posted
With a basal temp that low, I'm surprised your doctor hasn't raised your thyroid dose. And yes the 50 mg of Iodoral can cause pretty intense anxiety. I would think 6.25 mg is low enough to be safe.
Posts: 564 | From NW Arkansas | Registered: May 2003
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Well, Digby, it's partly my fault because I haven't told her. I'll make the appointment tomorrow. I didn't realize until I read about taking my basal temp being a good indicator of thyroid treatment success. I would say in the last month it's come to a head in that I can't shrug off the symptoms any more. Dr H and all my docs felt like at 195 of nature thyroid and a suppressed TSH that they haven't known what to do. They even tested me for bone loss in my urine repeatedly and there has been none. Okay, time to deal. Thanks, Digby. I really needed the push. I'll call tomorrow and see if I can go in with a list of tests to ask for. She's really pretty open so at least I know how to read my labs etc. Perhaps we will be able to help each other.
In terms of doing 50 mgs of iodine, I'm truly concerned. Good to know the 6.25 should be safe. Quite frankly I don't think I could handle 50 just with my reaction to 6.25. I think I'll stay at this low dose and see if it helps any. I have been warmer and I'm sweating a bit. Big improvement.
Thanks again, Digby! This team rocks! Posts: 859 | From Southeast | Registered: Mar 2011
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Willbeatthis: Just wanted to pass along some information my daughter gave me yesterday. I've looked at her blog before but haven't investigated it. She is a pharmacist who was diagnosed with hashimoto's thyroid at 27. She's got amazing information and has written two books.
Given your current symptoms and problems with the thyroid, she might have helpful advice on how to attack the problems.
posted
Thank you Soccermomma! I go to the doc Monday and will be reading up furiously prior. Honestly, I've been eating a boatload of cauliflower that I rice- and this too could be part of the problem. Thank you again for thinking of me. Look forward to reading up!
Digby too Posts: 859 | From Southeast | Registered: Mar 2011
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posted
I ruptured the ligament in the bottom of my foot playing tennis, does MBOT help in healing ligament tears?
Posts: 100 | From Kalamamazoo,Michigan | Registered: Feb 2015
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kgg
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posted
Ouch! Jcarlnew that must hurt. I would say yes it will help in healing. Unless it is not attached. In which case, I would think you would need surgery then the hyperbaric.
Posts: 1844 | From Maine | Registered: Jun 2004
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Phoiph and reminder, Thank you for your thoughts and love. I'm not in a hurry. I only dropped it by .12 and I won't drop it again for another couple of months.
I don't really have any reason to rush it, except I don't like being on such an addictive drug. I don't feel like it's helping anymore.
I do agree that the withdrawal puts me back, so maybe waiting is a good idea... But I bounce back after a few weeks... hmm.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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Phoiph
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jcarlnew~
That sounds very painful.
I partially tore my Achilles tendon when I started to become active again after being ill for so long. I believe the tendon was weakened as a result of the quinolones I had taken for Bartonella years earlier (that didn't help me, BTW).
It was very swollen and painful, but it healed well with mHBOT (no further problems), although it took time.
mHBOT is very popular with professional athletes and in sports medicine. Here are some references in regard to how it helps soft tissue injuries:
•HBO has the effect of inhibiting leukocyte adhesion to the endothelium, diminishing tissue damage, which enhances leukocyte motility and improves microcirculation [Mortensen, 2008].
•HBO reduces edema, partly because of vasoconstriction, partly due to improved homeostasis mechanisms. A high gradient of oxygen is a potent stimuli for angiogenesis, which has an important contribution in the stimulation of reparative and regenerative processes. [Mortensen, 2008].
•Hypoxia in normally perfused tissue typically occurs in sports injuries due to an inflammatory response and edema. HBOT corrects hypoxia and dramatically reduces inflammation and swelling.
•HBOT increases fibroblast replication and collagen production. It also raises the RNA/DNA ratio in the tissues, indicating increased formation of rough endoplasmic reticulum of cells in the wounded area.Posts: 2072 | From Earth | Registered: Jul 2013
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posted
Thanks Phoiph, I will go on the attack.
