my life. And turned on often. I remain hopeful that this will make a long term difference for me. This combined with FMTs has made a big improvement ~ FMTs seem to be the only way I can boost my intestinal flora. I am, of course, unable to obtain more at the moment and will need to try and feed what I've got going and also continue to dive.
Carbokitty
Posts: 118 | From WI | Registered: Apr 2013
| IP: Logged |
posted
Hominahomina...I was about a year and a half in when I started to notice these benefits.
I'm not sure about co-infections. I had Bart but I stopped being positive on tests (for what that's worth) before I started diving. I also had very high EBV titers.
Posts: 566 | From NW Arkansas | Registered: May 2003
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Hi Carbokitty~
Thanks for the background info.
As you explained, it is usually not "just one thing", but a cumulation of many "insults" in our lives, combined with a predisposition that results in a chronic illness. Many of us are unsure of what those contributing factors might have been in our lives, but you are more aware.
The doctor that I mentioned to you before is brilliant at finding and working around the genetic snps that might exist...just in case you wanted to explore that route.
I'm glad you're committed to continuing to dive, as you've already improved, and it can be a rocky road, but I know you're going to get there.
Posts: 2083 | From Earth | Registered: Jul 2013
| IP: Logged |
Maybe it's time to do that telemedicine consult with that doctor. Or hold out to experience the miracle that Digby experienced. Fingers crossed. For today, at home, all is well.
Happy diving! Carbokitty
Posts: 118 | From WI | Registered: Apr 2013
| IP: Logged |
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
How's everyone doing? I am so grateful to have my chamber during these difficult times. I've been using it daily except I recently had to take a couple of days off due to a mild cold.
I'm doing better and ready to dive back in today, but will be sure and take it very slow to build up to 1.3 ATA.
I can't help but wonder if (and hope) MHBOT is protecting us in some way, from COVID-19.
Posts: 2387 | From New England | Registered: Aug 2011
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Hi dbpei~
Agreed!
Glad you're doing better. In my experience, getting a cold after recently beginning mHBOT can be a good sign that your immune system is kicking in.
I posted this earlier, but just in case it was missed:
posted
I’m actually more worried about my family getting it than myself. They are nearly 1000 miles away but their state leader doesn’t seem to be taking it seriously enough so neither are many of its people, to include my aunt. I’m so scared she’s going to give it to my mother. We, her children had to do some serious talking to her before she started taking it seriously. She’s 80 and has many health issues. But even the younger members of my family all have health issues and most of them smoke. This could wipe out my whole family but I’m working on not dwelling on that with lots of prayers and trusting in God to help us through this. I pray everyone here is safe and staying calm.
-------------------- KB Posts: 176 | From Northern VA | Registered: Apr 2015
| IP: Logged |
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I am so sorry Kaibyrd. I have similar issues with my family too. I seem to be the only one who wants the social distancing to go beyond Easter. Most are being careful distancing themselves for now, but think as long as they pray and read the Bible, it will be safe to go to services on Easter and go back to our old way of life. I hope I don't offend anyone here by this, but I just don't believe that.
It's hard enough being so afraid, but to be wasting energy on arguing your point to relatives is not good when we need our reserves to keep our immune system strong! I thank God every day for my chamber. When I get inside, it helps to calm me in so many ways.
Posts: 2387 | From New England | Registered: Aug 2011
| IP: Logged |
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Phoiph, I forgot to thank you for that article! It is very encouraging!
Posts: 2387 | From New England | Registered: Aug 2011
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
In addition to the article, another thing I find encouraging, is that mHBOT is immune strengthing and modulating.
The drugs and herbs that are being suggested for COVID19 are also immune modulating, which assists in keeping the immune system from overreacting and creating an inflammatory "cytokine storm".
Posts: 2083 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
Phoiph, what herbs are being suggested? I’ve seen probiotics mentioned as well as melatonin and vitamin C.
Dbpei, I agree about family. I’ve tried for many years to get them to eat better and stop smoking but they just don’t care so I’ve given it to God. As for Easter, I’m waiting on God there too.
