posted
HW88: My hormones are back in a day like Peimomma. I've used labcorp too. Have you already paid money to these folks re: consultation and for labs? If not, I would encourage you to look around maybe to some other resources. There should be folks near you - aren't you in Cincinatti- that are quicker. I go to someone that is a Gyn that specializes in bioidentical hormones and she's amazing. A month is a really long time if your hormones are out of whack. Not trying to sway you just trying to find you a quicker solution than a month.
How are you doing now that you have been off ABX since the first or so of December? Has there been any improvement? Have you tweaked time, talked with Phoioph etc? I am a bit concerned you may need some medical guidance at this time re: Lyme and cos. I have had to definitely dive but continue other methods of treatment. As I told you, I am still on herbs and rife. Though my rife thankfully is a lot less than it was. But recently I had to go back on herbs for babesia as it was a marked issue. Is has calmed down and I will work to get off of these things too at some point. My doctor just for the record said that most everyone in their office that uses mhbot is strongly encouraged to also have babesia coverage. Am I hoping long term the immune system completely takes over- yes, and I encouraged it will but I think we are all different and you have to heed that inner knowing and have good help (Phoiph) and medical advice I think. Thinking of you.... Hoping that you are better than you were in December and January and that February and March you have seen some improvement of some sort.
I am keeping you in my thoughts and prayers and I am confident you are on the right path with mhbot, I just think we all have individual differences which demand a protocol that is aligned with you uniquely. Hang in there and I hope I hear you have had some improvement. Thankfully there are experts on this thread and I know they have been helping you along the way.... just want to make sure you are a-okay. Will check in tomorrow. Hugs!
Posts: 859 | From Southeast | Registered: Mar 2011
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It is a urine test collected over 18 hrs. They explained to me why this is better and how they can get a better picture from it all, but 4 weeks seems FOREVER to get results. Plus, I have to use an ovulation kit to figure out when I ovulate, then add 7 days and that is the collection day.
Uggh. I'm REALLY hoping they can help me sleep. Insomnia is a nightmare (literally) right now.
willbeatthis, I have been in contact with Phoiph. I haven't addressed this with my Dr. because if I've chosen to NOT do antibiotics, there really isn't much he can do for me at this point. If I have to go back on antibiotics, I will contact him.
Luckily, I have done better than January and February. I've come out of the dive mostly. Insomnia and fluctuating hormones tend to throw me still.
I really like the place that is testing my hormones, so I think I'll stick with them for now and hope it will be worth it in the long run. They had GREAT recommendations from some friends.
Thank you all for the thoughts. I'm REALLY hoping my hormones are the insomnia problem and it will at least help some. I finally fell asleep at 4 last night with the help of several aids. Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
I have to say when they put me on P this last month I was out like a light. Definitely helps sleep and you take it before bed only 15 days a month. Some like creams better but I’m really bad at the creams and much better at remembering a pill.
Posts: 238 | From AZ | Registered: Jan 2015
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kgg
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Peimomma, it is my understanding that the cell size of Progesterone is too large to be effective as a cream. At least that is what my Naturopath said. I love progesterone. Helps me sleep and gives me a sense of well being that I really miss when I am not on it.
HW88, that makes sense that it is going to take that long if they are going to time the collection with your cycle. Just seems like a long time when you are not sleeping. Hope the time passes quickly for you.
Posts: 1844 | From Maine | Registered: Jun 2004
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posted
Thanks peimomma and kgg. It is a long time when not sleeping.
This specific place only uses creams. They feel they work better in the long run and don't have to worry about absorption issues in the gut and the liver doesn't have to break it down.
I've heard both ways. I guess I will just see if it works and if it doesn't, I'll move on to a diff. doc and ask for the pills.
How long did it take after starting HRT to see a difference?
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
Hi HW88: Thanks for clarifying that you are improving even if it is in little bits.
I am glad you have been in touch with Phoiph. What you were describing just plain worried me.
Sounds like you have it all under control as best you can right now. I am relieved to hear that you are better than you were. I think coming off ABX can be REALLY hard. Again, so glad you are on the upswing
Keep us posted with your hormone success. For me, it pretty much helps right away. I am hoping the same for you. I am glad you found a place you like. Sometimes that is worth waiting for, regardless! Hang in there Thinking of you...
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Yay for you, HW88! I am keeping you in my thoughts and prayers. Keep us up to date with your milestones. I know that when I used the GAPS diet while on ABX, it really helped me turn the corner and may have been part why I could get off. I know that is such a tough spot to be in and very depressing. I crashed each time they pulled me. I am so glad you have found mhbot. I think you will be very thankful one day soon of some real gains. Hang in there and keep working on that gut.... I think it may really help you. GABA my doctor recommended for sleep with melatonin and those things are helping me as well. Just thought I would through that info. in. My sleep has been WAY messed up. Thinking of you and the rest of our team!
Keep the Faith! You too can be like Phoiph, Digby, Lymeboy, Peimomma and I am thinking I am getting there too!
Hugs to all and thanks always for your support! XO
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Update 10 dives Hello All I have done 10 dives so far No noted improvements so far The first dive I had hot urine a few hours later Subsequent dives I have had same thing to a lesser degree.
I get a herx after each dive and I have to lie down for a little and I get kidney pain as my body filters die off I use coffee enemas to take the load off of my kidneys and drink lots of water I also get a real itchy scalp after some dives and I notice the skin on my face tightens after each dive. If I eat before a dive it is better if I dive on an empty stomach it takes a lot out of me
I have been diving three times a week for one hour and also sixty five minutes on a few dives I did one dive for 70 minutes but it was to much
I can't dive daily because of die off but I am going to try every other day
I am using a newtowne 27 inch chamber and an airsep New life intensity oxygen concentrator set on 8
Thanks
Posts: 261 | From California | Registered: Sep 2017
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kgg
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Thanks for the update Hominahomina. Are you diving at home? Many of us did not start out diving for a full hour. I used a method of ramping up on the dive time. That way the herxing is more manageable, imo. I will post the schedule I used below.
The oxygen can be drying. So I use coconut oil melted on my hair once in a while.
It also can lower your blood sugar. So it is good to eat something before you dive. I found when I didn't I would come out of the chamber really grumpy.
Week 1 Days 1-3: 20 minute dive at full pressure (not counting compression and decompression time). Do not wear the mask, but set it down inside the chamber so the oxygen is flowing in, mixing with compressed air. Days 4-7: If no major reactions are happening, increase full pressure time to 40 minutes. If having previous reaction, stay at 20 minutes (still no mask; just let oxygen flow in and mix with compressed air).
Week 2 Days 1-3: If no major reactions, increase full pressure time to 60 minutes. If having a previous reaction, stay at 40 minutes (still no mask). Days 4-7: If no major reaction, continue with full pressure 60 minute dive, wearing mask for 20 minutes, and laying it down in the chamber for the rest of the dive. (If having reaction, don't move forward; stay at last step!)
Week 3 Days 1-3: Continue 60 minute dive, wearing mask for 40 minutes, and laying it down in the chamber for the rest of the dive. Days 4-7: Continue 60 minute dive, wearing mask for entire 60 minutes.
Again...don't move forward to the next step until you're not having major reactions. It is best to move up slowly so your body has time to detoxify and adjust. You don't need to wear the mask while you compress (so you can clear your ears freely), but do wear it when you decompress.
Posts: 1844 | From Maine | Registered: Jun 2004
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posted
I did something similar kgg, but it took me longer than 3 weeks. It took me 3 months to get to full hour plus oxygen. I increased time first, then once I reached an hour, I started adding oxygen 5 minutes at at a time until I reached the full hour.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
Hi HH (Homina Homina): I did a similar thing that KGG and HW88 did in terms of getting to a full hour. I think Phoiph has posted on this thread that this is the way she did it. You have to work up. I think that is why you are experiencing such die off. Hang in there! It will be worth it!!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Thanks KGG HW88 and Willbeatthis I have been using antibiotics herbal tinctures and essential oils for about six years trying to kill this stuff off and I have made some progress. When I read of the great success some of you are having with HBOT I was impressed so I was able to get a chamber myself Thankfully
Since I have made some progress so far I am comfortable with a mild herx, in my mind that shows HBOT is working
Phoiph
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posted
Homina~
Yes...taking it more slowly in the beginning will avoid a crash and setbacks later.
Some people will go full tilt in the beginning, as they may feel better initially, and then crash after a couple of weeks.
"Herxing" is very stressful on your body, and a sign that you are releasing toxins faster than your body can naturally clear them.
It is really better for your body not to "herx" to the point that you can only dive 3 days per week. It would be better to do less per day in the beginning and work up slowly, as that may enable you to dive more days in a row and build consistency.
Remember...the point of mHBOT is not necessarily just to kill the microbes (although this is a benefit), but to heal your immune system so it can begin to do its job effectively again on its own. The purpose is also to regenerate and heal the body systems, and this process takes time and patience, as there are many layers to traverse.
It requires a different mind-set than what some people are used to with antimicrobials, etc.
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
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posted
Posted by Tincup on a separate thread:
"Since Malaria and Babesiosis are kind of kissing cousins, thought this might be of interest to some."
Inhibition of hypoxia-associated response and kynurenine production in response to hyperbaric oxygen as mechanisms involved in protection against experimental cerebral malaria.
posted
I know we are all different, but I sure would like to know when the swings stop and healing is more of an upward movement.
I sent in my hormone test. Now I just have to wait 3 more weeks to get results. I think it will be worth it. This test is SUPER comprehensive.
I felt really good at the beginning of the week. I took my kids to a museum and stayed over night in a hotel with them. I was happy and enjoying the day (mostly).
Then I hit my period yesterday and BAM! I'm on the couch praying for a miracle.
Any others that went on HRT have crashes during hormonal changes with lyme before starting therapy and did it help after you started therapy?
Still keeping up my daily dives.
Would love to hear from anyone on how you are doing?
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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kgg
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HW88, so happy to hear that you had a time of feeling good enough to travel and go to the museaum. Yay!
I can't say whether mHBO helped my periods because I no longer had periods when I started diving regularly. I can say that I always felt horrible with my periods. I had to go on the pill so that I did not miss class time in nursing school because I was out of commission for 3 days every month. I did not know I had Lyme at the time.
I hope that the test is more than helpful to you and the doc.
I am not doing great and I am not sure why. I am having a flare which includes a daily afternoon low grade fever and fatigue. My mood is weepy, which I hate. It has been going on for about a month now. The fatigue longer than that. I don't know the exact # dive I am on, but it is 450+. I am finding it discouraging and I don't have a Lyme doc right now. And even if I did, going back on antibiotics is not appealing. I am not sure what I am going to do.
Posts: 1844 | From Maine | Registered: Jun 2004
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posted
KGG, I'm so sorry for the flare. I think one of the hardest things is not knowing why. It makes it hard to treat. I understand not wanting to go back on antibiotics. I had this conversation with my husband last night. I've cried for 2 days straight. I was doing pretty good and then CRASH. I feel worse than I have in a long time.
We talked about the option of going back on antibiotics if I continue to get worse, but it isn't appealing to me. I think I'm going to wait for my hormone tests and see if that helps before moving that direction.
Has anything changed for you in last month? I hope it is just another layer being peeled back, but it's hard when the layer takes so long to peel.
Sending hugs, my friend .
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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kgg
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Thanks, HW88. Appreciate the cyber hug. Stress. Big time stress is I think what triggered it.
Posts: 1844 | From Maine | Registered: Jun 2004
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posted
UGG yep. stress is a trigger for sure. I hope you find a way to decrease your stress.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
Hi folks, Sorry if this has been covered before...can't read a long time on a screen...i have done a lot of mhbot in my own chamber but for the past 8 months or so did not do it. Question is about nasal cannulas vs mask. the cannulas are so much more comfortable for me. i have a 10 LPM oxygen concentrator, and with the mask, i use it at 8.5. what is the best setting for using cannulas? it seems like 8.5 produces a really strong flow. also should i be humidifying the oxygen when i use cannulas (it feels a lot more drying than when i use the mask, and i never use the bubbler when i use the mask.)
thanks very much for your help.
Posts: 4 | From Arizona | Registered: Apr 2016
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Phoiph
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Hi CeeDee~
I would not recommend using a cannula with mHBOT, as they are only designed to be used at flows of less than 6LPM, and deliver less 02 than a simple Hudson mask.
As previously suggested on this thread by jcarlhelp, you might try an "Oxymask" (by Southmedic). It is an open mask with a diffuser that can be used with higher flows, and delivers more 02 than a cannula, and possibly more than a simple Hudson mask.
I have tried the Oxymask and found it very comfortable, but it has a strong smell that has never off-gassed completely, so I continue to use the simple Hudson mask.
What is the make/model of your oxygen concentrator? If it is an AirSep New Life Intensity 10LPM (20 psi), it should be set at no higher than 8LPM.
Posts: 2072 | From Earth | Registered: Jul 2013
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I can not seem to get my feet under me. I've been at full protocol for 8 mo. Off antibiotics for 3 months. I crashed for 2 months after coming off antibiotics. March has been a bit better at the beginning, but I recently crashed hard again.
I feel like I had maybe a week where I felt I was as well as I was before coming off antibiotics.
I'm doing my best to eat grain/dairy free. I'm not perfect here, but much better than I was. I'm drinking bone broth and trying to heal my gut.
I'm having my hormones tested since I seem to crash with hormone changes.
WHAT ELSE? What am I missing?
I know patience, right? but I honestly feel like I'm going in the wrong direction. I have been on the couch today thinking, "This is how I felt before I even started treating for lyme."
Could hormones be playing that big of a role?
I feel like I should be better for being at this for 8 months.
All thoughts are welcomed.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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kgg
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HW88, did you treat yeast when you came off of the antibiotics? I went to one LLMD that when her patients stopped antibiotic treatment she put them on a yeast cleanse for at least 30 days if not longer.
Yes, hormones can make a big difference. But it is individual as to how big.
The other thing it could be is chronic viral infection like EBV or HHV6. The only way to know if it is viral is a blood test, I think.
Another thing to consider is mold. There are some people who can be severely affected by it. We found it in our laundry room at our last house. It can be a Pandora's box looking into mold. I would encourage you that if you do, don't get overly involved with the mold groups. It makes the drama in the Lyme world look mild in comparison.
I am in a similar circumstance as you. I have done the lifestyle modifications and am not happy where I am health wise. I discussed it with my husband and I called a Lyme doc yesterday for an appointment. They have not returned my phone call yet. I don't want to go back to a full antibiotic protocol. But I don't want to do this solo anymore either. I feel like sometimes I just need an objective medical person to give feedback and wisdom opposed to winging it. The problem is limited funds, location and who is available as with most people with Lyme. But I feel like I need to do something. Sometimes that's a good thing sometimes not. Time will tell.
Hang in there. You are not alone.
Posts: 1844 | From Maine | Registered: Jun 2004
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Phoiph
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HW88~
Yes, you have been doing mHBOT for 8 months, but that is not an extensive amount of time considering your circumstances.
During that 8 months, you have made a lot of changes, including tapering a benzodiazepine and quitting antibiotics. These types of changes, especially if they were done quickly can, and usually does, make the mHBOT process take longer. You also had mentioned being under stress.
I have known people who take a year to get off of antibiotics while doing mHBOT, then start counting their months of treatment from that point on for progress comparison purposes.
I do think there are hormonal issues (and possibly thyroid imbalances) contributing to your crashes, as the timing is consistent and cyclical. Hopefully your tests will reveal some issues so you can get support in that area to help balance your body.
Also, you have also just recently made dietary changes and, healing the gut takes time. We did talk about an anti-yeast diet as well.
I do understand your frustration, and am happy you are looking deeper for reasons for your crashes. I just wanted you to know that when you compare time frames and progress, there are many individual variables to consider.
I am looking forward to hearing the results of your testing...
Posts: 2072 | From Earth | Registered: Jul 2013
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I have made a lot of changes over the time frame. That is true. I have not done anything for yeast specifically.
Because my crashes tend to happen along with my cycle, I am REALLY hoping hormone therapy will be helpful. It just SO hard to feel so low. I am having blood work done for my thyroid tomorrow.
I will keep everyone posted on my hormone results.
I may start seeing a functional medicine dr. He is also a LLMD, but he may help with nutritional deficiencies, the viruses kgg mentioned or other hiding factors.
<sigh> It feels like I keep re-setting my healing clock.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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I have to second what Phoiph wrote above. You can’t rush mHBOT and adding “other” things seem to complicate and slow down the healing process.
I stated way back in one of my early posts after reading the entire thread that I noticed the people that chose to mix therapies with mHBOT didn’t seem to do well and became frustrated with oxygen therapy.
Kgg how long have you been treating at full protocol?
I didn’t look at hormones until I was nearing the end of my second year around 800 dives that I went to a hormone specialist. I think it was my 7th month that I had a very big crash after some stress and was down for 3 weeks. Even after my 2 years of treating I had a setback when I started work.
Are either of you journaling so you can see where you have come from? I know if I didn’t have my journal and videos I would have been deeply depressed when I hit a setback.
I don’t know how Phoiph feels about adding new therapies before a solid 2 years of treatments but I wouldn’t do it. That’s just me, I committed to 2 years of daily treatments with no other therapies to give oxygen a shot. Lord knows the other therapies failed me.
Posts: 238 | From AZ | Registered: Jan 2015
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posted
Thank you Peimomma, Yes, I journal in quite a bit of detail. Like phoiph said, there have been a lot of changes--decreasing meds, etc.
I just feel like I keep crashing and don't have the overall up pattern. I'm doing my best to do my part. At some point, I need to see some better days though.
I keep thinking I will have the 'I felt much better after that crash' experience, but I'm not. I barely reach the point I was at before the crash for a few days and then crash all over again.
I really do believe in mhbot. I really think it will get me well. I'm just not sure how to hold myself together until then.
I'm holding on to hope, though.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
HW88, I tend to agree with Peimomma that you shouldn't mix too many other treatment modalities with HBOT, however I do not think that balancing hormones will interfere in any way. As long as your doctor monitors your levels with testing, you should just feel better from the hormones.
I started hormone therapy around the same time I started HBO and I think they worked synergistically.
Just a thought...Do you take antioxidants? They can block the healing response to the HBO.
Hang in there.
Posts: 564 | From NW Arkansas | Registered: May 2003
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posted
I do not take antioxidants. I really don't do anything right now except mhbot, diet and trying to move my body.
I wanted to thank everyone for commenting and sharing experiences and love. It really does help to not feel so alone.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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posted
Dear HW88 - hang in there. It takes real time for this to work. Jan 29th was my one year anniversary and I can tell you hands down this year is a lot better than last. At times I feel really normal. I credit mhbot for that.
Since I am rather new to this and everyone else like Digby, Phoiph and Peimomma, I would listen to them. Just wanted you to know that you are in my prayers and I believe you will turn the corner .... have faith. I know it is hard when times are tough it is always darkest before the dawn. Bless you.
KGG, sorry you are going through a spell too. Stress sent me into one but I seem to be gaining my ground back. For the record I am on herbals, mhbot and use rife some. Largely because I when I started, I crashed if I did not have rife and the herbals, with a recent babs flare, I am not willing to pull yet. I would say overall, I have made great strides.
One think I will mention that I do think has really helped me has been detoxing. Like Peimomma Coffee enemas really helped me at times and still do. I also think the infrared sauna really helps. Next, I eat VERY clean. No sugar, grains or dairy (largely due to allergies) but still eat the GAPS diet as my foundation and cook all my vegis down in bone broth. I am on progesterone and some testosterone with hit or miss periods. I used to flare notoriously the first week of every month and now that has abated pretty well. I am still under Dr. H's care and practitioner in NC re: rife. I am not the poster child for how to do this but due to running two companies, I have found what I have to do to keep them up. I hope one day to be confident in dropping periodic rife and herbals but I am not there yet.
Thinking of you all and knowing at times this is really hard. You have to remember the peeling of the onion. I was much sicker before I was at this place. God bless you all.
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
So, Good news....I finally have had about 4 days in a row that I feel at a somewhat functioning level. This is usually the point I get before crashing.
Bad news. My sleep Dr. is making me taper off klonopin right now since it's not helping with my sleep. This is going to be rough. oh people, pray for me. This medicine is nasty stuff and I crash hard when trying to decrease.
I'm still eating clean and I will get hormone tests soon. I feel like I have TOO many working pieces right now. Hopefully once I'm off klonopin, I will have a steady ground to work from.
posted
Hang in there HW88 -- yes Klonapin is tough to get off of. I will be honest in telling you, it is worth doing as you know. Hang in there. What about something like Ambien for sleep? Or even, Melatonin and gaba? Thinking of you and praying for you... Just took my melatonin and gaaba. Hugs!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Thanks willbeatthis! I'll keep everyone posted as the week goes on. I have tried a lot of things for sleep. When my body doesn't want to sleep. Nothing works.
I'm doing o.k. I cut the dose by a smaller amount this time. We'll see how it goes.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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kgg
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Thanks, Willbeatthis. I appreciate your response. I went to my physician and he put me on Biaxin for a month for chronic sinusitis. My daily afternoon low grade fever is a little better. I plan on starting some herbals when done because it is causing a herx.
HW88, that is wise to take the taper slower.
Posts: 1844 | From Maine | Registered: Jun 2004
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posted
KGG, keep us posted. I'm glad a few things are a bit better. Hopefully they will continue.
Can someone tell me how mhbot helps the immune system 'turn back on'?
I've read through this thread and also read oxygen revolution, but my ability to 'hold' information in my brain is seriously lacking.
I was just wondering about it this afternoon. I've had some new things pop up. Wondering if it's just another layer of the onion. Wondering if my immune system is 'turning back on' and how to know if it is getting better or not.
Anyway, just wondering.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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Phoiph
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HW88~
The short answer would be that mHBOT helps block the action and toxins of certain bacteria, assists tissues in resisting infection due to increased oxygen/blood flow, increases the white blood count and improves their ability to find and destroy invaders.
A longer list of benefits supportive of immune function might be:
Activates 8,101 healing genes, stimulates DNA to produce growth and repair hormones and receptors, reduces inflammation, reduces hypoperfusion,/increases blood flow/circulation, releases stem cells, improves immune function (increases white blood cell production), promotes angiogenesis (growth of new blood vessels), has antimicrobial properties/treats/helps prevent infections, improves cellular metabolism/efficiency, assists in healing and regeneration of neural tissue, promotes wound healing, decreases biofilm, reduces swelling/edema, increases production of collagen, reduces pain in certain conditions, improves bone regeneration improves rate of healing from surgeries, decreases effects from radiation injury, improves recovery from athletic over-training/injury....etc.
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
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HW88~
I am concerned because you have recently been experiencing severe symptoms (which you think might be related to hormones, but have not received your test results yet), and are now going to wean off of a powerful benzodiazepine (which sent you into a crash last time).
Would it be possible to talk to your doctor again and rethink this as a future goal once you are stabilized and the hormonal questions have been answered?
It is very difficult to make sense of symptoms when many big changes are made at once...
What are your thoughts?
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
I totally agree with you phoiph. My sleep dr. Doesn't acknowledge lyme though. I say something about it and she just changes the subject. She doesn't get it.
I feel similar to before starting antibiotic treatment. I crash, barely get my head above water for a few days and then crash...repeat. I really don't want to add weaning off klonopin to the mix until I feel more consistent.
I feel like I have too many moving peices. I'm not sure what else to do.
Trying not to lose faith in the process I have chosen, because logically it makes sense. I know I have more variables than when phoiph or peimomma started, so it's hard to compare but I feel I'm struggling more than not....
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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Phoiph
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On 4/12 you posted that you finally had 4 good days "at a somewhat functioning level", but that this sometimes happens right before a crash. How have you been since then?
Are you having adrenal testing as part of your hormone panel?
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
I had 6.5 good days. Then ... down I went. But, I decreased klonopin on day 4 So the crash could be from klonopin (although I didn't decrease by much).
Also, I'm about 5 days from period, so hormones could be playing a role also. I should get my test results back today even though my dr. Appt isn't till next week.
Yes, my adrenals were tested. I'll post later once I get test results back.
I would love to get some forward traction, but I have too many moving pieces to get moving forward.
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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So, I FINALLY have my hormone appt. tomorrow. I got back the results, but don't understand them all, but my estrogen was super low and a few other out of whack issues.
I could use any good vibes/prayers this way. I'm not sleeping and I just cry all the time.
I have no clue if it's herx, hormones, withdrawal, or digressing. I'm hoping hormone support will help at least enough for me to keep moving forward. I REALLY don't want to go back to antibiotics, but I will if I don't see improvement from hormone therapy.
hugs diving team. -H
Posts: 798 | From Cincinnati, OH | Registered: Jul 2016
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