Posts: 100 | From Kalamamazoo,Michigan | Registered: Feb 2015
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Phoiph
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jcarlnew...
Have you had it looked at? As kgg suggested, a total rupture would be a different story...
Posts: 2072 | From Earth | Registered: Jul 2013
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Yes, went to podiatrist, ultrasound identified aerial tear/ rupture was his worlds. Crutches and air boot. Time is the treatment but also am doing cold laser, MBOT and ultrasound. It developed classic rupture bruising. He pretty much said use it to pain tolerance. No major activity for quite a while. He even said I could ride my recumbent bike. Wife thinks I should be completely off for 2 weeks but not what doctor said. He told me he has never seen somebody make a tear worse. As it was the plantar fascia ligament sometimes when they do surgery for PF they actually make little cuts to release tension. Weird !!!
Posts: 100 | From Kalamamazoo,Michigan | Registered: Feb 2015
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Has anyone experienced vertigo/dizziness as a result of hbot. Last night when I went to bed, I laid down and had dizziness so badly it made me nauseous. When I looked at my clock it was going round and round.
I don't know if I jerked my neck when I laid down or what. I eventually took a zofran and ativan so I could sleep.
In the morning it was improved but still there. It's gone now but I was just wondering if anyone else experienced it.
Posts: 538 | From kentucky | Registered: Nov 2011
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Phoiph
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jcarlnew~
Sorry to hear this, but very glad you don't have to have surgery, and you have your chamber to help heal this injury.
It will be interesting to hear what the podiatrist thinks of your progress in relation to others that don't do mHBOT and these other therapies...
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
I am so sorry to hear this JCarl.... It sounds like you are on a healing plan. If you can get your hands on a photon machine, the healing frequency helps to heal things of this nature too.
I am glad you have a solid plan.... God Bless You! I am sorry you are going through this....
Soccermama, I am sorry you are going through this. I have not gone through this exact thing but I think weird things are to be expected. Maybe dial back your time right now? Bless you....
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Willbeatthis I have a PE1 Photon machine, would have to check frequencies but thinking to many things. Might be overkill. MBOT #1
Posts: 100 | From Kalamamazoo,Michigan | Registered: Feb 2015
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posted
Phoiph,it has become progressively harder to snap in my hose. I called the company and they sent a new male end that attaches to the chamber; it worked a few times but it is still hard to snap in. They are sending another piece although I'm not sure exactly what. Do you know what is wrong with it?
Soccermama, I had a dizzy feeling when I started along with intense anxiety and backed off a bit or took awhile longer to increase and it went away. Mine only lasted for a few hours at most. Is yours transient or does it stay awhile?
Posts: 64 | From Washington | Registered: Aug 2015
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kgg
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Soccermama, I have had that but not associated with mHBO. It is horrible! If this was me, I would inflate and deflate much slower. It may be ear pressure related.
Additionally, before I started diving would get vertigo. The Epley Maneuver helped me with the vertigo. The theory is that there are crystals in the ear that have migrated to a place that causes the vertigo. The maneuver gets them back where they should be. You tube has some good videos on how to do it.
Hope it passes quickly for you.
Posts: 1844 | From Maine | Registered: Jun 2004
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Kgg, My husband did that maneuver on me the following morning and the vertigo went away. We learned about the maneuver when I went to Cleveland Clinic.
Jolley and Kgg, I think it might be ear pressure related also. I have increased my inflate time because that is when I seem to have the most problems.
It's actually just my left ear. My right ear has no problems.
Willbeatthis: Your right that the chamber will probable cause weird reactions. I think it is from the body's transition from the immune system.
I'm going to keep plugging along. It has only been 11 days at full pressure with oxygen mask.
Posts: 538 | From kentucky | Registered: Nov 2011
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posted
soccermamma.....full pressure with mask....nice and congrats)
-------------------- Chronic Lyme Posts: 36 | From Florida | Registered: Jun 2016
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Phoiph
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Good reminder to all of us to take our time when inflating and deflating. It is not just better for your ears, but for your whole body.
Jolley...do you need to take the compressor hose on and off every time you dive? If so, it might be wearing out the connectors a little faster (I have had this happen).
If you have to disconnect the hose each time (for storage of the compressor or whatever), maybe alternate between the compressor and the chamber ends (or if one end becomes a problem, leave that end connected, and only disconnect and reconnect the other side).
Just be sure the connectors are always securely snapped in; you don't want it to disconnect while in the chamber (this has happened to me also).
Hopefully they aren't charging you for the new connectors?
Posts: 2072 | From Earth | Registered: Jul 2013
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Thanks Phoiph. I normally unhook them due to space issues. Yes, I think it is $40 or so to get the new parts. I am just glad Oxyhealth will pick up the phone when I call to assist.
Posts: 64 | From Washington | Registered: Aug 2015
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Yes, I do remember one day not taking proper time to decompress and I did feel veritigoish. I'm sorry I forgot that.
A little update, still making progress. Most days I'm at 90 minutes(newbies don't do this) but an hour when that's all I can manage. Upped my time when the Bart was going nuts in my feet. That has resolved! And knee pain is starting to as well. Now I have to add, of late, I have begun a ketogenic diet. Yesterday was the first day I can remember in a year or so having NO knee pain when walking gently on the treadmill. I nearly wanted to take over the gym dancing. They already know I am very much my own person! Ha!
Okay, the keto diet was started because all I would have needed was a redwood deck- I was bursting out my clothes, eating cauliflower,veggies and lean protein and ravenous all the time. We'll, something had to change. Also I had terrible bloating after meals-thats gone too. Maybe I had some SIBO. *And the CLARITY!* I can be a little work horse now!
No doubt this is tied to hypothyroid as well- thanks for everyone's help. I actually see the NP of a chapter author tomorrow of Stop the Thyroid Madness. Dr. S. Ironically enough he's an ILADS doc as well. Fingers crossed!
So now I'm eating high fat, mod. protein and trying for below 20 carbs. Get this, I can eat macadamia nuts, just ordered some sprouted and I have sprouted almond butter. Sorry Phoiph- if I've committed to something- which I was I Autoimmune Paleo- I'm pretty dedicated. I had heard you though- just was too afraid to take that dive. Mom died of Amyloidosis- a blood cancer essentially, and likely Autoimmune.
Praise God for Mhbot, functional medicine, MD medicine when you need it and caring souls like you all!
Jcarl I hope you are healing up nicely! HW- how you? Kgg? Digby? Soccermomma- I pray things are smoother! Jolley always good to hear from you.
Onward and upward! Gentle hugs to all!
Posts: 859 | From Southeast | Registered: Mar 2011
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kgg
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Willbeatthis, you sound like you have made amazing progress! WootWoot!! I am a little confused about what diet you are undertaking. Keto or Autoimmune Paleo? Are they not similar?
I am continuing to dive daily. I am still attempting to find out whether mold in our home is causing a health problem for myself and son or not. It is not a quick process. That tends to take up most of my mental energy. Trying to get my vegetable garden in and my perennial beds weeded takes up my physical energy. I am very grateful to have energy for both!
I am still impatient with my health as far as recovering from my appendectomy. Since I have not ever had surgery with general anesthesia before I don't know what to expect. People tell me to be patient. That is not my strength. =/
Would love to hear how others are doing. =)
Posts: 1844 | From Maine | Registered: Jun 2004
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Hi Kgg- Well, yes, there are similarities between the diets but I didn't limit protein or veggie carbs and was not using much fat. Thus I've drastically reduced veggie consumption- still eating them but in normal portions. I guess Weight Watchers stayed with me all thse years and I tried to fill up on veggies. Eating loads of them - clearly because I had no fat for satiety. Paleo Auto Immune does not do nuts at least in the intro phase. Well macadamias and sprouted nut butter and coconut oil have been great. The book Keto Clarity is great! Tonight I counseled three students back to back and I was on - like the old days! I'm loving it. Truthfully, if I lose weight great. If not, I'm free from this hunger roller coaster, can think more clearly than I have since getting lyme and the inflammation reduction is leaving me nearly pain free. Now, I think mhbot has a real chance.
I am so sorry you are ferreting out whether you have mold. I've been there 3 times and it is an exhausting feat. When you get your place mold free- if it's there, you may get feeling much better soon! Yes that patience word is hard. Hang in there. We are all thinking of you and knowing you'll be on to the best days yet! Thanks for the support and encouragement!