-------------------- KB Posts: 176 | From Northern VA | Registered: Apr 2015
| IP: Logged |
posted
I just want to chime in here on the supplements. I’ll paste a link to the Integrative Medicine school in Arizona (Andrew Weil). He cautions not to take Vitamin D during the infection because it could contribute to cytokine storm. Before and as a preventive is fine.
posted
FYI Kalbyrd and others for what it's worth I asked Dr Hoffman on facebook about high doses of vitamin D causing a cytokine storm he did not think that was valid in regard to high doses of vit d while sick Dr Hoffman believes increasing your intake of Vitamin D is warranted
Please listen to part 2 of this podcast to confirm from March 28 about 3 minutes and 45 seconds from the beginning
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Here's another study showing that HBOT (and even Mild HBOT!) can help in recovery of COVID-19. This is very good news! But PLEASE keep following all precautions to avoid getting or spreading this dreadful virus.
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
NYC ICU doctor voices strong concerns re current ventilator treatment and Covid19; Dr. Mercola suggests greater benefits of hyperbaric oxygen for Covid19:
posted
Does anyone have any suggestions for checking the level of O2 from a concentrator? I use a pulse oximeter in the chamber occasionally and with my old Sequal concentrator my pO2 was always at 100% but with my new (to me) Newlife Intensity unit my O2 runs from 97 to 99. Plus the O2 doesn't smell the same as with the old unit.
Any suggestions? I'm trying to figure this out without spending hundreds of dollars for a sensor. I don't have a company that works on them anywhere nearby.
Posts: 566 | From NW Arkansas | Registered: May 2003
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Digby,
I will PM you the number of an oxygen concentrator technician here who may have an idea.
Posts: 2083 | From Earth | Registered: Jul 2013
| IP: Logged |
quote:Originally posted by Charles12: This is amusing, but it's something I've noticed over the last year.
Mhbot turns my hair grey.
I assume it's the oxidative stress, but I'll get patches of grey hair when I dive.
On the other hand, my skin looks younger when I dive consistently.
Ha
What do you mean by dive consistently? Thanks
Posts: 261 | From California | Registered: Sep 2017
| IP: Logged |
Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Hi, Friends and Fellow Divers,
I want to thank you all for your contributions to this thread! By going through the whole thing and getting the book by Dr. Harsh, I decided to get onboard!
Thanks to Phoiph, who helped me procure my set-up and has consistently answered my questions!!!
And, thanks to Digby for his personal help, also.
I've done 21 dives now, and am just composing a list of symptoms I relate to Lyme at this point, so I can do a "comparison chart" over time.
I already do a daily diary of symptoms, meds, activities, etc., and have since 2007. I use one of those daily office type two-page calendars so I can note things in the same place, making changes easier to see.
I have quite the encyclopedia of medical tests, and get some of the same ones every few months: some of them were started as far back as 2005.
LymeNet has been my go-to resource for many years! I made a donation today, and I hope others will, too.
Anyway, glad to be in on the conversation.
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
| IP: Logged |
quote:Originally posted by Cass A: Hi, Friends and Fellow Divers,
I want to thank you all for your contributions to this thread! By going through the whole thing and getting the book by Dr. Harsh, I decided to get onboard!
Thanks to Phoiph, who helped me procure my set-up and has consistently answered my questions!!!
And, thanks to Digby for his personal help, also.
I've done 21 dives now, and am just composing a list of symptoms I relate to Lyme at this point, so I can do a "comparison chart" over time.
I already do a daily diary of symptoms, meds, activities, etc., and have since 2007. I use one of those daily office type two-page calendars so I can note things in the same place, making changes easier to see.
I have quite the encyclopedia of medical tests, and get some of the same ones every few months: some of them were started as far back as 2005.
LymeNet has been my go-to resource for many years! I made a donation today, and I hope others will, too.
Anyway, glad to be in on the conversation.
Welcome You mentioned you had a list of Lyme symptoms Can you share that list? I am curious Thanks
Posts: 261 | From California | Registered: Sep 2017
| IP: Logged |
I was wondering what you set your oxygen concentrator on 8.5 9? etc
If possible could you say what concetrator you use and why that setting?
Just doing a little research Thanks
Posts: 261 | From California | Registered: Sep 2017
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Homina,
If you have an AirSep New Life Intensity 10, and are using it with a home chamber, you should set it at 8LPM.
In general, the higher the LPM setting, the lower the oxygen purity can be, so you want to set it at the "sweet spot".
Remember that when oxygen concentrators are used with a hyperbaric chamber (which they are not originally designed to do), there is a constant backpressure coming from the chamber, and flowing back into the concentrator. This makes it work harder, but it isn't a problem for this model, because it has 20psi of pressure which can counteract.
This particular model also has a built in feature (which most vendors don't know about, but this comes directly from technicians), where if the LPM are set too high (and the backpressure too great) it may go into an "on demand/pulse" mode to preserve oxygen purity. This is not an ideal mode for use with a chamber, as you want the flow to be steady.
It has been determined/recommended that 8LPM is the "sweet spot" for this model.
Other models, such as the SeQual, differ. The SeQual should be set at 10LPM and left that way. It will come down to about 8LPM during the dive due to back pressure.
Posts: 2083 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
Thanks Phoiph and Kalbyrd makes sense You say the sweet spot is 8LPM is this your observation or did you get this information somewhere else?
Posts: 261 | From California | Registered: Sep 2017
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
No, as I mentioned, it comes directly from AirSep technicians I have spoken to over the years.
Posts: 2083 | From Earth | Registered: Jul 2013
| IP: Logged |
posted
Has anyone taken their pets in? I have a kitty who likes to go in with me every now and then. She’s rather hard headed and when she wants to join me, there’s no keeping her out. She jumps back in before I can zip up. I’m just wondering how long is safe for her?
-------------------- KB Posts: 176 | From Northern VA | Registered: Apr 2015
| IP: Logged |
Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
OK--as requested, here's a list of CURRENT symptoms:
leg cramps overnight that wake me up 1-4 times a night (for the last 7 years or so) (chronic sleep deprivation)
blank spots in memory. thinking can't find words for things or remember names short-term memory poor
mis-perceiveing thinking instead of perceiving, then do the wrong thing
knees achy fatigue
Temperature sub-normal (since at least 2000)
ears itchy hearing loss
study retention very poor food sensitivities
losing things sweaty at night
I have had very bad brain fog, was sleeping almost constantly for 1-3 years, had seizures from 2007 to 2019, have brain damage that shows up on an MRI, whole areas of my past are completely gone, could not persist at doing anything, could no longer do any task requiring concentration when I used to handle state legislation for a non-profit!
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
| IP: Logged |
quote:Originally posted by Cass A: OK--as requested, here's a list of CURRENT symptoms:
leg cramps overnight that wake me up 1-4 times a night (for the last 7 years or so) (chronic sleep deprivation)
blank spots in memory. thinking can't find words for things or remember names short-term memory poor
mis-perceiveing thinking instead of perceiving, then do the wrong thing
knees achy fatigue
Temperature sub-normal (since at least 2000)
ears itchy hearing loss
study retention very poor food sensitivities
losing things sweaty at night
I have had very bad brain fog, was sleeping almost constantly for 1-3 years, had seizures from 2007 to 2019, have brain damage that shows up on an MRI, whole areas of my past are completely gone, could not persist at doing anything, could no longer do any task requiring concentration when I used to handle state legislation for a non-profit!
Thanks it sounds pretty serious I am hoping mHbot will help you You say you have done 21 dives so far .. can you say how long each dive and are you experiencing dieoff?
Posts: 261 | From California | Registered: Sep 2017
| IP: Logged |
Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
I am using Phoiph's gradient schedule. I'm now up to 1 hour at full pressure with mask--as of today.
Can't say that I'm experiencing die-off.
The one thing so far is that my awful leg cramps start later overnight (6:30 am instead of 4:30 am, so I get a bit more sleep, and the cramps are sometimes less intense.
Forgot to include tinnitus in my symptoms list! I've had it so long that it seems normal to me! LOL!!
Anyway, I'm pretty functional currently, can do gardening and some administrative work and can keep most of the housework done. My files are a mess, though. I do like having someone come in and clean once or twice a month!
This wasn't the case in 2008. At this point, my recovery had plateaued, and it is time for a BOOST!!
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
| IP: Logged |
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
While researching the use of mHBOT for Covid19 on the web, I was delighted to come across an article with an encouraging comment from "mbdq", one of the earliest mHBOT users on this thread (last LymeNet post 2015):
(Name Omitted) on April 10, 2020 at 8:22 pm:
"I am in NY and shortly after starting to have symptoms of covid-19, I started mild hyperbaric oxygen therapy via a soft home chamber, with an attached oxygen concentrator that was providing 100% oxygen that I breathed through a mask during each dive. I had previously used this setup to treat a recalcitrant case of lyme disease. The pressure in the chamber reaches 1.3 atm. I was able to get tested for covid-19 on day 9 of my symptoms and the test came back negative. My flu test was also negative. I had all symptoms of covid – fatigue, dry cough, shortness of breath, muscle pain, GI symptoms, loss of smell, etc. I definitely felt the hbot treatments helped. Perhaps they made my test negative as well. Awaiting antibody testing to confirm I had it. After two weeks of illness, I now feel well."
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic