posted
Rodge...Thanks for that link. I can't believe I hadn't seen this. Wonderful podcast that everyone interested in HBOT should listen to.
I was really surprised at Dr. Harch's support of the mild chambers. For a while he was saying that only the full chambers were efficacious. I'm so happy that he has gone back to his early statements about how the mild chambers have their place.
Posts: 564 | From NW Arkansas | Registered: May 2003
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Phoiph
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posted
Rodge...Really great interview...I posted it on my website...thanks!
I agree with Digby. I'm SO glad Dr. Harch is expressing support of home chambers again.
Posts: 2072 | From Earth | Registered: Jul 2013
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quote:Originally posted by HW88: I'm not sure if I had a stressor that triggered it. I know it was gradual and that I had 'episodes' before it full on took my life.
Soo, venting. . . And I'm sorry for this, I just need people that understand what I'm going through to hear me.
I didn't sleep well last night... again. I don't feel like I"ve slept hardly at all since coming off my antibiotics in December and even before that, it wasn't great.
I'm an emotional ball. The Anxiety shoots through the roof when I don't sleep and my brain and eyes just feel like they are on fire. It just WON'T SHUT OFF. I literally feel I'm going to have a break down at times.
I did have about 4 pretty good days again... I'm slowly adding in the above mentioned meds. But I feel like if I don't get consistent sleep soon, I really am going to lose it.
I'm sorry to be debbie downer today, I just cry and want this to all end.
BLAH, ok, I'm going to stop crying and go for a short walk. then maybe try and rest. I don't know how much longer I can do this. I need sleep!
Sorry again.
It appears you may very well be going through "Klonopin Withdrawal"!
I started my taper last year at a daily dose of 1.5 mg to 2 mg daily! I'm now down to 0.25 mg and plan to finish off my taper within the next three to six months!
I confided in "Phoiph", last year via email and told her I was about to embark on the "Monumental task" of getting off both "Klonopin and All RX Drugs", for that matter once and for all!
Considering you too have children to care for may I kindly share with you some things I would have done differently? Being able to look back objectively at both my battle with "Chronic Lyme", and "All Things Benzos", in hindsight with 20/20 may be of value to you?
As parents with children it really is difficult trying to manage "Living for today", (IE) creating memories NOW... and "Living For Tomorrow" hence creating future memories isn't it?
After Phopih, literally saved my life I was "Ecstatic" some might even argue "Euphoric" at the mere prospect of being able to raise my then 10 year old son!
However I soon realized after diving that I was going to need to come off "All the RX drugs" I was taking "Including Benzos", in order to make a full recovery!
So here I am "12 months later", and nothing I repeat nothing could have prepared me for this "Nothing"!
Looking back on this whole journey I'm not sure how many of my symptoms were related to "Lyme", and how many were related to "Tolerance Withdraw"?
I highly recommend reading the "Ashton Manual", if you haven't already done so? "Slow and Steady", wins this race as "Phopih", is often time quoted as saying(-: Also I wish I would have "Micro Tapered", possibly even liquid tapered for the entire duration of my taper.
(FYI) I just started diving again today after not diving even once over the last twelve months! I read your post while laying in bed and felt compelled to write. I didn't feel both my brain / body could handle any additional trauma "Right Now" which is why I elected not to dive.
The original plan was to finish the taper in six month and then finish with "One to two years of solid MHBOT"! If anything me not diving for the last twelve months should be a testament to the efficacy of "MHBOT", for those who saw me at my worst! I can 100% guarantee you I wouldn't be writing this right now if it weren't for both "PHOIPH", and "MHBOT". MHBOT 110% with out a doubt saved my life and enabled me to raise my son over the last three years "Glory To God"
Before I go I want to clarify that I truly feel 90% of the symptoms I'm currently experiencing right now are largely attributed to "Tolerance Withdrawal"...NOT Lyme disease! The reason being is that when "I'm not in a WAVE", but rather a "WINDOW" I can feel "Decent" for weeks at a time(-:
When I was super ill with "Chronic Lyme", I never had any "WINDOWS",...just a horrible 24/7 365 days a year sick "Lymey feeling!