Posts: 859 | From Southeast | Registered: Mar 2011
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I am happy that you started the Keto diet. I firmly believe it accentuates the mHBOT benefits. That and not taking antioxidants really helped me.
Posts: 564 | From NW Arkansas | Registered: May 2003
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Phoiph
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As I recently looked more closely at the Keto diet, I realized that it has been the way I have been eating for years.
Even when I was very ill and down to 5-6 of the same foods for those years, unbeknownst to me, they were keto foods.
When I started to improve with mHBOT, I was unknowingly adding more foods from the keto diet. I continue to eat this way.
I have always known that nutrition, especially lots of good fats, played a large part in my recovery.
Thanks to Digby for connecting the dots between the Keto diet and mHBOT
P.S...I didn't take antioxidants either...
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
I am going to have to look into the keto diet. Honestly that is a struggle for me. Trying to combine a paleo, low histamine, and gastroparesis diet has had me stumped. I'm going to check into it. I'm not nearly as nauseated anymore and am tolerating more foods. I feel like that piece is missing for me.
Glad to hear of everyone's progress. I'm still doing the two steps up one back dance, but overall I'm happy with the progress and much better than I was a year ago.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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This is great to hear HW88! You are much better than you were a year ago! Hooray!
You definitely have some diet limitations. I think if I had not done Gaps and still do to some extent with bone broth etc - I always have that on hand. I use it as the base of smoothies- cold of course and low carb. That diet really helped me turn the corner. So far, I'm tolerating macadamias and sprouted nut butter right now and I love it. Wish I had more for you! You'll fix this too! Happy for you!
Posts: 859 | From Southeast | Registered: Mar 2011
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Foot is coming along good. Prayer, MBOT, cold laser and transdermal ibuprofen seem to be helping.
Posts: 100 | From Kalamamazoo,Michigan | Registered: Feb 2015
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kgg
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Good to hear, Jcarlnew!
Posts: 1844 | From Maine | Registered: Jun 2004
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Reminder, are you asking if I can eat eggs or cheese, I wish... dairy is the worst of my allergies, gluten and eggs next. It's definitely a learning curve ferreting out how many carbs, how much protein and fat I can eat to stay in ketosis. I just ordered a blood monitor so I'll feel better moving forward. I suspect I can eat an awful lot of fat- 80 or so grams, 20-30 of carbs and about 60 protein. Quite frankly if someone had told me I'd be doing this, losing weight and feeling mentally clear and better than ever- well, suffice to say, I had such a fat phobia from being an overweight teen and dieting from then on basically - well I wouldn't have believed this was possible.
I am thankful for the others out there like Phoiph and Digby that have shared their experiences in such profound ways. Finding our ways out of all this... the support along with mhbot is more valuable than I can express.
I hope this may help you Reminder. This is such a special team! Hugs all! Posts: 859 | From Southeast | Registered: Mar 2011
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Phoiph
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Unfortunately, many of us grew up in the "low fat" propaganda era, and weren't aware of the differences between good and bad fats. The pressure to be very thin was also very high at the time, and so there were a lot of "food substitutes" (e.g., margarine, saccharine, aspartame) designed to cut calories from fat and sugar.
I believe eating this type of low fat diet for years, combined with over-exercising can deplete many crucial nutrients, including Vitamin A. This can potentially make one vulnerable to illnesses later in life.
Although I though I was healthy, I often wonder if this type of lifestyle contributed to the severity of my Lyme illness, as I may have had less reserves.
You can Google "Weston Price" for great information regarding diet, fats, recipes, etc.
Posts: 2072 | From Earth | Registered: Jul 2013
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Wondering what brand of bone broth.. (I know it's probably best homemade, but being honest, it won't happen.
So happy to hear everyone's progress. I had some big family stress come up (We are moving) and I took a major dip.
Stress seriously does a number on our bodies. Before that, I actually slept through the night for several nights in a row.
That is unheard of for me for YEARS! Now I'm back to not sleeping. Doh. But those night I did sleep...ahhh. the BEST thing ever... it will come again. Gotta keep the stress level low with this move somehow.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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Phoiph
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HW88~
If you look up the Weston Price chapter in your area, you should be able to contact them for local sources.
