quote: Most of the questions against my integrity had to do with whether or not I contacted the manufacturer. Well, now I have. --end quote
Re the above: Six you are a well-liked member of this board and speaking for myself and perhaps others felt the same, it was NOT YOUR integrity being questioned. I did not for a second think that you were knowingly passing on misinformation.
The point was that without verification from the parties involved it is in everyone's best interest to think twice about posting damaging info passed on second-hand about anyone because that is not "proof".
If the information you have now posted was presented at the beginning, I believe that the responses here would have been different.
Perhaps we all have learned something from this.
I hope you are no longer feeling stressed about this and thank you for doing the necessary research.
I still do wish though that you had contacted Gigi privately about this first to get her side of the story as that is what I would have hoped someone would do for me and the first step some others have expressed that they wished had been done. My opinion is in no way meant to disparage you or upset you -- please know that.
Take care
Posts: 590 | From Canada | Registered: Oct 2007
| IP: Logged |
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
If I got a letter from my doctor with evidence from the manufacturer that someone who recommended something was getting a commission - I would be pretty angry.
Especially, if they were acting as if they were not getting a commission.
I don't think I would have a private discussion with them & decide whether to tell all the other people who may be scrimping & saving to afford this treatment.
It's very deceptive. I would have to question whether this person was really my friend. It's not pleasant but it's just the truth...
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
| IP: Logged |
clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
We cancelled our daughter's appointment for reasons that had nothing to do with Gigi's comments or lack thereof on this thread. We decided it was not in her best interests to leave school due to some unexpected coursework. We gave several weeks advance notice and also tried to re-schedule, but have not yet heard back on this.
Is it conceivable that people are canceling their trips to Germany because less expensive options are becoming available? No one can be faulted for this and, if you think about it, may even be cause for celebration. With our country left in shambles, finding the most economical solutions should be a priority now more than ever. Many thanks to those who have been diligently working on this despite some of the obstacles and hurt feelings.
This may be a perfect time to remember flexibility and compassion. There are generational and cultural differences which influence communication, and we are all suffering from an illness. Letting go of past hurts allows space for new things to enter.
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
| IP: Logged |
posted
I just received my VAT refund from the Bionic 880 manufacturer today. Several people have PM'd me about this so I figured I would just post about it here.
I bought my machine with a credit card at Dr W's office. I then had the invoice stamped by the ZOLL officer at the airport. When I got home, I scanned the invoice and mailed the scanned copy + my banking info to H. Buschkuehl. He emailed me 4 days ago to let me know he had received my letter but needed my bank's SWIFT Code. I obtained the code, gave it to him and this morning the money was in my account. No problems here.
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Thanks Clairenotes!
Those are very good points. I agree.
I don't have any ill will towards anyone. It's good we have everything out in the open. I think this technology has alot of potential & can really help people.
I'm not sure if you need to use expensive equipment or if lesser devices can do the job. That's why some of us are experimenting with it.
It's hard to tell just yet but it looks promising. It's not to be taken lightly, though. There are dangers - so, we all have to be careful.
Any info people can share about their treatment, helps all of us. I hope people will feel that they will not be criticized if they would like to share negative or positive aspects of treating with the Bionic 880 or by other methods using infrared light.
We can all learn from it.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Yeah, Zombie, I'm thinking it was a problem at the airport mail ..... people knew we got stamps and were mailing the invoices back ..... I would have had it redone, but it would have meant an overnight trip to Chicago .... didn't want to put any more money into it.
I'm glad you got yours back.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
quote:Originally posted by sixgoofykids: Yeah, Zombie, I'm thinking it was a problem at the airport mail ..... people knew we got stamps and were mailing the invoices back .....
Yes, I decided to wait til I got home and then send it. After others had problems with mailing it from the airport, I was worried.
I am glad I got the refund. 1216.00 EU is nothing to sneeze at, especially when converted into Canadian dollars...!
posted
mine got deposited into my account yesterday. i didn't send mine from germany's airport either, sent it from new york two weeks ago or something like that. plus i kept multiple copies just in case.
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
| IP: Logged |
posted
Hi nyjohn, would you mind sharing the results of your treatment by Dr. W with us? Have you noticed any significant improvement after the 3 weeks of treatment at Dr. W's clinic? Are you cleared of Lyme by Dr. W's tests after the treatments?
posted
i definitely felt better after my 3 weeks there. i cleared lyme and ebv in that time last week i got muscle tested locally for lyme and babs. no babs, and only a tiny bit of lyme energy found in my right parathyroid gland. so i treated myself the next day with nosodes from my treatment in germany as well as my own blood which i drew myself that morning that i treated myself. i will treat again tomorrow and friday. no iv's, just lots of clean water and detox teas. but only using 50% power, as suggested by dr w.
yes, it was worth going over there. i would have spent the same amount of $ on abx in 2-3 months anyway. and the abx stopped helping, in fact, i was getting worse due to the toxins from them.
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
| IP: Logged |
posted
Thank you nyjohn for your report. When you said "no iv's", did you mean no IV when you were in Germany, or just after you come back here?
What were your primary symptoms before the trip and to what degree were they resolved? Did you have any neuro-symptoms like brain fog and difficulty concentrating / thinking?
main symptoms= shaky/trembling, weakness, seeing spots/lights, insomnia, heartbeat/tachycardia, twitches, word fumbling
many of these have resolved or have gotten much, much better
-------------------- do your best to educate the rest because 9 out of 10 doctors don't know jack about tick borne illnesses Posts: 437 | From shawangunk mountains, ny | Registered: May 2008
| IP: Logged |
posted
Thanks nyjohn. Your progress is very encouraging. So it looks like everyone who's been to Germany for the entire treatment process has come back with notable improvement. I hope the same would apply to me even though I'm doing the treatment on my own.
posted
I have been back from Germany now for about 2 weeks and am just now finally seeing some improvements. My main symptom was fatigue and although it didn't go away while I was in Germany, it started to clear up a bit after I was home for about a week. Usually mornings are the worst for me (with fatigue), even on decent days, but I've noticed just over the past several days, I do not have the major fatigue in the morning when I get up.
I treated myself 5 times with Bb nosodes in Germany and will do another 3 treatments on my own here in the states as I didn't clear the Lyme completely when I left Germany.
Posts: 215 | From Phoenix, AZ | Registered: Jul 2008
| IP: Logged |
Yes, I received the ozone and IV's while in Germany. I used to get both here in the states last summer, so I was used to them. I don't have brain fog in terms of memory loss, just total exhaustion on days and fatigue to varying degrees. Some days it is there, but overall not too bad. And other days I feel like I just can't get enough oxygen and have absolutely no energy to leave the house or sometimes it can be a struggle to get out of bed.
As far as I know, ozone is very safe. I've been getting it off and on for a year now with no problems.
Posts: 215 | From Phoenix, AZ | Registered: Jul 2008
| IP: Logged |
posted
Thanks, rachellemarie.
Posts: 861 | From USA | Registered: Dec 2008
| IP: Logged |
NanaDubo
Frequent Contributor (1K+ posts)
Member # 14794
posted
R62 - no back up help with any doctors here. One interested ND but he just doesn't know enough about it to advise me.
Pathogens - yes. The ones I was "allergic" to are now making themselves available to be dealt with from doing A I. I don't know if they were brought out by the light or not.
I think it was Sparkle who said allergie didn't seem like the right word and I agree. This clearly is not about hay fever - although I'm sure it handles that too.
I believe one of Dr. W's first patients was a child whose parents did not want to go the way of antibiotics. Since he has said children respond very quickly, I guess there have been more.
I don't know for sure if kids get IV's or ozone.
I did not get ozone when I was there.
Posts: 1129 | From Maine | Registered: Feb 2008
| IP: Logged |
posted
Hello NanaDubo, did you have any neuro or brain-related symptoms when you saw Dr. W? What is the reason that Dr. W did not prescribe ozone IV for you during your stay at his clinic?
NanaDubo
Frequent Contributor (1K+ posts)
Member # 14794
posted
Lymic - I had the feeling of being off balance a lot of the time and still had that when I got to Germany.
He never discussed doing ozone with me and I can only guess that he didn't feel I needed it.
Posts: 1129 | From Maine | Registered: Feb 2008
| IP: Logged |
researching photons, i skimmed over this mess pertaining to gigi.
to anyone communicating with her, i hope she does reconsider posting here.
it is but a smaaaaaallllll few who have criticism. they are usually the ones with the biggest mouths.
gigi has made thousands of posts that have helped at least as many people, from opening their minds to broader ideas regarding viable treatments, to sharing the most intricate details about them.
i can understand why the few naysayers are such a drag, gigi, but there are soooo many more of us that are appreciative and in need. like -- 99 to one ratios, at least.
here's to opening the door to the world of healing via photons and dna!!!
still learning, mo
-------------------- life shrinks and expands in proportion to one's courage -- anais nin Posts: 8337 | From the other shore | Registered: Jul 2002
| IP: Logged |
quote:Originally posted by R62: Are you all receving back up help with your doctors and how is that going?
Are you running up against emerging pathogens that are brought out by the light that you are having any trouble dealing with?
Have children been treated by the Bionic and do they also receive the IVs?
Is Ozone considered very safe?
I do not have any back up help. My LLMD is allopathic. He was aware that I was going to Germany for tx, but that's about it. I am searching for someone who can support me in this. I have a line on a ND in my area who offers iv ozone and Vega machine-testing. I'm going to call him next week and see if he'll take me on...
I seem now to be having worsening of some sx, even as other sx are improving. I figure it is co-infections coming forward now that the Bb is gone... I suspect babesia and mycoplasma. I have just received the nosodes for these and will treat soon.
I have heard that children respond well to photon tx, don't know about iv for kids though.
I was told by one of Dr. W's nurses that iv ozone can be dangerous, if not done properly.
posted
Thank you Zombie_Mummy... it seems there is so much more to the photon treatment for many.. best wishes to you.
Posts: 861 | From USA | Registered: Dec 2008
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Rachelle, the morning fatigue could be your adrenals still being shot from being sick. I'm so glad you are making progress!!
I am not getting any support locally since coming back. I have systematically treated for babs, erlichia, and bart ... just treated with blood. I'm doing fine, symptom-free.
I have some shortness of breath, but I have some mold problems in my bathroom (was fine when I left town for four days).
John, how do you draw the blood? I tried a finger prick and it didn't work very well.
Zombie, I think you're right about other infections coming forward when Bb is cleared .... that is our experience.
I don't talk about it much, but I'm treating my children (with no IV support). My "confirmed" Lymie daughter is doing great with it. She doesn't treat as much as I did and doesn't seem to need it. My other daughter who I highly suspect has Lyme treats when she gets headaches, and they go away. Neither hardly treats at all now .... they feel good. Kids seem to just know when they need it .... they'll come ask me for it, and that doesn't happen much anymore.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Hmmm..... I thought I made a recent post here but don't see it....
Anyway, Six, I just wanted to say thank you for contacting the Bionic company and doing your best to confirm the information you received via Dr. W. And as Looking pointed out, it was not YOUR integrity that was being questioned; it was the validity of the information sent to you.
As someone not privy to the particulars of the information, I'm still not entirely comfortable with all this, but that's nobody's fault and nothing can be done about it. It appears that you did what you could for clarification, and I appreciate that.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
| IP: Logged |
lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
To all those who are doing light therapy, especially those great friends having some shortness of breath. There was a post on lyme friends about the story of a girl who had done some amazing research. Look at the article with the lungs as not functioning as well as they should.
The interesting thing is her discovery: as much as I think light is a very import, as well as homeopathy. There are herbals also very important in the mix. Especially in view of the biofilm issue, which I believe our body could use some help to remove these sticky filmy substances.
I post this even if that great friend beats me to remission.