Please remember I'm writing this to you while going through a massive "WAVE". I will post here the next time I'm in a "WINDOW" as the quality of my writing should be better(-:
"Klonopin Withdrawl", is an entirely different animal... something I wish I would have known more about before I agreed to take that first dreaded pill! I wanted to make that possible connection for you....just in case you're still searching for answers!
I would write more however once again.. I'm currently in the clutches of a nasty "Wave", and barely had the energy / mental capacity to write this! I will post here the next time I'm experiencing a "WINDOW". I wish you the very best and hope some of the aforementioned makes sense?
Posts: 50 | From San Diego | Registered: Jan 2014
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kgg
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posted
Looking4Hope, that is so sweet and considerate of you to write all of that when you are in a nasty wave. I understood how hard Klonopin was to come off of when I read many have to use the water taper. Now that is super sensitive!
I hope your wave is short and your next window much longer.
Posts: 1844 | From Maine | Registered: Jun 2004
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quote:Originally posted by Hominahomina: Looking4hope You say you are starting to dive again after 12 months Can you describe how you feel the first few dives?
Thanks
So I just finished my "Second Dive" after not diving for over 12 months! The dives have both been 60 minutes in duration without supplemental oxygen! I'm going to consider using my "Oxygen Concentrator", this go around if I can control the "Herx's"!
While going through "Benzo W/D", I have used both "Water Enemas", and "Coffee Enemas", fairly regularly! Both have been incredibly valuable and I wouldn't have gotten this far without them!
Benzo W/D, also has quite literally forced me to eat "Super Clean", something I didn't do "Consistently" my first go around either)-:
My hypothesis is that with both a far superior diet coupled with "Zero RX Drugs", my body will heal and then some this time around! I found a gal on "Youtube", who was quite successful following a similar protocol (IE) "MHBOT","Coffee Enemas", "Great Diet", "ZERO Drugs".. etc
So far I have experienced "Zero Herxeimier Reaction", which is absolutely amazing considering this was the primary reason I was unable to be "Consistent", my first go around!
I believe some of of the reasons touched upon above (IE) "Poor Diet", "RX Drugs", and "No Water / Coffee Enemas", were the reason I herxed so bad the first time around!
The last year for me personally has been spent fighting a fight which has been on par with that of me being extremely ill while battling "Chronic Lyme"! The only difference is I have also experienced beautiful "Windows"...that never happened when I was sick 24/7 365 days a year with Lyme!The "Windows" at times have afforded me levels of clarity I haven't experienced in years!
I will post my future progress not only here but additionally in the "Benzo W/D Support Groups", as well! With so many people suffering I hope to some day be a beacon of HOPE to those within the "TBI Community", "Lyme Community","Benzo Community" etc.. God bless you all!
Posts: 50 | From San Diego | Registered: Jan 2014
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posted
Here is just more info on the Southmedic Oxymask. This is a video comparison of the Oxymask to a typical re-breather mask. youtube oxymaskPosts: 16 | From Michigan | Registered: Dec 2017
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posted
Thank you tom f. I Just finished my third dive today within the span of three days "So far so good" with "Zero Herx"!
If anything I'm feeling far better then I did prior to using the chamber! This was never possible in my past experiences when using MHBOT as my Herx's were the sole reason I was unable to be "Consistent"(-:
I never got that "True Healing", my first go around largely attributed in my own personal opinion to the following...
1.RX drugs in my body.. chiefly "Klonopin" 2.No method of detoxifying "When Herxing" 3.Lack of consitency 4.Diet not on point 100% of the time!
The goal as previously stated is to eventually use the chamber with supplemental 02 once I feel my body / brain can handle it!
Thank you "Oxyhealth", for the wealth of information you guys provide whenever I reach out to you!
Posts: 50 | From San Diego | Registered: Jan 2014
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I'm going to post here one last time before coming back in a month or so with an update!
I have now completed five dives in "Five Days" each 60 minutes in duration.
Additional I'm now using "Supplemental O2" and have my oxygen concentrator set at (8.5 lpm). Thus far I still haven't herxed?
I'm both intrigued and incredibly optimistic at the same time as "Herxing", was the primary reason I was unable to remain consistent in the past!
Posts: 50 | From San Diego | Registered: Jan 2014
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Phoiph
Frequent Contributor (1K+ posts)
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posted
Hi Looking4hope~
Great to hear from you.
So sorry you've been going through a rough time with the Klonopin withdrawal. I often thought my severe symptoms were in part related to constant withdrawal, since I never increased my dose over a number of years, and had surely built up a tolerance. As you mentioned, if you look up the symptoms of withdrawal, they mirror Lyme. So grateful to be med free.
If you look up the interviews with Stevie Nicks (Fleetwood Mac), she talks about how Klonipin took 8 years of her life, and was more difficult to get off of than cocaine or heroin.
I am very happy to hear you're using your chamber again. I would have suggested you start up more slowly, but you know the drill. :)
Congratulations on how far you've come, Looking!
Posts: 2072 | From Earth | Registered: Jul 2013
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Great to hear from you as well my friend! Fleetwood Mac is one of my "Old School Favorite Bands"! I have both watched and heavily researched "Stevie's" battle to get off Klonopin once upon a time!
During the last year while performing my "Benzo Taper", I joined an online Benzo Support Group.
There as so many good people there who have been off the drug for "Months / Years" and are still going through "PAWS", better known as "Post Acute Withdrawal Syndrome"!
As one can imagine these individuals are extremely desperate.. and sadly many take their lives!
This led me to start researching things such "Drug Related", and "Alcohol Related", brain injuries!
I believe I might possibly be on to something here! I haven't found a whole lot of research on "MHBOT BENZO W/D", unless I'missing something? I will be posting "Updates", regularly via the support group I'm involved with!
(Good News) I'm now down to 0.125 mgs and plan on "Jumping", or getting off completely in the next couple months maybe sooner!
What's interesting is I "Dry Cut", down from 0.25 mg to 0.125 mgs "Only after I started using MHBOT with Oxygen"?
This is absolutely HUGE as I hadn't had the courage to "Dry Cut" or "Liquid Taper", for that matter after going through four months of sheer TERROR after finally stabilizing at 0.25 mg!
Originally my plan was to start slowly as you suggested, however in the spirit of "Science"..I'm going to keep pushing forward considering the aforementioned above!
Thank you once again Phoiph and although I'm far from out of the woods yet...I'm beginning to see that a "Complete Healing" is possible over time!
Posts: 50 | From San Diego | Registered: Jan 2014
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posted
Hi all, I am starting mHBOT for my illness. I have Lyme symptoms with moderate peripheral neuropathy. My only positive test is for Chlamydia Pneumoniae. Anibiotic treatment(Wheldon Protocol) for Chlamydia Pneumoniae put me in the ER so I am trying mHBOT.
I did end up finding a Newtowne chamber - my first dive didn't go so well. My ears did not equalize - I had to stop at 2psi from pain in my right ear and sharp pains when I depressurized from the 2psi. Slight ringing and noticeable hearing loss that lasted about a day.
Posts: 16 | From Michigan | Registered: Dec 2017
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kgg
Frequent Contributor (1K+ posts)
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posted
tom f, I am really glad you stopped at 2 psi. I take about 10 minutes to depressurize. That requires not closing the valve all of the way but left partially open.
Initially, I would chew gum, using "ear planes" ear plugs and drink water to help my ears. There is also a maneuver where you plugged your nose and gently blow out. That should help your ears pop.
Posts: 1844 | From Maine | Registered: Jun 2004
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Abvice please.....can't stare at the screen long so I will get right to it.
New pain in feet...light someone is holding a lighter to toes and ball of one foot? (blood sugar is fine)
Stomach issues are back.....diet is most keto...good high fats and nutrients....gas is still awful...sorry tmi.
Even the rashes on my thighs are now getting larger again?
Dr appointment next week and now liver enzymes are raised and I am concerned....as usual...
My personal opinion is my body is not disposing of the toxins fast enough and they will eventually destroy my organs...(kidneys have already been compromised)
Any advice would be great....much appreciated,
Reminder
-------------------- Chronic Lyme Posts: 36 | From Florida | Registered: Jun 2016
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started off lorazapam...however,staying on until i get a bit better,it helps me stay calm when I am not well....been taking for years now due to this situation.
tks
-------------------- Chronic Lyme Posts: 36 | From Florida | Registered: Jun 2016
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Phoiph
Frequent Contributor (1K+ posts)
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posted
reminder~
Your symptom flare could definitely be related to tapering off lorazapam. Did you begin tapering before the symptom flare?
Posts: 2072 | From Earth | Registered: Jul 2013
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Do you remember exactly how you felt when withdrawing from Benzos? I believe you were withdrawing from a Benzo while also healing from "Chronic Lyme" at the same time correct?
Klonopin W/D for me personally at times has been equally as difficult as when my "Chronic Lyme" had me both "Bed Bound / Home bound"!
The symptoms I'm currently experiencing are far different then those I experienced when I was extremely sick with "Chronic Lyme". It seems I have a classic case of all things "Beno W/D"..time will tell!
I have decided not to leave any stones unturned this go around! For instance I'm "Diving Consistently", "Eating Super Clean", "Almost Off All RX Drugs", "Detoxing", and the list goes on!
At times "Including Right Now", I'm 100% agoraphobic which many withdrawing from Benzos seem to be...however that doesn't make things any easier!
I "GHOST" or rather drive to the store late at night in an attempt to mitigate my contact with others right now.
When I read that many of our respected men and women who served in Iraq /Afghanistan were also "Agoraphobic" due to "Benzo W/D"..it slowly began to sink in)-: This symptom has come and gone many times throughout this W/D..absolutely brutal.
I have now completed my 11th dive with Oxygen and so far "Zero Herx", related symptoms "YES"! I'm just going to POWER it out & don't really have any expectations until around the three to four month mark!
I have read some really fantastic things about "IV Ketamine" however because I'm currently still on a minuscule amount of a "Benzo",.. the therapy historically doesn't tend to work as well)-: Might explore this at a later time need be?
Best Wishes, to all those trying to HEAL from a Benzo(s) while also doing MHBOT therapy! If I had to do it all over again I would have "Liquid / Micro" tapered for the entire duration of my taper!
[ 07-24-2018, 05:49 AM: Message edited by: Looking4hope ]
Posts: 50 | From San Diego | Registered: Jan 2014
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quote:Originally posted by reminder: Hello Phioph,
Symptoms started before...weeks ago
Back to benzos yesterday.....no choice,a real roller coaster...with new symptoms
thought i was at the tail end of this...not so sure now,
r
Please research "Benzo Kindling"...just looking out for you friend(-: The Ashton Manual is located here https://benzo.org.uk/manual/Posts: 50 | From San Diego | Registered: Jan 2014
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Hey everyone. I thought I would give an update.
I just looked back at my post on 6/3 and things are way better since that time. It's a slow incline upward.
I would like to suggest something to those that don't seem to be progressing like they should. Get an HTMA (Hair trace mineral analysis), this is a test where they take a sample of your hair and see what your minerals are. You will not see these ratios in blood tests.
I have two words for adding minerals to the regimen, "Game Changer". I started thinking about this, why was it that Phoiph got well, but others are struggling? Maybe it had to do with the bone broth!!! Tons of minerals in a liquid form. I believe at one point she was only consuming bone broth. Not everyone can tolerate bone broth, but there are liquid minerals etc.
I can't say that I'm feeling great yet, or even really good, but these are the very subtle things that I am noticing. My immune system is gradually getting back on line. This encourages me more than having a really good day.
- My nails and skin are strong (which they never have been).
- My bowel movements are becoming regular (This has always been a big problem for me).
- I am sweating buckets. I had stopped sweating (even in my sauna).
- I'm getting a runny nose (can't remember the last time I had a runny nose).
- I'm hydrated (my finger tips don't look like prunes)
- When I walk I don't feel like I am dragging an elephant with me. It's a bit easier.
Here is the lab for the hair analysis if you are interested. You need to find a practitioner that can order it.
Do you make your own bone broth ? How often do you drink it?
Thanks for your report
Posts: 261 | From California | Registered: Sep 2017
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Haley
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posted
Hi Homina- my attempt at making bone broth has been pretty pathetic. It tastes terrible!!! I can tolerate chicken broth, but the beef soup causes me to itch for some reason... I guess it’s a histamine reaction.
I am, however, taking potassium and other trace minerals. One thing that has helped a lot is an adrenal cocktail. Fresh OJ, cream of tartar and sea salt. I needed potassium badly!!!
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Looking4hope...........thank you for your kindness.
Still diving...bone broth...added light coffee enemas has helped my liver detox all this junk (benzos) out of mysystem....still going to taper and on that site now)
r
-------------------- Chronic Lyme Posts: 36 | From Florida | Registered: Jun 2016
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posted
Is the consensus still 1 hour treatment is ideal? On paper - 1 hour at 1.5 ATA seems alot different than 1 hour at 1.3 ATA.
1.3 ATA - 4.2psi - 9.7 water depth 1.4 ATA - 5.9psi - 13.6 water depth 1.5 ATA - 7.4psi - 17.0 water depth
Posts: 16 | From Michigan | Registered: Dec 2017
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Phoiph
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posted
Hi Tom~
IMO, 1 hour daily is ideal (not counting the time it takes to pressure up and down).
Some people do increase to 1.25 or 1.5 hours once they are more accustomed to diving and are no longer experiencing reactions. For others, this is too much.
The more important factor is not whether you do 1 hour or 1.5 hours, but whether you dive frequently and consistently.
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
Frequent Contributor (1K+ posts)
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posted
"Do you remember exactly how you felt when withdrawing from Benzos? I believe you were withdrawing from a Benzo while also healing from "Chronic Lyme" at the same time correct?"
Looking4Hope~
Yes, I believe I was in continual withdrawal while I had Lyme, and it was impossible to tell which symptoms were which.
The agoraphobic-type symptoms I experienced were a sense of extreme "conspicuousness", vulnerability, and rawness to the point of not having the strength to be in the presence of others, as I couldn't withstand their overpowering energy. Even their clothes seemed "loud"!
This extreme sensitivity, IMO, is not true "agoraphobia", but in part has to do with the physical GABA withdrawal. On top of all the other symptoms I was experiencing, it constantly felt as if I were wearing my unsheathed nerves on the outside of my body.
That said, I am confident that the chamber will allow your nerves/receptors to heal and rebuild over time, as it did mine.
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
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posted
Hi Haley~
I'm so glad you're doing a bit better!
Good point about the minerals.
I do believe the bone broth was instrumental in my recovery. When I was able to tolerate more substances, I also began the liquid minerals and magnesium that I continue to take.
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
Hey guys, hopefully someone will see this sooner than later. I know its in the thread somewhere but should i dive if i have a head/chest cold or wait? Thanks!....
-------------------- Rodge Posts: 9 | From CA | Registered: Jun 2018
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posted
This is quite a thread and thank you all for keeping it going. I've been thinking of doing HBOT so I have been doing my homework. I still have many more pages to read.
I am trying to determine if I would even be a candidate for this. It seems those who are using it have a high bacterial load and a lot of symptoms.
I stopped taking ABX routinely in 2013. I have had to go back on from time to time when I feel like I feel like I flare. I do herbals and plenty of supplements. I exercise routinely, reformer and yoga.
I feel like ABX are getting tougher and tougher to handle. I don't feel like I herx anymore but they do seem to make me feel better. My CD57 is only in the 40 range and has been a pretty good marker for me.
Would HBOT, or I should say mBOT, help me? I have put some thought into this and figured if I still had a low level of infection it may help, but also if what I was experiencing was more damage/fallout from disease it should help.
I would like to get to the next level of healing. Would love to hear your thoughts.
Posts: 478 | From Third Coast | Registered: Feb 2011
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posted
I recently found out I have Q fever. Maybe that is why mild hyperbaric wasn't helpful for me?
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Help anyone?
Something very bizarre just happened.
The pressure started going down and then a loud noise from the valve on the right side. Do you know what this is? Is it broken? Yikes, hope not.
Posts: 2232 | From USA | Registered: Aug 2009
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Phoiph
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posted
Hi foxy~
Good to hear from you!
I don't think anyone can answer that question for sure, but I don't believe so.
If I recall, you were concurrently on a number of different meds and therapies, which can definitely present a much different, and often more complex picture.
Hopefully you are doing better now?
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
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posted
Haley~
Pressurize your chamber again while you are on the outside. (Be sure to have your oxygen concentrator "on" so the backpressure won't damage it.)
Do you see/hear an obvious leak?
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
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posted
"...Would HBOT, or I should say mBOT, help me? I have put some thought into this and figured if I still had a low level of infection it may help, but also if what I was experiencing was more damage/fallout from disease it should help."
koo~
I agree!
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
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quote:Originally posted by Rodge: Hey guys, hopefully someone will see this sooner than later. I know its in the thread somewhere but should i dive if i have a head/chest cold or wait? Thanks!.... :)
Hi Rodge~
I answered you via PM, but I wanted to reiterate that you shouldn't dive if you have sinus/ear congestion, or a fever.
Posts: 2072 | From Earth | Registered: Jul 2013
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Haley
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Member # 22008
posted
Wow 😮 ok ... there absolutely is a leak. I have never filled it up from the outside.
I now realize this has probably been there all along. Remember when I had issues getting it to fill up in the beginning? I just assumed it was quirky, but it actually was leaking air. If I shut that seam it fills up right away.
It’s coming from the seam around the window. It looks like it could be glued shut, but not sure. I can actually take my finger and put it through the seam.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Yes, Phoiph I AM feeling a bit better thank you for asking.
I am doing mostly herbs this year. I at least have ups and downs. It used to be only down.
Now that I found out I have Q fever, I have to go back on doxy. Q fever can be deadly so it is nothing to mess around with. I don't want to go back on it but here I go...
Still test positive for Lyme, Bartonella, Babesia, Mycoplasma, Epstein Barr and now Q fever. It is so discouraging....
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
Haley who made your chamber? Can they fix it?
Posts: 261 | From California | Registered: Sep 2017
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Haley~
So sorry to hear that. You will need to call Jeff (tech) at Oxyhealth, at 877.789.0123. Let him know that you depend on your chamber for serious health issues and need it to be repaired as quickly as possible. If it is going to take a long time, maybe he will send you a loaner.
I'm assuming your chamber is not still under warranty. I will warn you in advance that although less than a zipper repair, the window seal repair is not inexpensive...
Posts: 2072 | From Earth | Registered: Jul 2013
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Phoiph
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posted
foxy~
Do you have any plans to start mHBOT again?
Posts: 2072 | From Earth | Registered: Jul 2013
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Homina - it’s an oxyhealth.
Thanks Phoiph- I’ll call him. It looks like it would be very easy to fix.., I’ll just have to see.
I’ll let you know how it goes.
Posts: 2232 | From USA | Registered: Aug 2009
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No, I am consuming a lot of herbs and recently CBD oil has given me quite a boost.
I am in phase 1 of Q fever so it must have came from a new tick bite I go this summer. So I doubt I had it when I did the hyperbaric.
I recently found out I am loaded with Bartonella. I am suspicious this has been my main problem all along and not so much Lyme.
I don't think I was treated aggressively enough for that! So here I go...
I did love doing the chamber though. I know it sounds weird but it was fun to zip away the world and relax! Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
Homina, I do not have trouble sleeping, but my Dad has Parkinson's and he does. He takes CBD oil before bed and it really helps him!
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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