Also, there may be Amish farms in your area that sell broth.
If you don't find one, I know of an Amish farm in Pennsylvania that makes/ships broth, fermented foods, grass fed butter, beef, etc. I can check in with them if need be.
Posts: 2072 | From Earth | Registered: Jul 2013
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I thought I would post a quick update, considering I had to "Unread", private messages from those inquiring about my "Health", years later! I want to first start off my stating I don't necessarily "Dive", or even eat for that matter the way I initially did when I first started diving!
With the aforementioned being said I both currently are & planning to change both these variables now that I have a little more time to do so(-:
I currently dive every couple months, for one hour duration "And I personally don't use my air concentrator".
The reason I don't dive more often is because my "Herxes", have always for the most part been somewhat difficult however this is my fault I believe?
If my diet were (IE) better as history has illustrated then my Lymphatic System, wouldn't have to do so much darn work getting rid off the left over debris "MHBOT", destroys!
I have noticed that when I personally "Dive Outside", "Earth", "Eat Clean", "Drink Lots Of Water", a few days leading up to the dive the Herx is usually roughly 50% less!
Two weeks ago, after not diving for over three months I became super fatigued etc. As history has illustrated I knew it was time to "Dive". So here I am two weeks later feeling much better & really focusing on what I need to do in order to start diving more often!
I made a ton of progress when I was diving five days a week initially, and plan to get back to that schedule this year "Slow & Steady"(-:
Looking back on this whole journey I truly believe things like "Environment" are often times overlooked! Of-course "MHBOT", "food", "earthing", "Magnet Therapy", "Increasing Voltage", in the body all helped while healing however "Environment", also plays a crucial role!
I'm also incorporating a more rigid "Training Program", into my protocol lifting extremely heavy "Iron", for only 25 minutes 2-3 times a week!
My Theory is that by doing so my pituitary gland will be forced to produce more Growth Hormone, which will strengthen my immune system!
This thread along with an abundance of genuine altruistic love & guidance from "Phoiph", saved my life!
I will post here once again after I start diving more regularly coupled with some of the the other variables mentioned above. I have already started incorporating "Lifting Heavy", which I tend to have flare up from for approximately 6-8 hours after training!
So after reading the above I hope this gives some of you "Hope"(-: I personally believe the potential of MHBOT is still in it's infancy!
We are learning more and more about the awesome potential of this amazing healing modality everyday often times via forums such as this!
I also truly believe that I personally will achieve or attain a level of health more akin to "Phoiph", once I start diving more regularly again!
It's not fair to compare myself to "Phoiph", as I haven't exactly been the best student at times "Chuckle"(-: Once I figure out a way lessen the blow pertaining to "Herxes", which I will do make no mistake about it "Game Over"!
I know some of you out there are extremely ill right now, however please hang on there is "Hope"!
I had lost all Hope after years go going to a myriad of different doctors etc as we all do with nothing seemingly getting better....only worse!
My encephalopathy was so bad I literally couldn't think my way out of paper bag. My story is documented here for anyone who wishes to read it!
If anyone has any questions please feel free to message me, and I will get back to you ASAP! I'm sorry I didn't reply sooner to those who messaged me...for some reason I wasn't alerted or the alert ended up in my spam folder)-:
In closing this thread has awesome potential should one step out and take a true leap of "Faith", or in Greek "Pistis"!
The genuine "Agape", or Love here without question saved my life! I sincerely hope some of you here are making progress and wish you all the best! Posts: 50 | From San Diego | Registered: Jan 2014
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Thank you phoiph and digby for the recommendations. I will look into it.
I've been diving for 2 months. It is a dance for sure. back and forth. But I have had better days than I have in years. And the down days still stink, but more and more good days are coming. The best is yet to come.
Thanks for the hope looking4hope. I think that is one of the things ALL of us need during this journey over and over again. Hope.
I still feel diet is my missing piece. Trying to figure out some balance there.
thank you all for the love and hope!
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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HW88, Always remember how fortunate you are to have a chamber for the rest of your life! It will undoubtedly serve you well for the rest of your life should you need it for anything!
Your absolutely right "Diet", along with increasing voltage in the body are "HUGE". I found that when I started diving outside on "Concrete", or the grass it really helped mitigate my Herxes and increase the efficacy of my dives!
Your on your way to healing "I can tell", after years of both personal experience and that of hearing from others!
Your going to have your "Good Days", and "Bad Days", however just remember many of us have gotten through it and so will you(-:
Even though I knew the Herxs would eventually fade while I felt like some of them were going to last forever! The faster you can figure out a way to lessen the blow pertaining to the Herxs the more inclined you will be to complete more dives.
Give yourself time to heal this isn't race but rather more akin to a marathon.
If one was to help a Buttterfly out of it's cacoon to fast one might damage the butterflies wings. My point being even though the butterfly made it out of the cacoon it died shortly after because the process was "Rushed"(-:
Your not alone and have an abundance of help via this thread should you need it! Just reading some of these threads while I was super sick personally gave me "True Hope"...they still do from time to time when I come back!
Keep doing what your doing...sometimes the changes are so small that they almost seem negligible! However eventually all of those negligible changes will be extremely noticeable in due time to both yourself and those around you(-:
[ 06-29-2017, 07:53 PM: Message edited by: Looking4hope ]
Posts: 50 | From San Diego | Registered: Jan 2014
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Hi HW88: Yes, please hang in there. This too will pass. Yes, just figuring out how to handle the stress of moving, maybe doing a little bit each day in preparation might help you. When I had to move, I tried to reframe it. I cleaned out stuff so that when I moved, it was a a paring down experience and honestly, having done a little each day, well, that is what got me through. We are thinking of you... Yes, Digby's and Phoiph's recommendations are great. Believe it or not, it really is not that hard. If you have a Whole Foods or something around you that can cut a whole chicken into 8 with the backbone- no gibbies, and then you just put that in a pot with some salt and water and I put it to a boil and then bring it down to the lowest temp and leave it overnight. I then take the meat from the bones in the morning. It is healthy for you as it is easy to digest cooked like this. You transfer the broth to a glass container - I like the 8 cup rubbermaid glass ware and cool/store that in the fridge. It will typically gel up. Good stuff. Then, after getting the meat off, take those bones and cut them up and the skin, cartlidge etc and put that back in the original pot with water and boil that for ( I use a slow boil if I have a lot of time) and a rapid boil if I don't and can be right there watching it. I do the best I can too with this. Generally I let it boil for 12-14 hours if I can. I learned this from GAPS. You then strain that and the broth if you didn't strain that originally and put it in a pot and yum, yum, you've got what you need. Now there are more fancy recipes and ones that include ACV- I just stick to what I learned from Gaps. Seems to have served me well. It really does the work on its own assuming you've got a butcher. I am not so good with butchering a chicken so my butchers have truly become friends to me on this journey. God bless them. I hope this may help you!
Phoiph and Digby.... You are SAINTS! Thank you for all of the love and encouragement!
Looking4hope- Glad you are finding your way to healing. I think we all have such unique journeys.
So far so good in these parts I am navigating the ketogenic diet (had some food allergy flares- macadamia nuts and avocados) but it seems now that I cleared those out, I am in a better place. Just ordered a ketonix. Found a good deal on ebay. That way I can measure my ketones without pricking. I found I was not too good with that.
Trying to sort through the information on Candida as it seems to be flaring but I believe it is more of a cleansing. Paul Jaminet says Keto is not good if you have Candida (I think I only have a bit left)-- but quite frankly, if I ate his Perfect Health Diet- I'd have a bad case of candida. So, it is honestly such a personal journey for each and every one of us.
On a hooray note, I seem to be handling chemicals better. I had to have some work done around the house that would have set me back in the past I believe so -- goodness, I am grateful to MHBOT and to Phoiph, Digby and all those that contribute here! Onward and Upward!
HW88- I will be praying for your peace, comfort and strength through your move....
Posts: 859 | From Southeast | Registered: Mar 2011
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Hi All- to comment on my last post re: ketogenic diets and candida, if you listen to Jimmy Moore's podcast number 25- a doctor was on there saying that the Jaminet info was outdated and a fallacy. So indeed, I'm getting rid of the last little bit I have. Hooray! Very interesting this journey! Hugs All!
Posts: 859 | From Southeast | Registered: Mar 2011
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I wanted to report my status. After reaching 60 minutes full pressure and oxygen mask on June 9th, I had an abdominal flare three weeks later that sent me to the emergency room.
I spoke with Phoiph and decreased my time but my condition has not improved. I stopped the chamber a week ago and I'm still not at my "baseline" normal.
I have a 15 minute phone consultation with my LLMD and will be asking him about what could have caused this flare up and why is it still here.
Needless to say, I'm feeling pretty disheartened and am currently afraid to chamberize.
Posts: 538 | From kentucky | Registered: Nov 2011
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Oh soccermama, I am so sorry to hear this. I think you are wise to speak with your LLMD. I am praying for your healing.
When you say a stomach flare, what exactly do you mean? Is it possible you had real GI involvement and the oxygen was hitting it. I know if it sent you to the ER it had to have been scary. Just trying to better understand. Glad you are talking with your doc soon. Thinking of you!
Posts: 859 | From Southeast | Registered: Mar 2011
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The stomach flare is abdominal pain and nausea. It starts in the morning and is unrelenting. It is the first symptom I experienced in 2011 and has remained on and off despite treatment.
There is no rhyme or reason and I can't find the triggers. My doctor believes that it is mast cell activated. He also thinks that most of my symptoms are mast cell related.
He was not the original doctor that I saw in 2011. I never saw the gains from lyme treatment that I thought I should from antibiotics. I was bit by a tic in May and started on herbal treatments five months later with antibiotic treatments in January.
My doctor doesn't believe that mHBOT is curative for lyme or mast cells and actually thinks that the oxygen could have activated my current condition. It is his opinion that I should stop the chamber.
My husband disagrees. He said that even good, open-minded doctors can rush to an opinion and he thinks I should get stabilized on the medicines my doctor is recommending and start back in the chamber with a very slow progression.
Posts: 538 | From kentucky | Registered: Nov 2011
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Soccermama, I am so sorry that you are having these gi symptoms. So hard. Are you able to pin point the pain?
Let me tell you about my experience and see if it resonates. I would wake up feeling a little off. As the day went on I would feel worse. By noon I would be in bed nauseated, diarrhea and feeling yucky. There was no specific place to point to that bothered me in my abdomen. Then as it resolved I would be aware of lower/mid right sided discomfort. It would last a few days as I slowly got my appetite back. It would occur episodically. After a year, I found out it was my appendix.
I had a colonoscopy. Clear. I had a GYN ultrasound, clear. I did not have an elevated WBC. And only ran a low grade fever if any.
I truly hope that they are able to get to the bottom of this for you quickly. Nausea is just the pits.
{{{Gentle hugs}}}
Posts: 1844 | From Maine | Registered: Jun 2004
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Sorry you are having nausea and pain. I also have mast cell issues and find diet really tricky to figure out. In my case foods and environmental allergies trigger me and mHbot does not. Keep us posted.
Posts: 64 | From Washington | Registered: Aug 2015
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posted
Hi Soccermomma- Kgg really shared some good info. I hope it helps you. I'm sorry to hear you're going through this. It sounds really hard. I agree with your husband. I will be honest in saying that nothing has helped me as much as this has so far. I hope you can slowly build back up when you're stable. Godspeed.
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Wow, thank you for the support and love!!! I've been working at going through a little each day to prepare for the move and then relying on my husband, like I do for everything else. He's the BEST!
Soccermama, so sorry for the flare in stomach issues. Nausea was one of my biggest symptoms for so so long and MISERABLE. It is finally starting to do a bit better. I had a gastro emptying test done and my vagus nerve wasn't pumping my food in my stomach. It would just sit there.
Most if not ALL of my symptoms have been due to the nervous system. NOT FUN!
I remember the first time I heard my stomach gurgle and felt it move. It was amazing. Lol.
After almost 2 1/2 months, I've worked up to an hour in the chamber with 50 minutes of oxy. Only 10 more minutes to add on.
Sending hugs to all in need today!
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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