If biofilms line the internal portion of our lungs. And even if the bacteria are dead, it might be helpful to find a herb that breaks down this sticky biofilm sheath. By the way, this herb gets to biofilm anywhere within the body.
There is a couple of way of finding the herb used. As a powder specfically, tinctures are almost impossible to find. As a ayurvedic bowel cleanse as in triphala.
Just thought I'd add something positive to the discussion.
GiGi is our friend, as well as the others posting. It really is much ado about nothing.
This isn't the first time GiGi declared she was gone from posting. But, if memory serves correct, when she decided to come back we found Dr. W. and the bionic 880. Then later allergy-immune, maybe she just needs a break from posting for awhile. Gee, can't wait to see what she might post next.
In the mean time, I suggest we get some competive zeal. And see if we can come up with something GiGi hadn't thought of.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Hahaha, thanks Bob! So, I don't have time to read the article right now, have to make some minestrone and bacon/apple grilled cheese sandwiches for the family ..... I skimmed the article (will read later), what is this herb? Where do I find it? How do I take it?
Thanks so much for the help!
I was in Las Vegas for four days and was 100% .... came back home and have breathing issues again .... mold?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I hope Bob is right and GiGi comes back, but her reasons for leaving this time were quite different. I personally don't expect her to come back here in the future, but this is one time I hope I am wrong.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Six if I knew you were having minestrone, I would have been right over.
Looking of course I don't mind, thanks for taking the time to create a new thread.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
There was plenty, Bob! We had grilled cheese sandwiches with bacon and apple .... with homemade chocolate pudding for dessert.
I ordered some of that herb.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Six -- I've got my fingers crossed this is the last piece.
If there are enough people trying this approach, after 3 weeks of using the herb overall impression as to the improvement of symptoms.
Our own lymie study based on observation. We could take the observations to our practioners so others could benefit.
-------------------- Bob Posts: 2150 | From Maryland | Registered: Dec 2007
| IP: Logged |
posted
Anyone using for acute lyme. just bitten? Thought about how to do that or instructed how? Ideas? Thank you.
Posts: 861 | From USA | Registered: Dec 2008
| IP: Logged |
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
There are no coinfection nosodes available (Bart, Babs). You have to get creative and find them elsewhere. Many people get them and take them with them to Germany to have Dr. W test them.
For acute Lyme, I would not rely in this personally.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
| IP: Logged |
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I think I read somewhere that biofilms are made up of secretions from the particular organism that is creating the colony. So, it may be something different for each type of bacteria to dissolve the biofilm depending on the particular pathogens that are making up the colony.
It may not be "one size fits all" for biofilm dissolving.
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
I'm using FNG with light. It is a Deseret Biologicals product that contains about 30 different strains of mold, yeast, fungus and mycotoxins, as well as supportive homeopathics.
I don't have the Bionic, but I've used this product with both Lightworks and PE-1.
FNG still tests very good for me, but seems to be doing a really good job of clearing molds out of my system, as well as reducing allergies to them.
Especially while my husband is cleaning out the moldy basement! Sick house syndrome, I think. My whole family tests good with this mix.
I'm hoping this will reduce my daughters learning difficulties. She seems to be concentrating better, but hard to tell what's what so far.
I add the gates accupuncture points, when dealing with an allergy.
I thought this info about my experience might be helpful to some people using the Bionic who have difficulty with molds or candida.
I also use it with a vial Systemic Drainage, as I find this really helpful in clearing out the liver and lymph. There are other good fungal and drainage remedies on the market, but these are the ones I am using and know best.
I'm also working with somebody using biophotons with a nosode-like energy imprint we made of the tick that bit her. It tests really well. We'll see about the results, in time.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
| IP: Logged |
posted
Have you all heard of a practioner using the Bionic in the US?
Thank you, Scott.. as always, bejoy, thank you as well. The idea of using the tick that bit you is very intriguing.
Posts: 861 | From USA | Registered: Dec 2008
| IP: Logged |
lymeparfait
Unregistered
posted
Any news from those in Germany getting the bionic treatment in April?
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[lol]](graemlins/lol.gif)
![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic